PNES

[raelynn15]

Does anyone here have pseudo seizures or Psychogenic non epileptic seizures?

[EpilepsyAction1 Partner Epilepsy Action]

Hi Raelynn15

Majority of people on this platform have epilepsy but I believe there are a few people with PNES.

We are aware that the charity Non Epileptic Attack Disorder UK has an active facebook group. This could be another good way to contact others with PNES.

facebook.com/groups/1388468...

Regards

Diane

Epilepsy Action Helpline Team

[raelynn15 in reply to EpilepsyAction1]

Thank you for the reply. I do not have Facebook, but I greatly appreciate the advice.

[Michelleee_]

Hey I’ve recently been diagnosed with PNES if I can be of any help?

[raelynn15]

I have so many questions. I’m lost and confused and depressed over it. It just started out of nowhere three years ago when I was 24

[Ckj06]

It is not uncommon for people to have both epilepsy and non epileptic seizures. Management is really about recognising the difference between the two and trying to understand and treat the cause of non epilepstic seizures.