Posts - Epilepsy Action | HealthUnlocked

Epilepsy Action

3,023 members • 1,130 posts

All posts for May 2021

Bringing Awareness

Hi I’d like to know if anyone knows youth or children who suffer from Epilepsy & need sort of a day of just raising awareness. I was diagnosed with Epilepsy at...

Hi I’d like to know if anyone knows youth or children who suffer from Epilepsy &...

WarriorEp

•3 years ago

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tuberous sclerosis

Hi my epilepsy is caused by tuberous sclerosis (TSC). Just wondering if anyone else has it? Or knows anyone associated with it? Here is a link:...

Hi my epilepsy is caused by tuberous sclerosis (TSC). Just wondering if anyone e...

Alwayslovecats

•3 years ago

3 Replies

Owning your epilepsy!

Hi my name is Amelia, I'm new to this forum I have lived with my epilepsy for almost 25 fudging years now and I hate it! I try to not let it get me down but it...

Hi my name is Amelia, I'm new to this forum I have lived with my epilepsy for al...

Alwayslovecats

•3 years ago

6 Replies

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Reading books in full

Does anyone else have trouble reading books? Lots of friends and programmes on tv talk about how good they find certain ones. I'm unable to read fiction...

Does anyone else have trouble reading books? Lots of friends and programmes on t...

happy48

•3 years ago

3 Replies

L-Theanine and epilepsy

Hello there, I would like to ask if you can help me in interpreting some results of a research and also in sharing some experience. I have temporal lobe...

Hello there, I would like to ask if you can help me in interpreting some result...

a820e13f

•3 years ago

4 Replies

Infrequent seizures

Is there anyone here that has had infrequent seizures? I’ve had two, 13 years apart. Just would like to share experiences. Thanks

Is there anyone here that has had infrequent seizures? I’ve had two, 13 years ap...

Mutley45

•3 years ago

2 Replies

Ever had one of those days!

I have had schwannamatosis since aged 14, [I am aged 64] had three operations for it, various misdiagnosis's later, including NF2 Neurofibromastosis, in all...

I have had schwannamatosis since aged 14, [I am aged 64] had three operations fo...

Adlon57

•3 years ago

2 Replies

Medication help

I was diagnosed with Epilepsy in November 2020 as the age of 45. I am currently taking lamotrigine, increasing by 25mg every 2 week to the ‘highest dose I can...

I was diagnosed with Epilepsy in November 2020 as the age of 45. I am currently ...

Mutley45

•3 years ago

2 Replies

Infrequent seizures

Hi Does anyone have experience of infrequent seizures? Mine are 6 years apart and I’ve had a total of 4? If so what treatment routes were you given?

Hi Does anyone have experience of infrequent seizures? Mine are 6 years apart a...

Catwoman777

•3 years ago

2 Replies

Infrequent seizures

Hi I have a grand mal seizure once every 6 years. I’ve had 4 in total. I’ve seen a new neurologist after my recent seizure who wants me to start lamotrigine....

Hi I have a grand mal seizure once every 6 years. I’ve had 4 in total. I’ve seen...

Catwoman777

•3 years ago

11 Replies

Are my daughters symptoms normal after first being diagnosed with epilepsy? Constant headache and dizziness.

Hi completely new here so don’t know if I’m in the right place? My daughter had her first seizure 23 days ago she’s 19. After various tests they think it’s...

Hi completely new here so don’t know if I’m in the right place? My daughter had ...

Keldan78

•3 years ago

10 Replies

Memory

Hi all, I’m 32 and been on keppra for 12 years now. My short term memory is so rubbish? Is this the epilepsy or the meds? Are we a higher risk for dementia?...

Hi all, I’m 32 and been on keppra for 12 years now. My short term memory is so r...

Pinky885

•3 years ago

10 Replies

Is kepra really for Epilepsy has my doctor say different.

Hi all I am new to this, but I had a stroke 6 years ago and I am still waiting for them to say if I have Epilepsy as I take 3000mg of kepra a day. As I can...

Hi all I am new to this, but I had a stroke 6 years ago and I am still waiting f...

panic55

•3 years ago

12 Replies

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Posts - Epilepsy Action | HealthUnlocked

Epilepsy Action

All posts for May 2021

Bringing Awareness

tuberous sclerosis

Owning your epilepsy!

Reading books in full

L-Theanine and epilepsy

Infrequent seizures

Ever had one of those days!

Medication help

Infrequent seizures

Infrequent seizures

Are my daughters symptoms normal after first being diagnosed with epilepsy? Constant headache and dizziness.

Memory

Is kepra really for Epilepsy has my doctor say different.

Search posts

Pinned Posts

Latest poll

Why Did you join this community?

Topics

Archive