Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

72,734 members•53,172 posts

All posts for April 2024

Volunteer at Pride 2024

Could you volunteer with us at Pride events for 2024?⁠ ln this exciting new role, you will host an information stand at your local Pride event, raising...

Could you volunteer with us at Pride events for 2024?⁠ ln this exciting new rol...

endo_supportmanager

Partner•7 months ago

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Volunteer at Grampian Pride 2024

Could you volunteer with us at Pride events for 2024?⁠ ln this exciting new role, you will host an information stand at your local Pride event, raising...

Could you volunteer with us at Pride events for 2024?⁠ ln this exciting new rol...

endo_supportmanager

Partner•7 months ago

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Thank you for all the support and bye for now

Warning this is very long and contains some sensitive information that might be triggering for some. Hello lovely people, hope you are all...

Warning this is very long and contains some sensitive information that might be ...

Poppyg16

•7 months ago

11 Replies

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Chinese Medicine

Hi guys, has anyone tried Gui Zhi Fu Ling Wan for their endometriosis? The main symptoms I'm bothered about with my endometriosis are: nausea, stomach pain,...

Hi guys, has anyone tried Gui Zhi Fu Ling Wan for their endometriosis? The ma...

Kloe1998

•7 months ago

1 Reply

Headaches and Insomnia... Am I going mad?

Hi All, I haven't posted in a while, but I feel like I'm hitting rock bottom again 🙈I was doing well on 4-weekly Prostap with add-back tibolone, so my GP...

Hi All, I haven't posted in a while, but I feel like I'm hitting rock bottom aga...

Shellbell2023

•7 months ago

2 Replies

Excision on NHS

Hi everyone. Hope you are well. Does any of you know if we have any surgeons on NHS that perform excision surgery? I don't mind if it is not in London etc. I...

Hi everyone. Hope you are well. Does any of you know if we have any surgeons on ...

Shisaya_Messi

•7 months ago

6 Replies

Cramps after but not during period

I have just had a period, the first day I had few mild cramps and the second day I had a lot of body aches in the morning but then I was fine. I’ve had a lot...

I have just had a period, the first day I had few mild cramps and the second day...

ArcticMonkeys

•7 months ago

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7 weeks post-op, urinating still a concern

Reading my operation notes, I have something called 'bilateral ureters', which I googled & it's a rare a rare urinary tract abnormality, which explains having...

Reading my operation notes, I have something called 'bilateral ureters', which I...

BlueLabrador2702

•7 months ago

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Diagnosed, anxious & waiting for gyno

Was diagnosed with Endometriosis after receiving results from Ultrasound Scan. Was informed I am showing signs of Negative Uterine Sliding sign. Something...

Was diagnosed with Endometriosis after receiving results from Ultrasound Scan. W...

Midnightbloom

•7 months ago

4 Replies

Something good

I feel like we can forget the nice things we have in life sometimes, especially when we have chronic pain and other symptoms every day. So, tell me something...

I feel like we can forget the nice things we have in life sometimes, especially ...

FrecklesandFlowers

•7 months ago

1 Reply

Side effects?

Good Afternoon, I just wanted to ask if anyone else who has been on Dienogest or is on Dienogest has had bleeding in between their menstrual cycles as well? I...

Good Afternoon, I just wanted to ask if anyone else who has been on Dienogest or...

Vee2508

•7 months ago

17 Replies

Adenomyosis, Endometriosis and Autoimmune diseases

Hi ladies, this question is just out of curiosity because I see several posts about a lot of us having a combination of Endometriosis/ Adenomyosis and...

Hi ladies, this question is just out of curiosity because I see several posts ab...

Taikaei

•7 months ago

13 Replies

Hormone Help

Hello all, it’s me again… I’m wondering if anyone can help/provide advice with the contraceptive treatment I’m currently having issue with. Previously I...

Hello all, it’s me again… I’m wondering if anyone can help/provide advice with...

Tangoandmax

•7 months ago

16 Replies

Endo Journeys

Hi everyone, I am currently writing a book for one of my last university assignments about endometriosis, and wanted to get some real stories from women...

Hi everyone, I am currently writing a book for one of my last university ass...

Humbug7

•7 months ago

23 Replies

Two weeks post surgery now

Big sigh. Two weeks post surgery now and I still can’t help feeling how different this is from my previous two. I’ve called the hospital twice regarding...

Big sigh. Two weeks post surgery now and I still can’t help feeling how differen...

endotheline

•7 months ago

4 Replies

Mirena Coil Fatigue

Hi all, just looking for some advice or if you have had similar experience. I got diagnosed with acute stage 5 endometriosis in January, and the gynocologist...

Hi all, just looking for some advice or if you have had similar experience. I go...

ChocClem53

•7 months ago

10 Replies

Consultant experience

Hello everyone, I hope you're all well as can be. I've just been to see my specialist endo consultant 12 weeks after my laparoscopy in January (he also did...

Hello everyone, I hope you're all well as can be. I've just been to see my spec...

WalkingGirl21

•7 months ago

4 Replies

Spire Cambridge hospital, no icu

I recently found out most spire hospitals don’t have icu for after surgery, including the spire Cambridge hospital which I have a booked consultation at. Has...

I recently found out most spire hospitals don’t have icu for after surgery, in...

pinkie25

•7 months ago

10 Replies

Ultrasound during period?

Heyy! I have an ultrasound booked for Thursday which my doctor referred me for urgently (4 weeks ago🙃) as she is worried I may have an ovarian cyst on the...

Heyy! I have an ultrasound booked for Thursday which my doctor referred me for...

endo_the_stigma

•7 months ago

4 Replies

First gynae appointment - please help prepare me

After being gaslit by GPs for years and many cancellations, I'm finally seeing a gynae to discuss my potential endometriosis. It's not actually my first gynae...

After being gaslit by GPs for years and many cancellations, I'm finally seeing a...

16yearsofpainsofar

•7 months ago

9 Replies

Help! is this infected? 8days post op Lap. Dr. said to take off the bandage 2 days post op. But I waited till today and i saw this.

I have no fever, no redness around the incision site just the dark red (blood) in the middle. Should I call my surgeon? or just it wait till it heals. I will...

I have no fever, no redness around the incision site just the dark red (blood) i...

endoGlena1

•7 months ago

3 Replies

Anyone tried Ryeqo?

Hello all, Im new here too… advised by my GP to try a forum for ideas and support for my Adenomyosis. I’m currently awaiting a hysterectomy. I was put on Ryeqo...

Hello all, Im new here too… advised by my GP to try a forum for ideas and suppor...

Adeno_39

•7 months ago

3 Replies

HRT stops pain increases bleeding

Hi everyone I’m on a really long waiting list for a gyno appointment to check for Endo and Ando. Had loads of tests and an ultrasound. All clear. Since...

Hi everyone I’m on a really long waiting list for a gyno appointment to check...

Citrusheights79

•7 months ago

10 Replies

Has anyone found antidepressants help with the pain?

Hi all, I'm new here. I have had painful periods since they began when I was 11. I think my endometriosis was masked for years when I went on the contraceptive...

Hi all, I'm new here. I have had painful periods since they began when I was 11....

Summerhappiness

•7 months ago

19 Replies

Any success with only one Lap surgery for DIE?

Hi ladies, hope everyone is doing as well as possible. I'm 5 weeks post op for my first lap for DIE, large cysts organs stuck together. All the good stuff....

Hi ladies, hope everyone is doing as well as possible. I'm 5 weeks post op for m...

DarkStar85

•7 months ago

4 Replies

Hysterectomy neglect

Girls l'm struggling today I don't know how tofeel or what to do, so I had a mri done 3 years ago showed extensive endometriosis organs stuck together organs...

Girls l'm struggling today I don't know how tofeel or what to do, so I had a mri...

amygrubb

•7 months ago

14 Replies

Severe flare at work

I just need to rant. Not that typing will help with the pain but I'm just in so much pain I need a distraction. I'm experiencing such an intense 'endo' flare...

I just need to rant. Not that typing will help with the pain but I'm just in so ...

MangoStickyRice

•7 months ago

2 Replies

rant Treatment Options before surgery?

Hi there, i have recently been admitted into my local hospital due to a major pain flare. After speaking with the on call Gynecology doctor, he wanted me to go...

Hi there, i have recently been admitted into my local hospital due to a major pa...

L4ndoluver

•7 months ago

4 Replies

menstruation after bilateral oophorectomy

Hi, I'm really hoping to open a big list of answers, but I'm stumped. In 2020 I had surgery and both ovaries were removed since they were necrotic. I never...

Hi, I'm really hoping to open a big list of answers, but I'm stumped. In 2020 I ...

KASSANDRA142

•7 months ago

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Relugolix

Hi ladies,I was prescribed this drug last week and was looking for some reviews/experiences from those of you who have taken this medication. I know we all...

Hi ladies,I was prescribed this drug last week and was looking for some reviews/...

Kirsty360

•7 months ago

2 Replies

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for April 2024

Volunteer at Pride 2024

Volunteer at Grampian Pride 2024

Thank you for all the support and bye for now

Chinese Medicine

Headaches and Insomnia... Am I going mad?

Excision on NHS

Cramps after but not during period

7 weeks post-op, urinating still a concern

Diagnosed, anxious & waiting for gyno

Something good

Side effects?

Adenomyosis, Endometriosis and Autoimmune diseases

Hormone Help

Endo Journeys

Two weeks post surgery now

Mirena Coil Fatigue

Consultant experience

Spire Cambridge hospital, no icu

Ultrasound during period?

First gynae appointment - please help prepare me

Help! is this infected? 8days post op Lap. Dr. said to take off the bandage 2 days post op. But I waited till today and i saw this.

Anyone tried Ryeqo?

HRT stops pain increases bleeding

Has anyone found antidepressants help with the pain?

Any success with only one Lap surgery for DIE?

Hysterectomy neglect

Severe flare at work

rant Treatment Options before surgery?

menstruation after bilateral oophorectomy

Relugolix

Search posts

Pinned Posts

Latest poll

If you were eligible to take part in a medical research trial about endometriosis, how would you like to find out about it?

Topics

Archive

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for April 2024

Volunteer at Pride 2024

Volunteer at Grampian Pride 2024

Thank you for all the support and bye for now

Chinese Medicine

Headaches and Insomnia... Am I going mad?

Excision on NHS

Cramps after but not during period

7 weeks post-op, urinating still a concern

Diagnosed, anxious & waiting for gyno

Something good

Side effects?

Adenomyosis, Endometriosis and Autoimmune diseases

Hormone Help

Endo Journeys

Two weeks post surgery now

Mirena Coil Fatigue

Consultant experience

Spire Cambridge hospital, no icu

Ultrasound during period?

First gynae appointment - please help prepare me

Help! is this infected? 8days post op Lap. Dr. said to take off the bandage 2 days post op. But I waited till today and i saw this.

Anyone tried Ryeqo?

HRT stops pain increases bleeding

Has anyone found antidepressants help with the pain?

Any success with only one Lap surgery for DIE?

Hysterectomy neglect

Severe flare at work

*rant* Treatment Options before surgery?

menstruation after bilateral oophorectomy

Relugolix

Search posts

Pinned Posts

Latest poll

If you were eligible to take part in a medical research trial about endometriosis, how would you like to find out about it?

Topics

Archive

rant Treatment Options before surgery?