Posts - Epilepsy Action | HealthUnlocked

Epilepsy Action

3,102 members•1,180 posts

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Has anyone ever experienced this before?

I cant remember what it was called it was a strange thing beginning with T I will get my GP to write it down for me when I next see her in a few days time that...

I cant remember what it was called it was a strange thing beginning with T I wil...

•3 days ago

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Health unlocked

This site is great and very interesting

This site is great and very interesting

•7 days ago

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Is there examples of when a person has a seizure, they might burst out swearing, quite loud, quite out of character for that person?

I have JME epilepsy, had it for over fifty years, but have heard that a person is badly upset by my swearing at them, they being ignorant of my usual self and...

I have JME epilepsy, had it for over fifty years, but have heard that a person i...

•9 days ago

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Driving again after 1 yr seizure free

Hi everyone this is my first post so go easy on me! Last December I was diagnosed with Temporal Lobe Epilepsy after having several episodes of memory loss...

Hi everyone this is my first post so go easy on me! Last December I was diagnos...

•9 days ago

Epilepsy & sectioned ?

Am fortunate, in years experiencing Focal Impaired seizures, I was aware immediately that any seizure I have, is incredibly precise in timing I.e. Without...

Am fortunate, in years experiencing Focal Impaired seizures, I was aware immedia...

•10 days ago

life with epilepsy

I have had epilepsy all my life and I started with just absences and tonic-clonic's but it has now progressed as i have grown up into myoclonic and focal as...

I have had epilepsy all my life and I started with just absences and tonic-clon...

•10 days ago

My Story

I was diagnosed with epilepsy at 6 months old and have lived with it all my life! I have been struggling to cope with life as I also have learning...

I was diagnosed with epilepsy at 6 months old and have lived with it all my life...

•14 days ago

focal seizures

Hi, I had encephalitis in 1975, I have had epilepsy since then although my seizures are controlled. I last had a full seizure in 1997. I am on Lamotrigine and...

Hi, I had encephalitis in 1975, I have had epilepsy since then although my seizu...

•1 month ago

Review appointment delays. Why are we accepting it?

I am likely posting this out of frustration. I had a telephone review appointment with my consultant recently. It should have been in November last year but...

I am likely posting this out of frustration. I had a telephone review appointmen...

•2 months ago

Living alone options

Luckily with the horrible housing market I've had an excuse to not live alone. But hopefully in the next couple years my son and I will be getting a house....

Luckily with the horrible housing market I've had an excuse to not live alone. B...

•2 months ago

Focal epilepsy/ tonic

Hi juat looking if someone can help. I have a child who has autism with a learning disability, who had a full tonic clonic seziure lasting 10 mins in 2017....

Hi juat looking if someone can help. I have a child who has autism with a learni...

•2 months ago

Sweats at night

Hiya guys does anyone get really bad sweats when trying to sleep

Hiya guys does anyone get really bad sweats when trying to sleep

•2 months ago

Has anyone used Sleep Well sachets

Hi everyone Just a quick question. My sleep has been dreadful for many years. A few years ago I was referred to Endocrinology & found that I had been under...

Hi everyone Just a quick question. My sleep has been dreadful for many years. ...

•3 months ago

Medication decision

Hello My partner was diagnosed epileptic after a seizure and some fainting episodes last year. He has only ever had one seizure. After tests and appointments...

Hello My partner was diagnosed epileptic after a seizure and some fainting epis...

•3 months ago

Home Adaptations

My brother suffers from steadily worsening seizures, which unfortunately are not controlled. The council have agreed to replace his bath with a shower to help...

My brother suffers from steadily worsening seizures, which unfortunately are not...

•3 months ago

Dental implants NHS Epilepsy

Hi I'm 53 and have been Epileptic for approximately 18 years. During this time many of my teeth have been considerably damaged due to grinding my jaw. Having...

Hi I'm 53 and have been Epileptic for approximately 18 years. During this time ...

•3 months ago

I have a broken skull, from a double seizure, in Jan. 2018, I suffer from severe equilibrium, dizziness, when getting up, sitting down!

Surely there must be someone else who has broken their skull, and suffers similar symptoms? How do you cope with it? I have epilepsy but maybe someone has...

Surely there must be someone else who has broken their skull, and suffers simila...

•3 months ago

Tiny folding implants improve epilepsy surgery and diagnosis

Tiny folding implants could make epilepsy surgery safer and improve diagnosis, say UK researchers....

Tiny folding implants could make epilepsy surgery safer and improve diagnosis, s...

EpilepsyAction1

Partner•3 months ago

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16 year old daughter recently diagnosed with frontal lobe epilepsy and started meds

hi, so my 16 year old daughter has recently been diagnosed with frontal lobe epilepsy and started Lamotrigine 2 weeks ago. Her epilepsy team advised her to...

hi, so my 16 year old daughter has recently been diagnosed with frontal lobe epi...

•3 months ago

Single parents with kids with epilepsy

Hello there, I'm a single mom with 8 years old boy 👦 with epilepsy and looking for another mom like me..to chat with, to shere,to support each other 😊

Hello there, I'm a single mom with 8 years old boy 👦 with epilepsy and looking ...

TsvetelinaFlower

•4 months ago

seizure monitor for child

our 7 year old has possible epilepsy-the process of diagnosis is proving to be lengthy but that’s looking like the most likely outcome. The paediatrician has...

our 7 year old has possible epilepsy-the process of diagnosis is proving to be l...

dandelioncupcake

•4 months ago

Inquiring for my husband

My husband is 78 and in Nov. 2022 he had 3 horrible spells of nausea following some dizziness first thing upon waking about 10 days apart and some lesser ones...

My husband is 78 and in Nov. 2022 he had 3 horrible spells of nausea following s...

•4 months ago

Epilepsy Action launches TV first aid campaign

https://www.epilepsy.org.uk/epilepsy-action-launches-tv-first-aid-campaign

https://www.epilepsy.org.uk/epilepsy-action-launches-tv-first-aid-campaign

EpilepsyAction1

Partner•5 months ago

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Severe lack of motivation

having developed Trigeminal Neuralgia in 2023 from the impact of my Acoustic Neuroma, I started Carbamazepine in Dec 2023. Although this has reduced headaches...

having developed Trigeminal Neuralgia in 2023 from the impact of my Acoustic Neu...

•5 months ago

When they say anti seizure medication 'prevent seizures from happening' what EXACTLY does that mean?

I haven't had a tonic clonic seizure since 2022. I have still been having focal seizures which are much more under control since the introduction of...

I haven't had a tonic clonic seizure since 2022. I have still been having focal ...

•5 months ago

new to all this and scares

hi my 19 year old daughter had her first and second seizure 4 days ago. Waiting for a neurology appointment at the moment. Am trying not to panic but tonight...

hi my 19 year old daughter had her first and second seizure 4 days ago. Waiting ...

•5 months ago

Topiramate use in pregnancy: MHRA safety guidelines tightened

https://www.epilepsy.org.uk/topiramate-use-in-pregnancy-mhra-safety-guidelines-tightened Topiramate should not be prescribed to women of childbearing...

https://www.epilepsy.org.uk/topiramate-use-in-pregnancy-mhra-safety-guidelines-t...

EpilepsyAction1

Partner•5 months ago

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Cat Deeley apologises after Epilepsy Action supporters call out “thoughtless” comment

This Morning presenter Cat Deeley has apologised on the show today, after being called out by charities and people with epilepsy for “careless use of language”...

This Morning presenter Cat Deeley has apologised on the show today, after being ...

EpilepsyAction1

Partner•5 months ago

UK driving licence reapplication after fit

Hello All.I suffer from severe coronary heart disease and hypertension. After a change in my medication in Jan this year I had a fit and blacked out. I have...

Hello All.I suffer from severe coronary heart disease and hypertension. After a ...

GrumpyYorkshireman

•5 months ago

Patient Initiated Follow Up

Hi just wondering if anyone has been given this. My Neurologist said that if I didn’t contact them during the next 12 months I would be discharged. I’m...

Hi just wondering if anyone has been given this. My Neurologist said that if I d...

•5 months ago

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