Epilepsy Action | HealthUnlocked

Epilepsy Action

3,049 members • 1,152 posts

new to all this and scares

hi my 19 year old daughter had her first and second seizure 4 days ago. Waiting for a neurology appointment at the moment. Am trying not to panic but tonight...

hi my 19 year old daughter had her first and second seizure 4 days ago. Waiting ...

•5 days ago

working with epilepsy

Hello, I am just looking for a little bit of advice. I am currently working full time almost 40 hours a week for a care home. I have told my employer about...

Hello, I am just looking for a little bit of advice. I am currently working full...

•22 days ago

UK driving licence reapplication after fit

Hello All.I suffer from severe coronary heart disease and hypertension. After a change in my medication in Jan this year I had a fit and blacked out. I have...

Hello All.I suffer from severe coronary heart disease and hypertension. After a ...

GrumpyYorkshireman

•15 days ago

When they say anti seizure medication 'prevent seizures from happening' what EXACTLY does that mean?

I haven't had a tonic clonic seizure since 2022. I have still been having focal seizures which are much more under control since the introduction of...

I haven't had a tonic clonic seizure since 2022. I have still been having focal ...

•3 days ago

Patient Initiated Follow Up

Hi just wondering if anyone has been given this. My Neurologist said that if I didn’t contact them during the next 12 months I would be discharged. I’m...

Hi just wondering if anyone has been given this. My Neurologist said that if I d...

•16 days ago

Breakthrough Seizure After 10yrs - Shocked and Uncertain - What do I do?

Hey everyone. So I'll cut to the chase - I grew up with generalized epilepsy in my teens. Had a mix of focal and tonic clonics throughout the ages of 11-18....

Hey everyone. So I'll cut to the chase - I grew up with generalized epilepsy in ...

•18 days ago

Cat Deeley apologises after Epilepsy Action supporters call out “thoughtless” comment

This Morning presenter Cat Deeley has apologised on the show today, after being called out by charities and people with epilepsy for “careless use of language”...

This Morning presenter Cat Deeley has apologised on the show today, after being ...

EpilepsyAction1

Partner•13 days ago

Topiramate use in pregnancy: MHRA safety guidelines tightened

https://www.epilepsy.org.uk/topiramate-use-in-pregnancy-mhra-safety-guidelines-tightened Topiramate should not be prescribed to women of childbearing...

https://www.epilepsy.org.uk/topiramate-use-in-pregnancy-mhra-safety-guidelines-t...

EpilepsyAction1

Partner•8 days ago

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Tegretol (carbamazapine) supply?

I wonder if anyone else has the same problem with their supply of Tegretol? My doctors pharmacy does not seem able to get it for me and I have had to go miles...

I wonder if anyone else has the same problem with their supply of Tegretol? My ...

•16 days ago

Living with someone Bipolar

Hi there Ive had epilepsy my whole life. A person Im with that has bipolar sometimes makes my seizures worse. She gets mantic when things happen like family...

Hi there Ive had epilepsy my whole life. A person Im with that has bipolar somet...

•17 days ago

concerned my daughters heart is stoping during the night

Daughter has had 4 focal to bilateral tonic clinic seizures since September 2023, these have occurred when either sleep deprived, during sleep or shortly after...

Daughter has had 4 focal to bilateral tonic clinic seizures since September 2023...

•25 days ago

Desitin Pharma lamotrigine recall

10 June 2024 The MHRA have made us aware of a recall issued for lamotrigine 10mg/ml oral suspension made by Desitin Pharma. This recall is a precautionary...

10 June 2024 The MHRA have made us aware of a recall issued for lamotrigine 10...

EpilepsyAction1

Partner•22 days ago

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Talk and Support Groups

Epilepsy Action -our online Talk and support groups are a great way of connecting with others who have experiences of epilepsy, in a safe and relaxed...

Epilepsy Action -our online Talk and support groups are a great way of connectin...

EpilepsyAction1

Partner•29 days ago

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Guidelines

Hello all It's fantastic to see members of the community sharing experiences with one another. Our community has some important guidelines to help keep this...

Hello all It's fantastic to see members of the community sharing experiences wi...

EpilepsyAction1

Partner•1 month ago

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Pinned Posts

Join Epilepsy Action membership today. “Being an Epilepsy Ac...

Talk and Support Groups

About us

Epilepsy Action is a peer support community run by the Epilepsy Action charity. We are a community of committe...

Read more about Epilepsy Action

http://www.epilepsy.org.uk/

Freephone 0808 800 5050

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