Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

70,734 members • 52,159 posts

All posts for April 2023

CT showed up possible endometriosis but MRI completely normal. Has anyone else had this?

I had a CT scan at the beginning of March which showed diffused thickening of the small intestine and an ovarian cyst (didn’t get told what size). The...

I had a CT scan at the beginning of March which showed diffused thickening of th...

BethanW2

•1 year ago

4 Replies

Diagnosis

18 months into my gp appointments and two USS later and told I have an endometrioma but no gynae appointments available to even discuss my diagnosis and...

18 months into my gp appointments and two USS later and told I have an endometri...

Bloatbaby

•1 year ago

9 Replies

Dry eyes

Hi you brave ladies 🤗Please, please help me. (Also be aware that I am on a few other platforms & shall be asking the same question) I have been suffering...

Hi you brave ladies 🤗Please, please help me. (Also be aware that I am on a few ...

Nixnuna

•1 year ago

4 Replies

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mental health issues

hiya, How do you guys cope with really bad mental Heath issues because of the symptoms and pain of endometriosis? im honestly starting to get scared and...

hiya, How do you guys cope with really bad mental Heath issues because of th...

Gothchic

•1 year ago

4 Replies

16 months till appointment

Got my letter through today so rang to book my gynea appointment straight away. It's on the 19th August....2024, yep that's in 16 months time. My husband said...

Got my letter through today so rang to book my gynea appointment straight away. ...

Chooklady

•1 year ago

17 Replies

TENS machine for period cramps in stage 4 endometriosis

Hi all !!! I'm stage 4 endometriosis patient and had a laparoscopy surgery 15months ago and I get lower back pain and stomach pain during my periods .I've...

Hi all !!! I'm stage 4 endometriosis patient and had a laparoscopy surgery 15m...

Chotu5

•1 year ago

6 Replies

pain management tips for someone who can’t take anti inflammatory medication

hi I’m in need of some help and this is the only place I could think of I was diagnosed with Endometriosis a few years ago - after about 20 years of trying...

hi I’m in need of some help and this is the only place I could think of I was...

RJane83

•1 year ago

7 Replies

Feel lost

HiThanks for reading. I had a locum gynaecologist agree to put me on lap list and then I was called back in to say they wouldn't and he should not have agreed...

HiThanks for reading. I had a locum gynaecologist agree to put me on lap list an...

Purplepassionflower

•1 year ago

3 Replies

Post surgery and periods

Hi all, I am now having my second period post surgery. I was on the combined pill but switched to the progesterone only a couple of days before my period...

Hi all, I am now having my second period post surgery. I was on the combined pi...

JT1992

•1 year ago

6 Replies

zoladex/HRT pending hysterectomy

I started on Zoladex a week ago, alongside HRT. I am on the surgical waiting list for a hysterectomy with a view to keeping my ovaries as I am 34. Since the...

I started on Zoladex a week ago, alongside HRT. I am on the surgical waiting lis...

Ccn2018

•1 year ago

5 Replies

Joint Pain months after Prostap

I had my last prostap injection in January and from December throughout including now I’ve been suffering with joint and pelvic pain spread in across into my...

I had my last prostap injection in January and from December throughout includin...

victoriaat1611

•1 year ago

2 Replies

It isn't mandatory for surgeons to record lap surgery with imaging/video.

Our recent post on Instagram with a detailed article about this. We have several members who have had complex surgery in centres and have been unable to...

Our recent post on Instagram with a detailed article about this. We have severa...

Lindle

•1 year ago

1 Reply

95% accurate saliva test for Endo!

Hi, long time lurker, first time poster. After 10 years of increasing symptoms and the last three years being hell, I finally had a 5 hour surgery in...

Hi, long time lurker, first time poster. After 10 years of increasing symptoms...

Fuchsiafairy

•1 year ago

1 Reply

Hysterectomy, Oophorectomy or neither?

Endo sufferer since forever. Have moderate/severe endo & significant adhesions from laps, c - section & appendectomy. Several laps later, mirena, decapeptyl...

Endo sufferer since forever. Have moderate/severe endo & significant adhesions f...

AilsS

•1 year ago

2 Replies

Questions for surgeons before hysterectomy ??

hello everyone! I have app on Wednesday with my Cyne surgeon and Colorectal surgeon. I have Endo, endometrioma ,fibroids with bowel involved. Previously Gyne...

hello everyone! I have app on Wednesday with my Cyne surgeon and Colorectal sur...

Endolemon

•1 year ago

3 Replies

Back pain

Hey all, new to here. I have been suffering for so long now and always get back pain before and during a cycle. But their getting worse and this one has ruined...

Hey all, new to here. I have been suffering for so long now and always get back ...

Kinz10

•1 year ago

23 Replies

post lap bleeding

I’ve had my laparoscopy (in more pain than before, hoping it’s just recovery!) but I’m bleeding so heavily. I’m only day 5 post but I never got told anything...

I’ve had my laparoscopy (in more pain than before, hoping it’s just recovery!) b...

Cats1311

•1 year ago

1 Reply

irregular bleeding following decapatyl and ovarian cysts

long story shortish! Dec 21 I was very I’ll had sepsis and they found I had bilateral ovarian absess’ ended up having laparotomy. To have them drained. They...

long story shortish! Dec 21 I was very I’ll had sepsis and they found I had bila...

Mastiffmum1980

•1 year ago

2 Replies

best pain relief

I have endometriosis and have done for 20 years. I’ve got it in my bowel and have 2 large ovarian cysts. im waiting for an operation. I was on zoladex for 12...

I have endometriosis and have done for 20 years. I’ve got it in my bowel and hav...

Jako1982

•1 year ago

3 Replies

Anyone using crutches?

Hey everyone! Hope you are all good? I was wondering if any of you use crutches to help walk further? I'm currently using a stick, but both sides are now...

Hey everyone! Hope you are all good? I was wondering if any of you use crutches...

CryBaby91

•1 year ago

12 Replies

Progesterone pill for Endometriosis

Hello, I have recently been diagnosed with endometriosis via process of elimination and an MRI scan. I have always had awfully painful, heavy periods but in...

Hello, I have recently been diagnosed with endometriosis via process of elimin...

ALRT

•1 year ago

7 Replies

Urgent MRI results & cancer 2 week wait referral

Hello. I have stage 4 Endo and adeno for which I’ve had multiple surgeries including two excision and removal of left ovary and both tubes. My bowel and...

Hello. I have stage 4 Endo and adeno for which I’ve had multiple surgeries incl...

Lily1986

•1 year ago

43 Replies

Endometriosis/Menapause

I was diagnosed for Endometrosis in 2005 for removal of a Fibroid. My Gynecologist did a Laproscopy and found the Endometriosis on my ovaries and on the...

I was diagnosed for Endometrosis in 2005 for removal of a Fibroid. My Gynecologi...

DES13

•1 year ago

4 Replies

Post lap bloating.

I had my laparoscopy 4 days ago, I'm quite swollen still, how long does it take for the bloating to subside?. I also had endometrial ablation and a mirena...

I had my laparoscopy 4 days ago, I'm quite swollen still, how long does it take ...

NikkiJR

•1 year ago

8 Replies

Colposcopy after abnormal smear test

Has anyone else had to go for a colposcopy after an abnormal smear test? I'm only 23 so wasn't due to be called in for my first smear test until I turn 25 but...

Has anyone else had to go for a colposcopy after an abnormal smear test? I'm onl...

RueBlu3

•1 year ago

2 Replies

how long after surgery should you wait before having AMH levels retested?

how long after surgery should you wait before having AMH levels retested? I had extensive surgery four weeks ago and a follow up appt at RFC today and I highly...

how long after surgery should you wait before having AMH levels retested? I had ...

M1673402

•1 year ago

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3 Areas for mri?

Hi there ladies.I've finally got put on somebodies list for an mri. I'm paying private so I was surprised when I wasn't given the choice of a date. They just...

Hi there ladies.I've finally got put on somebodies list for an mri. I'm paying p...

SavageGold

•1 year ago

11 Replies

Nuvaring

I wonder if anyone uses nonstop Nuvaring (contraceptive method) for endometriosis. That's what my gynecologist prescribed me, he said endometriosis will stop...

I wonder if anyone uses nonstop Nuvaring (contraceptive method) for endometriosi...

Thena90

•1 year ago

2 Replies

pain in the bottom…literally 😳

I haven’t had endo on the bowel diagnosed as yet as waiting for another lap but I do have a lot of symptoms. One particularly bad one recently has been pains...

I haven’t had endo on the bowel diagnosed as yet as waiting for another lap but ...

endowarrior12

•1 year ago

15 Replies

Adenomyosis

Just read another letter from consultant to my GP. It says., Posterior Myometrium is thickened containing small intramural fibroids or Adenomyosis. Endometrium...

Just read another letter from consultant to my GP. It says., Posterior Myometriu...

Slinks

•1 year ago

2 Replies

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for April 2023

CT showed up possible endometriosis but MRI completely normal. Has anyone else had this?

Diagnosis

Dry eyes

mental health issues

16 months till appointment

TENS machine for period cramps in stage 4 endometriosis

pain management tips for someone who can’t take anti inflammatory medication

Feel lost

Post surgery and periods

zoladex/HRT pending hysterectomy

Joint Pain months after Prostap

It isn't mandatory for surgeons to record lap surgery with imaging/video.

95% accurate saliva test for Endo!

Hysterectomy, Oophorectomy or neither?

Questions for surgeons before hysterectomy ??

Back pain

post lap bleeding

irregular bleeding following decapatyl and ovarian cysts

best pain relief

Anyone using crutches?

Progesterone pill for Endometriosis

Urgent MRI results & cancer 2 week wait referral

Endometriosis/Menapause

Post lap bloating.

Colposcopy after abnormal smear test

how long after surgery should you wait before having AMH levels retested?

3 Areas for mri?

Nuvaring

pain in the bottom…literally 😳

Adenomyosis

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