CBD any experiences

[rankin1st]

Hi just read an article in telegraph about medical cannabis use and parents who are growing their own and have had good results. Just wondering what has been peoples experience? Have refractory epilepsy and at the end for med options.

[sloan44]

Hi. I have TLE Epilepsy and use medical cannabis, under authorization of my Neurologists, here in the states. It has helped, when used with my daily medication. A combination of meds has helped with some patients with refractory epilepsy. I know medical cannabis can now be prescribed by specialist doctors in the UK, so you may want to ask your neurologist regarding it. Growing your own is cheaper but remember, the blend of cannabis, and quality, counts. With me, Sativa can bring on seizures while the right blend of Indica is perfect. To walk into a dispensary and purchase a blend, known to help, is a godsend.

Out out of Curiosity, I looked up dispensaries in the UK. I see you have Curaleaf in Sunderland, England. That's where I buy mine from, a Curaleaf down the street from me 😊

Let me know how things go, wish you the best.

[rankin1st in reply to sloan44]

That's really helpful thank you! Has it stopped or limited your seizures? Have an appointment next month with neurology so will chat it through 🙂

[sloan44 in reply to rankin1st]

You're welcome 😊

It has limited them. Great! Hope all go's well with your appointment and you get authorized for use of medical marijuana. If you haven't smoked it yet you get the fastest reaction from vape or flower, but they do have it in edibles as well. I got my Florida medical marijuana card in 2001, been very helpful. Works fast and there when needed..always a vape near me. Thumbs up for you 👍 😊

[car67]

Hi

I was wandering how you got on with the CBD oil? I just purchased some following a conversation with my neurologist, after 17 or 18 meds change and seizure activity worse I was at the end of my tether , tbh I can’t remember how many meds changes I have had now but not helping. I have Temporal lobe epilepsy , cavernoma on left TLlobe and refractory epilepsy. I just started the CBD , as I have no other option, I have been one day seizure free, I have not been one day free in a year, so it was massive break through. First day taking the CBD I was zoned out, felt dreadful, had two bad seizures, no sleep, then day 2 had no seizure, am keeping log of it, thinking of laser surgery, or the pacemaker on the brain if all else fails , but have to have all the tests again. We can’t have it prescribed in uk unless you fall under 3 categories, and I don’t.

[rankin1st in reply to car67]

Hi Car67So sorry to hear how difficult it has been with all the med changes and seizures the last year 😕 that must be devastating for you. I do trust and pray that the CBD will help stabilise things for you and bring them under control. Also looked at surgery or vns but opted not to in the end, but glad it's being explored with you! Re CBD didn't try it in the end as like you it's refractory but managed to get it under a bit more control with the briviact, kepra and cenobamate concoction but it wacks me out so sleep more than I'd like and will probably be banging my liver but to have the reduction in seizures is better. I do hope that the CBD works for you going forward 🙏 btw how much is it and do you use curaleaf?

[car67]

I’ve just reduced briv, I’m on Cenobamate,topiremate, locasomide,lorazepam , yes I’m not keen on surgery at all. They been pushing it for years, I said I will go in hospital again to do the tests but doesn’t mean i am agreeing to any surgery etc. The CBD oil cost £25 for 300mg, no I have to purchase private. Neurologist won’t be involved. I’m like a zombie most of the day tbh , real struggle, just gave my job recently due to the amount of seizures I was having, have to wait until they undercontrol again. Like you , sleep a lot, I’m just fed up tbh, last resort CBD , memory horrendous, balance horrendous, confused, slurring like I’m drunk ,Cavernoma seems to have moved slightly, neurologist seems to think it’s oozing more blood, all in all a nightmare ! Never mind, there’s a lot more worse happening in the world , thank you so much for replying, I very much appreciated it. I hope you feel a lot better too 😀 I am crossing everything for the CBD oil🤞🤞🤞🤞