Girls l'm struggling today I don't know how tofeel or what to do, so I had a mri done 3 years
ago showed extensive endometriosis organs
stuck together organs covered inside and out
and 7 cysts on one ovarie. Got told my only
option was a hysterectomy i was gutted I
wanted another baby but i did what I thought
was right, had my hysterectomy in July 2022 after it
I got told the mri was wrong and all my
organs were fine no live endo only places
they found it was pouch of douglas and that
was scarring. Pathology even confirmed no
evidence of endo on any of my cervix womb
tubes so ie could of had a baby. I'm angry
they performed a hysterectomy knowing that
things were fine inside should I be angry
upset annoyed? I honestly don't know what to
I'm really struggling with my mental health and i feel im not coping very well still, I don't know how to feel I know it's been nearly 2 years but it still really upsets me. Thanks xx
Written by
amygrubb
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Hi there sadly I've heard of this happening a lot or they say people have cancer. There are reasons that are mot great, they offered me a hysterectomy but i refused as I'm a carer and scared of anything medical. I'm so sorry to that you're in this situation. Sending you a big hug too, please feel free to ask anything or just have a rant xx
Thankyou so much for replying it really means alot I'm finding things really hard these days don't feel like me I once had a job and was volunteering working with kids which I loved now I feel like who am I besides doctors and hospital appointments my daughter suffers with health anxiety due to her own health problems and scares so I'm trying to be strong but honestly I'm scared and angry. How are you now? Thanks Amy xx
Hi, sorry to hear this. Did they explain why they went ahead with the operation? Was there another reason they needed to perform the hysterectomy - eg pain etc? Make a list of questions, get your records and you could contact the hospital complaints team?
They said the hysterectomy was because of the mri and when they went in and seen hardly any they thought the best thing after 12 surgeries was to take it all away unfortunately the surgeons that did my operation no longer can get hold of them one has retired and the other one moved to Canada not long after my hysterectomy when I confronted one of them he had his head down throughout the whole appointment and didn't know what to say to me I started crying and he got up and said I have to leave, this has broken me I lost my job my volunteering working with kids and me as a person I'm angry scared and even now its hospital appointments doctors appointments and not knowing again. I really appreciate you replying to me it really means the world to me it makes all this a little bit easier. I hope your ok and in a good place xx
I'm so sorry to hear this. I just want to validate your emotions here, as this is such a traumatic event. You have every right to feel angry, upset, numb - it's such a shocking and awful thing to happen. Have they offered you any counselling or other after care? They should be supporting you with your mental health. If you feel up to it, it may be worth contacting PALS if you are in the UK, as they can help you navigate next steps and advocate for you if you decide to make a complaint. Sending you love x
Thankyou for replying it truly means alot and makes this a tiny bit easier to deal with and process I have had counselling and I was doing OK but recently feel like I'm slipping again I'm trying to be strong for my kids and partner but I keep thinking what if and why. Before this I had a job I volunteered I had a life now I feel like I don't know who I am anymore. I have taking it to a lawyer but its hard going through it constantly and feel like am I wasting my time. Hope your well xx
Although I do not have personal experience of taking the nhs to Court I would advocate this for you. At least with financial compensation there is something rather than just having to put up with the situation. I would go to a Solicitor or even the Citizens Advice Bureau for first step advice. A lot of Law firms do not want to take on the nhs, Councils, Housing, Estate Agents but there are Law Firms that have taken the nhs to Court.
Thankyou I have reached out to a lawyer and it was hard relieving it again but after talking to such lovely people on here I know I have to do something for closure. Thankyou I hope your ok with your health xx
l cannot relate to you completely as l was over 70 when my complaints were finally taken seriously but, if it helps to unload then we will listen. I had horrendous bleeds age 72+ and my first gynae did not take me seriously. Passed onto the next surgeon when the labs from my partial came back showing a large malignant tumour embedded in my womb lining, hence periods post 70.
At all ages it is good to think someone is listening, so please unload when ever you feel the need.
Thankyou for replying it really means alot and makes me feel I'm not alone right now, I'm so sorry to hear what you have been through it's shocking these days how long it takes to be taken seriously you know your own body but even screaming that dosent get you anywhere untill sometimes it's too late. I hope your ok and on the road to recovery physically and emotionally xx
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