matthew29092 days ago
Hey how is everyone I’m Matthew I’m 21 and I live in the uk I suffer with absences, tonic clonics , jerks and drop seizures is anyone around...
Celebrities supporting epilepsy.
EpilepsyAction15 days ago
Tom Hardy, Grayson Perry and over 100 celebrities are supporting epilepsy by doodling - and you could own their doodles.
To view the doodles...
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Some Things that have have helped my son have less seizures.
Tova-uk19 days ago
As a mum and carer to my 38 year old son who has grand mal epilepsy and learning disabilities. I thought I would share some information. At ...
9 Replies2 Likes
RR25a month ago
Having a 6 day video telemetry eeg next week with medication reduction or withdrawl to provoke seizures. Has any1 had eeg before with med re...
Cannabis-based treatments for epilepsy in the UK
EpilepsyAction1a month ago
Cannabis-based treatments for epilepsy in the UK
Cannabis-based treatments for epilepsy have generated a lot of interest in recent years. O...
Sister tablet of Keppra
Shelly2222 months ago
Hi I have an appointment with my neuro doc next week and he's talking about putting me on a new tablet that is the sister tablet of Keppra h...
Hidden2 months ago
I am not driving due to a seizure caused from the side effects of a drug called methotrexate taken for rheumatoid arthritis
It was a one off...
GillSans2 months ago
I have some days clear of fits. Other days I have several slumps, or occasional tonic clonic fits caused by bright light, loud noise or more...
Hi im new here
I’m soon to be 25 and I have had generalized Epliepsy since I was 14 I have been on Sandoz sodium Valproate EC200 3 a day . I’ve struggled w...
Lamictal and teeth
Adlon572 months ago
The last five years I had noticed my teeth were on a dramatic downturn, [plus I'm 62] various crowns, including a gold one [ting!] a tooth I...
Was clear 22 years but 3 Grand mals in 9 months means I’m back! 48 Years Old!
ColinBo2 months ago
I’m lucky, I get 8-12 hours warning via specific prodromal symptoms (absences, tired, confusion, dehydration, diarrhoea ) run my own office ...
I get very specific prodromal symptoms 8-12 hours before my grand Mal seizures,I’ve had 3 seizures in last 9 months after being clear for 22...
Wintersbite3 months ago
I've just got my application for a free bus pass due to being disabled and I just read the section for medically unfit to drive ( th...
2 Replies2 Likes
What are the side effects of Briviact?
Adlon573 months ago
I have JME Epilepsy for 48 years and gone through most of the epilepsy medications, I am on Vimpat 400 mg [was on this for six months and ha...
Debs30113 months ago
Hi I've been on Epillim 250mgs for Epilepsy for nearly 4 years now,I had started to try out a new medication Lamotrigine,was taking it every...
Rakshya3 months ago
I am taking sezure medition sonce from 4 years.and the attack didnot came to me since now. But i have notice that my lips are turning i...
Briviact annoying side effect!
Adlon574 months ago
I have been on 50 mg Briviact for JME epilepsy for three months, having had epilepsy for 48 years, over 400 seizures, nearly 62 years of age...
Possible nocturnal seizures?
DaisyBelle854 months ago
Hi, I've recently started experiencing what I can only describe as seizures in my sleep.
I'm a 33 year old mother of two, and It tends to hap...
RcKitty4 months ago
my eeg in a a couple days, will an eeg be enough to diagnose me with epilepsy?
ive been put on gabopontin it he mean time is this s safe and ...
3 Replies1 Like
neurologist giving me an eeg said I may have epilepsy as I been having seizures
ive been treted for depression ad anxiety now for many years ...
3 Replies2 Likes
bevjane744 months ago
Hi, it's my first.time posting in this forum as I've been researching all the information i can myself to try and get a clearer picture and ...
lovedogs515114 months ago
Hi there, is their anyone on here that doesn't drive? I'm beyond frustrated with not being able to get around. How do you all get around if ...
4 Replies1 Like
Liver tests with AEDs?
Jodie09055 months ago
I’ve been living with epilepsy for around 18 years and have been taking Keppra and Clobazam for around 16 (1000mg and 10mg respectively, ...
alanformosa36 months ago
For the first time I suffered 2 epileptic seizures around 3 weeks ago, one on the bus on my way home and another one during the nig...
Keppra - positive/negative experiences?
bryyony6 months ago
I am currently taking 125mg x 2 per day Lamictal (Lamotrigine), in the process of increasing my dose due to recent seizures, but the medicat...
Helennz336 months ago
Hello, our five week old baby has been having seizures, had MRI scan came back good. We have no clue to what is causing it, anyone else expe...
1 Reply1 Like
Suffering from cerebral epilepsy
kgopi09286 months ago
Hi 35 m, just started with mild epilepsy, still analysing reports with doctor
lovedogs515116 months ago
Hi there! I've had 3 seizures in 2 months. That's unusual cause my tegretol xr usually prevents them. The one on March 1, 2018 I ended up hi...
Sometimes I Hate the Fact I Have Seizures
Oto-obong7 months ago
Seizure was a big turn around in my life. I got thrown out of both of my high school’s for seizures. The staffs said they did not know what ...
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