Link? Schwannomatosis [Neurofibromatosis Type 3] to Epilepsy - Juvenile Myoclonic Epilepsy ;I believe a link BUT due to rarity of condition?

[Adlon57]

I am aged 68, in 1970 when I was swimming in my school swimming pool, I 'knocked' myself out hitting the edge of the pool. From then on I had what is termed Juvenile Myoclonic Epilepsy, I have had over 400 grand mal seizures, an aura before the 'event'. I remembered there was a hard lump like a small knot on my left lower forearm, about 2mm in width, uncomfortable, and removed with local surgery. [I was born left handed, the usual treatment of these days, smacked across the left hand until I 'used' the right hand "the normal hand"] Subsequently until 1993 I fell under the influence of drink landing against the wall and the floor, later in 1995 I complained of tremendous pain in my back, x-rays of mine spine revealed nothing, not until 1997 when I had an MRI in Musgrave Hospital Belfast, I live in Lisburn some eight miles south west, in Northern Ireland. I was operated on the benign tumour removed in Royal Victoria Hospital, Belfast, although only partially removed about the size of a walnut on my spinal cord, even today indirectly my right leg. I believe various seizures/ falling lead to benign tumours/schwannomas actually on my nerve canals on my arms, hands, legs and trunk of my body, underneath the surface of my skin occasionally leading to the coffee coloured marks near where the schwannoma had developed as with Neurofibromatosis type 1 and 2. The notes for this operation in December 1997 were lost. I had been diagnosed 'officially' in 2006 as having Neurofibromatosis type 2. In March 2008 I had a minor stroke, I was living by myself, as I have done since 2002, when I woke I had a tremendous pain in my left elbow, my "doctor" for the next four years, I did not realise about the loss of the operation notes in 1997, subsequent "pain killers" made my system High Pain Threshold to them, my brain's pain signals, rather mixed up🙄Change to a different GP soon revealed the source of my pain and operated upon in three months, in 2012, a schwannoma about the size of a baked bean. I had two AZ vaccines in 2021 where I had severe reactions in April 2021, on the day after two schwannomas started too bleed on my left forearm, I lost the use of my muscle/tendon 90% at this time eventually growing back to some sort of normality although left hand/arm has now essential tremors to it [lower left forearm has had at least five schwannomas on this area.] I have a coffee mark near to the mark of the 'bleeding schwannomas' and a larger coffee mark where the actual injection took place. What I am rambling on about is that pain/seizures are the direct cause of these schwannomas! These schwannomas originally were hard benign tumours on my body's nerve canal's when aged sixty these "lumps" gelatinise on my nerve canals, still there but to a smaller size! They can form on internal organs as in my pancreas in September 2019, not as Pancreatitis as the hospital wrongly diagnosed, or two schwannomas on my prostate gland which were wrongly diagnosed in 2022, the side effects of radiation and vaccines are life changing! I was finally diagnosed and have a personal specialist from 2017 as having Schwannomatosis or NF3 BUT I have absolutely to swap symptoms about, in all my life I HAVE NEVER ACTUALLY MET ANYBODY WITH THE SAME CONDITION!