Has anyone tried to look into this? Again, I am a caregiver for someone to has seizures not someone who has them myself.. but I wanted to put that drug name out there because it is the only FDA approved CBD that people with epilepsy can get. It is legal in the US not sure about the UK but if anyone has any experience I’d love to hear it. Just something for people to look into.
Epidiolex: Has anyone tried to look into... - Epilepsy Action
Epidiolex

Written by

kellyOd
To view profiles and participate in discussions please or .
Read more about...
1 Reply
•

EpilepsyAction1PartnerEpilepsy Action
Hi KellyOd
Epidiolex is currently going through the process in the UK to be licensed for use in people with two severe types of epilepsy: Lennox-Gastaut syndrome and Dravet syndrome. They're the same conditions the FDA has approved it for in the US.
Even though Epidiolex is not licensed yet in the UK, in rare circumstances specialists can prescribe it. But they're only likely to do so for people with Lennox-Gastaut or Dravet syndrome, and only when all other treatment options have failed.
You might be interested to read our information about cannabis-based medicine for epilepsy: epilepsy.org.uk/info/treatm...
Grace
Epilepsy Action Helpline Team
Not what you're looking for?
You may also like...
Breastfeeding with Lamictal
Hi, has anyone breastfed while being on Lamictal? I will also ask my neurologist during my next...
Focal motor seizure disorder
Has anyone else experienced or have more knowledge about this form of epilepsy? I was diagnosed by...
I just want to talk to someone who understands
I'm really struggling with everything epilepsy related at the moment.
I was having my 1 to 1 chats...
Epilepsy Research UK and Epilepsy Action user survey: tonic-clonic seizure alarms
Epilepsy Research UK and Epilepsy Action frequently receive enquiries about tonic-clonic seizure...
Lamotrigine and Sodium Valproate.
My neurologist is now talking about adding Sodium Valproate to my current 400mg daily dose of...