Endometriosis/Menapause

[DES13]

I was diagnosed for Endometrosis in 2005 for removal of a Fibroid. My Gynecologist did a Laproscopy and found the Endometriosis on my ovaries and on the Uterosacral area of the Uterus. My Gynecologist tried to remove the Endometriosis. I have tried for many years to deal with the pain but found out a few years ago that I have Fibroids with heavy bleeding. My Gynacologist prescribed Orilissa medication. Hoping to be medically induce into Menapause but it did not work. Three months later my period came back with severe pain. I plan on seeing next month a Gynecolgy Surgeon who does Robotic Hysterectomy’s. I am in my late fifthies. Anyone else in my situation? Any tips?

[Moon_maiden]

Hi

I was diagnosed in Feb 2020 with Endo at 51. I’d gone to Gynae about fibroids showing on ultrasound. I was in so much pain. Turns out there were lots more than the three that showed on scan, uterus was much larger and Endo more extensive than he’d first thought. I had hysterectomy in Nov 2020.

Make sure they agree to take out all Endo/adhesions not just do the hysterectomy and be done. I had to have further op for bowel adhesions.

Not sure if this helps, but please ask anything.

[DES13]

Thank you for sharing with me.

[Meme31]

hi, sorry to hear you are going through this terrible stuff. I was put on Desogestrel and had the same issue with bleeding 6 months later so doctor doubled the dose and the bleeding stopped.

I basically started Desogestrel in June 2021. Bleeding appeared in January 2022 so the dose was doubled. In June 2022 I dropped to one because I was so dry everywhere and depressed I felt I was shutting down.

went ahead until beginning of this month when I saw a specialist that put me on estradiol and I feel much better now. Waiting for cardiologist to check if I can take a progenistic in pessary along with estradiol as it requires blood pressure to be spot on and mine sometimes goes roller coasting.

Since June 2021 I had moments feeling very uncomfortable but never needed a&e and morphine like I used before.

Having said this, I am now 53 which means hopefully in menopause.

I have stage 4 endo extended to all my lower abdomen

[Shellbell08]

I had mine in 2018 the robotic is by far easier than the old way but still a serious surgery. Just be mindful it will put you in medically induced menopause immediately. Hopefully you don't have all the night sweats,hot flashes etc.. that I have experiences 5 yrs later and I am still suffering. For me at 47 sex is still painful and I think I have endometriosis in my bowels