Posts - Epilepsy Action | HealthUnlocked

Epilepsy Action

3,016 members • 1,129 posts

All posts for September 2017

Living is just horror

There is no point to living anymore. Life is fear, nightmares - horror I've done so much wrong I needed some sort of lobotomy. It's terror and horror that I...

There is no point to living anymore. Life is fear, nightmares - horror I've don...

•7 years ago

Seeing seizures on video?

I've been wondering how many have seen their own seizures on video. I've had tonic-clonics in due to my TLE, and I've only seen one video a couple minutes...

I've been wondering how many have seen their own seizures on video. I've had to...

•7 years ago

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I need to get out more, find more people in similar positions!

Being a loner living by myself for years, have become an introvert, almost relying on my bad health issues for some sort of comfort, excuses that my health is...

Being a loner living by myself for years, have become an introvert, almost relyi...

•7 years ago

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Short term memory loss and a helping hand from loved ones.

Hi all i always have a problem with my memory. Day in and day out. Especially having my kids around me. They completely make me forget what i doing or what i...

Hi all i always have a problem with my memory. Day in and day out. Especially ha...

•7 years ago

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Juvenile Myoclonic Epilepsy

Hi everybody! I'm Lisa from Greece, 31 years old and 4 years ago I was diagnosed with Juvenile Myoclonic Epilepsy, after suffering my first (and only) grand...

Hi everybody! I'm Lisa from Greece, 31 years old and 4 years ago I was diagnose...

•7 years ago

Post-surgery, TLE...

Hi I'm new to the app just a day. I was diagnosed with epilepsy around 8+ years ago now, tonic-clonic seizures. I wound up having seizures around every few...

Hi I'm new to the app just a day. I was diagnosed with epilepsy around 8+ years...

•7 years ago

Short term memory loss

Hi all. I have lobe temporal epilepsy with short temp memory loss. I have epilepsy since the age of 7. It is a perminent condition. I am at the age of 30 now....

Hi all. I have lobe temporal epilepsy with short temp memory loss. I have epilep...

•7 years ago

Scared of a diagnosis - Please help

Hi guys, I'm new here and for the past year I have been having these bizarre symptoms once in a while that i simply dismissed as a panic attack provoked by my...

Hi guys, I'm new here and for the past year I have been having these bizarre sym...

•7 years ago

Frisium update as of 11th September 2017

Sanofi now expect to have supplies of Frisium (clobozam) back in stock and at wholesalers by the week beginning 18th September 2017.

Sanofi now expect to have supplies of Frisium (clobozam) bac...

EpilepsyAction1

Partner•7 years ago

how bad

hi I've had two tonic clonic seizures which have gone into status does having these type of seizures effect my life span iwas put into a induced coma both...

hi I've had two tonic clonic seizures which have gone into status does having th...

•7 years ago

Nottingham living with epilepsy event

Epilepsy Action have an event on Saturday 30 September 2017 - 10:00. At Jurys Inn, Waterfront PlazaStation Street, Nottingham, NG2 3BJ. For more details...

Epilepsy Action have an event on Saturday 30 September 2017 - 10:00. At Jurys...

EpilepsyAction1

Partner•7 years ago

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Taking control back didn't last long 😭

Hi everyone After feeling so positive after reading replies to my first ever post. I saw Neurologist & Epilepsy Nurse on 22nd August.where I had medication...

Hi everyone After feeling so positive after reading replies to my first ever po...

•7 years ago

home treatment

who can tell me some home treatments to do at home to stop having a lot of fits please and i am not walk a lot hope you can help me people

who can tell me some home treatments to do at home to stop having a lot of fits ...

•7 years ago

fits

feeling very sad and unhappy who can tell me what to do the doctor did everything but tell getting fits i am at a point were i am walk a bit i cant go in the...

feeling very sad and unhappy who can tell me what to do the doctor did everythin...

•7 years ago

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