My new found journey

[morganwalker1997]

Hello everyone! My name is Morgan, I’m 22 and I live in Canada. I was diagnosed with epilepsy at age 20 after a completely healthy childhood. I now struggle with this daily. I am lucky to have an amazing support group with me (family & friends) along with great doctors. To be honest, every time I have a seizure, I feel angry. My drivers license is suspended, my body hurts, my medication goes higher, people treat me even more like an epileptic etc.

This past week I had my worst seizure yet, and was put into a coma for a week. It was incredibly difficult emotionally and physically. I am on this app to find support and people who are suffering like I am.

I generally have a positive outlook on life, although it can very difficult when I feel healthier than my body presents itself to be. I know that people here will understand.

Thanks everyone.

[matthew2909]

Hey how are you is everything ok I know exactly how you feel and what your going through I’m 22 too I’m always here if you ever need or want to talk or anything

[Bebop2071]

I know I'm a little late to this post, but wanted to say that I had a similar situation. I was diagnosed with epilepsy at 19. I have physical brain damage from being hit by a car (drunk driver) when I was very young which caused it. It wasn't caught after so as far as I knew everything was fine. Then one day I just dropped. It scared me because I was home alone at the time and had no idea what was happening. It took years to finally find a decent med. I've been seizure free for a very long time now but have other issues relating to the brain damage/epilepsy like a numbness/reduced feeling on my left side, horrible headaches that affect the left side of my head, fatigue, depression and other things. It's gotten a bit worse (the headaches and fatigue at any rate) as I've gotten older and makes it hard to hold down a job and simply function most days.

Do they know what is causing your seizures? For you it may just be that you haven't found the right med yet? It took me around 10-12 years before I found one that worked well enough to be stable, and nearly another eight to find something that was even better. It's not perfect obviously, but it's the best they've found.

It sounds like you have a great support system. Make sure to make use of that if you ever feel down. I can understand feeling angry after a seizure. It took me years to make peace with the fact I had epilepsy and that things wouldn't be the same.