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Epilepsy Action

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starting lamotrogine and side evfects

Hello folk, my husband ( age 69) was recently diagnosed with epilepsy and presc...

carbamazepine- brain tumour

hello everyone. I do not have epilepsy. I’m hoping this community can give me s...
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Energy drinks

hi, my daughter 16 at the time, was diagnosed with epilepsy in October last year...
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Gelastic seizures advice

hi I’m a foster carer to a 2yr old boy who we have had since birth,who has a lot...
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A Search for Underlying Causes

Hello, How many of you have taken the journey for underlying causes via blood t...
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Covid booster vaccines planned for spring 2024

People with epilepsy will be offered a Covid booster vaccine this spring. The...

seizure control-briverictam & lamotrigine

🫤 I can’t remember what the epilepsy nurse I spoke with last week said when we ...
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Is non-alcoholic beer safe

hi, My son is 18 and has had epilepsy for 7 years, He was seizure free for a f...
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I am floored with depression.

Something I learned last year when I participated in a IV Ketamine study for Ref...
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Diagnosed at 61

I had a my first tonic clonic seizure June 23. I'd been having focal seizures f...

Epilepsy license

Hi I got my provisional license taken away from me when I was 17 it was cut up i...
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SSRI’s for Anxiety

Hi all I was just wondering if anyone has any experience of SSRI’s (Citalopram ...
Jubilee36 profile image

Epilepsy and beauty treatment contraindications

hi I was just wondering if people knew why epilepsy is a contraindication for s...
Happygolarry profile image

No Support…

I had my first seizure 4 years ago. I thought maybe it was a one off but 18 mont...

Focal seizure on face only?

Has anyone ever experienced a focal seizure on the face only? This last few mont...
RR25 profile image

Funny turn

I woke up from my sleep last night and felt very sick. I tried to get to the bat...
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breakthrough seizures

Hi, new here. I have a brain lesion & since having surgery 8 yrs ago have only ...
Benay76 profile image

New mum with epilepsy

hi everyone. I was diagnosed with epilepsy in 2006 and had treatment for a brain...
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epilepsy linked to hormone changes?

so I was diagnosed with epilepsy as a teenager after only even having 2 grand ma...

Med change

My son has been on Carbatrol for decades and has developed osteopenia from it. ...
Benmom profile image

Advice for son recently diagnosed with epilepsy

Hi I'm new to this group my 13, year old son was diagnosed with epilepsy 4 month...
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Tegrtol prolonged release 200mg

HI I have been on this carbonmazapine 400mg twice a day since 2008, for seizures...
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EU introduces valproate measures

The European Medicines Agency (EMA) has announced precautionary measures for pre...
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Confused about clobozam

Hi I’m new to the forum I’ve had epilepsy for 10 years, for the first couple o...
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Epilepsy Actions Drugwatch webpage

Keep up to date with the latest info on epilepsy medicine shortages and changes ...

Epilepsy Action certified by Helplines Partnership

The Epilepsy Action helpline has been certified by the Helplines Partnership. T...

Levetiracetam

Alright ladies and gents, just looking for some general advice/assurance. So I h...
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Epilepsy?

Hi all, I'm looking for some clarity please. I'm waiting to see a neurologist 25...
Louie24 profile image

Covid 19 vaccine UK

Hi there, I’d welcome any information you have on eligibility for Covid 19 vacc...
GillyA profile image

Diagnosing epilepsy

Is there a timeframe in which someone has to have 2 seizures for a diagnosis to ...
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