Epilepsy Action | HealthUnlocked

Epilepsy Action

3,136 members•1,203 posts

Any tips

Our son is 41 lives alone and is frightened of cooking and having a seizure and the risk of fire On Monday he had a seizure whilst out and was taken to...

Our son is 41 lives alone and is frightened of cooking and having a seizure and ...

Cat33

•8 days ago

13 Replies

CBD any experiences

Hi just read an article in telegraph about medical cannabis use and parents who are growing their own and have had good results. Just wondering what has been...

Hi just read an article in telegraph about medical cannabis use and parents who ...

rankin1st

•21 hours ago

3 Replies

epilepsy and work

hi. My son started having sleep seizures around 10 years ago when he was 14. He could go 6-12 months between seizures. The last couple years the time between...

hi. My son started having sleep seizures around 10 years ago when he was 14. He...

Toddyboy12

•17 days ago

10 Replies

Temporal Lobe Epilepsy

I’m interested in finding others coping with Temporal Lobe Epilepsy…I received my diagnosis in the late 1990s and until fairly recently managed DeJa Vu...

I’m interested in finding others coping with Temporal Lobe Epilepsy…I received m...

wobblybee

•1 month ago

6 Replies

I consider this to be a "MUST SEE" video for anyone who is receiving medical treatment for epilepsy!

https://youtu.be/rWSkwNfG2bc?si=SnR9x2MM_SH48IK7 I am currently having issues with switching medications and during my research...

https://youtu.be/rWSkwNfG2bc?si=SnR9x2MM_SH48IK7 I...

Mybraveface

•15 days ago

4 Replies

Newly diagnosed w/ JME

Hi everyone, First post on here and a (relatively) recent diagnosis. It's been just over a year since I've been diagnosed with epilepsy at the age of 21 -...

Hi everyone, First post on here and a (relatively) recent diagnosis. It's been ...

AName123

•1 month ago

6 Replies

3 Year old grandaughter, so worried about her.

Dear All, my 3 year old grandaughter has been diagnosed with epilepsy since she was 6 months old. They previously thought it was febrile convulsions. She...

Dear All, my 3 year old grandaughter has been diagnosed with epilepsy since sh...

saffron007

•11 days ago

3 Replies

hello

Brighton (East Sussex)

sab1980

•2 days ago

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Must be my time of life, dreams of past times, usually bad ones coming back? I've had J.M.Epilepsy since 14 now aged 68, "nightmares"?

I'm in reality terminally ill, no specific time, brain damage/broken skull and untreatable rib cage structure caused by effects of epileptic seizures but now...

I'm in reality terminally ill, no specific time, brain damage/broken skull and ...

Adlon57

•1 month ago

3 Replies

Fycompa

I have recently Come off this med and Vimpat. I have temporal lobe scelorosis. I am currently on cenobamate 250mg and nyzol 200mg and noiafren.Side effects...

I have recently Come off this med and Vimpat. I have temporal lobe scelorosis. I...

Tenerife1234

•18 days ago

2 Replies

Embrace Watch

I have had Epilepsy for 10 years now! I am about to buy an Embrace watch and I was wondering what people do when the watch is on the charger! Do you buy...

I have had Epilepsy for 10 years now! I am about to buy an Embrace watch and I w...

Leah-02

•9 days ago

1 Reply

Support for you

It's great that members here share their thoughts and experiences. But if you're looking for more support, please call our freephone helpline on 0808 800...

It's great that members here share their thoughts and experiences. But if you're...

EpilepsyAction-DT

Epilepsy Action•1 month ago

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