I consider this to be a "MUST SEE" video f... - Epilepsy Action

Epilepsy Action

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I consider this to be a "MUST SEE" video for anyone who is receiving medical treatment for epilepsy!

Mybraveface profile image
4 Replies

youtu.be/rWSkwNfG2bc?si=SnR... I am currently having issues with switching medications and during my research found this awesome video on YouTube which explains clearly how different medications work for the many different types of seizures! Best wishes to all for a happy and healthy 2025 !

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Mybraveface profile image
Mybraveface
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CanMom profile image
CanMom

Thank you so much for sharing this video. Very, very informative and easy to follow along, even as a layperson.

Mybraveface profile image
Mybraveface in reply toCanMom

Exactly my thoughts. I was totally gobsmacked when seeing this and felt that I had to share this with others going through our search for an understanding of just what is going on in our brain when given medical treatment for epilepsy!

CanMom profile image
CanMom in reply toMybraveface

I am literally in the hospital with my 10yo daughter at this moment after another 24hr period of cluster seizures, emergency meds, and now loading doses of Keppra to add to her already 800mg of carbamazepine. If only all patients had the opportunity to receive the level of information provided in this video from their care providers off of the hop so much heartache, frustration, and confusion would be resolved.

As a warning to others embarking on this journey with their children; an inaccurate or unspecific diagnosis can lead to improper medicine script, which can even worsen seizure activity. My child was diagnosed with focal epilepsy, and since being on carbamazepine her once a week seizures have escalated to clusters of 7 to 10 tonic-clonic ... I have since learned that carbamazepine has been known to worsen generalized seizure activity. I'm not looking forward to the medicine change ... but it can't be worse than the one she's on.

Mybraveface profile image
Mybraveface

I learned so much from that video after having epilepsy since 1989. Now you will understand why I shared it..... I wish you luck with your daughter's health 🙏 ❤️

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