scottmoseleya day ago
Hi, I have had a read through the posts and have been very helpful, I have suffered in the past with ‘night terrors’ for many years before b...
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My boyfriend has just been diagnosed with JME and is feeling really low about it. Does anyone have any advice on how best to support him?
pinkpenguin17103 days ago
My boyfriend and I have been together over a year and our relationship is strong. He has been waiting for an appointment following a grand m...
Pregnancy and epilim/keppra
Mango4014 days ago
Hello, I wondered if anyone could give me some advice.. I'm loosing myself just now through stress and other people's opinions.
My partner a...
VNS... what’s the word?
Moulton4 days ago
I’m talking to my doctor now about VNS and am trying to learn more about it. My understanding is that tool to use for treatment and becomes...
Sandly18 days ago
I have had 2 really strange events in the last weeks and I don't know what happened. Are conscious seizures possible on both occasions I had...
5 Replies1 Like
Looking for some help before seeing neurologist
dang9 days ago
Hi everyone, I’m new to this group and hoping someone can just help clarify and advise me. I have an appointment with a neurologist coming u...
Debsborah11 days ago
Hi all, I'm still coming to terms with the epilepsy diagnosis & could do with some advice please.
Both seizures I've had have been when I've...
Lamotrigine and seizures
mutual15 days ago
I am new to this group. At present I am taking 150 mg of lamotrigine twice a day. I am still having seizures. They are severe during night...
Patiant_116 days ago
55 year old male diagnosed with absence epilepsy currently takes Lamictal 200mg twice/day plus keppra 250mg once/day
CBD in lieu of anti convulsants
jsiciliano18 days ago
I take 500mg of Keppra twice a day to control my clonic tonic seizures. I’ve been told this is a low dose, but it has been affective in keep...
my 2 yr old on kepra
nyreeduck21 days ago
my 2 yrold fell off a toy and hit his head, well he got up and kept playing. 3 days later he had his first siezure. i didnt no wat a siezure...
Looking for Answers
rworthin22 days ago
Hi everyone! I'm new to this group and I have a very interesting medical history. I was wondering if anyone possibly shared my story. So ...
Not sure if I had a seizure
Sandly1a month ago
This is only my second post so I don't feel qualified to answer anyone yet. However I do have another question I always read my kindle and i...
I take 1500mg of Keppra a day can I take 500mg in the morning and 1000 at night As tired in the day ?
Honeybee98a month ago
Just want to try improve tiredness
PIP assessment good or bad?
RandomMishapsa month ago
Hi, my first post on here. I just had my PIP assessment and it went on for about an hour, the assessor was a nice guy and I gave him a hospi...
Looking after your body - looking after your mind•
EpilepsyAction1a month ago
Wellbeing is about feeling good and functioning well. When you have epilepsy, looking after your wellbeing can help you to have as few seizu...
1 Reply2 Likes
I wanna give up
upintheskyea month agoPOPULAR
I’ve had enough of suffering with epilepsy I feel so alone. I barely go out and if I do I have panic attacks incase I have one- I’m 25 with ...
It may feel too early to be thinking about Christmas, but it’s coming round soon.
To help you get organised early, take a look at the ...
BlmnHey I am new this community can any help how to share or write mine experiences Hi to everybody may God grace and give healthy life
Blmn2 months ago
Hey I am new this community can any help how to share or write mine experiences
Patient who wants to share or gain people experience or want to share my own. Epilepsy occur due to lack of sleep, tension or imprpr medi
Having epilepsy twice in month minor attacks going fycompa 6mg, tegritol 400mg, frisium 10mg,lacosam 200mg since birth having this problem...
Epilepsy strikes again
paulcannon122 months ago
I was in hospital for 2 months I was having clusters lasting up to 6 hours every day jerks up my arms feeling like my arm was electric shock...
matthew29092 months ago
Hey how is everyone I’m Matthew I’m 21 and I live in the uk I suffer with absences, tonic clonics , jerks and drop seizures is anyone around...
Celebrities supporting epilepsy.
EpilepsyAction12 months ago
Tom Hardy, Grayson Perry and over 100 celebrities are supporting epilepsy by doodling - and you could own their doodles.
To view the doodles...
Some Things that have have helped my son have less seizures.
Tova-uk2 months ago
As a mum and carer to my 38 year old son who has grand mal epilepsy and learning disabilities. I thought I would share some information. At ...
13 Replies2 Likes
RR253 months ago
Having a 6 day video telemetry eeg next week with medication reduction or withdrawl to provoke seizures. Has any1 had eeg before with med re...
Cannabis-based treatments for epilepsy in the UK
EpilepsyAction13 months ago
Cannabis-based treatments for epilepsy in the UK
Cannabis-based treatments for epilepsy have generated a lot of interest in recent years. O...
Sister tablet of Keppra
Shelly2223 months ago
Hi I have an appointment with my neuro doc next week and he's talking about putting me on a new tablet that is the sister tablet of Keppra h...
Hidden3 months ago
I am not driving due to a seizure caused from the side effects of a drug called methotrexate taken for rheumatoid arthritis
It was a one off...
GillSans4 months ago
I have some days clear of fits. Other days I have several slumps, or occasional tonic clonic fits caused by bright light, loud noise or more...
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