Epilepsy and menopause

[the_swimmer]

Does anyone have any experience of their epilepsy changing at the, possible/probable, on set on menopause?

[EpilepsyAction1 Partner Epilepsy Action]

Hi

I hope you hear from others on this platform, as sharing information and experiences can be a good idea.

Some women notice a change in your seizure pattern around the time of the menopause. But it can affect people differently – some women have more seizures, some have fewer. We have some information on our website about epilepsy and menopause that you may find helpful: epilepsy.org.uk/living/epilepsy-and-wellbeing/the-menopause-and-hrt

Can I also just check you also know about our other services?

We have our Talk and Support groups (epilepsy.org.uk/support-for-you/talk-and-support-virtual-groups) and befriending service (epilepsy.org.uk/support-for-you/epilepsy-befriending).

Some of our talk and support groups are for women only and a great place to chat to others about their experiences of hormones affecting their epilepsy.

We also have a membership offer which is designed to help people stay up to date with all the latest epilepsy news, views and research: epilepsy.org.uk/involved/join

Finally, if you think it may be helpful to speak to one of our advisers in more detail you can contact us by live chat or the Epilepsy Action Helpline freephone 0808 800 5050. Our helpline is open Monday to Friday 8.30am until 5.00pm and Saturday 10.00am until 4.00pm: epilepsy.org.uk/support-for-you/the-epilepsy-action-helpline

Regards

Jess

Epilepsy Action Helpline Team

[Slof]

Hi, I noticed an increase in my seizures coinciding with menopause and a friend who is a similar age (and who had been seizure free and had no need for medication) had a couple of massive seizures in her mid 40s. My personal view is that there is a link between the two.

[happy48 in reply to Slof]

I had seizures regularly every month until menopause when they became irregular and worse. Certain things would trigger them which I tried to avoid.