Has anyone tried to look into this? Again, I am a caregiver for someone to has seizures not someone who has them myself.. but I wanted to put that drug name out there because it is the only FDA approved CBD that people with epilepsy can get. It is legal in the US not sure about the UK but if anyone has any experience I’d love to hear it. Just something for people to look into.
Epidiolex: Has anyone tried to look into... - Epilepsy Action
Epidiolex
Written by
kellyOd
To view profiles and participate in discussions please or .
Read more about...
1 Reply
•
EpilepsyAction1PartnerEpilepsy Action
Hi KellyOd
Epidiolex is currently going through the process in the UK to be licensed for use in people with two severe types of epilepsy: Lennox-Gastaut syndrome and Dravet syndrome. They're the same conditions the FDA has approved it for in the US.
Even though Epidiolex is not licensed yet in the UK, in rare circumstances specialists can prescribe it. But they're only likely to do so for people with Lennox-Gastaut or Dravet syndrome, and only when all other treatment options have failed.
You might be interested to read our information about cannabis-based medicine for epilepsy: epilepsy.org.uk/info/treatm...
Grace
Epilepsy Action Helpline Team
Not what you're looking for?
You may also like...
Focal motor seizure disorder
Has anyone else experienced or have more knowledge about this form of epilepsy? I was diagnosed by...
Driving again after 1 yr seizure free
Hi everyone this is my first post so go easy on me!
Last December I was diagnosed with Temporal...
Absence Seizures
Hi, I'm new to this, but not new to epilepsy. I had absence seizures as a child, they went away,...
Son age 8 epilepsy diagnosis
Hello
My son had an absence seizure in November and a second seizure in February which was a left...
Pip and epilepsy
I have just been given my pip decision and I find it strange, the have acknowledge that I have...