mental health issues

[Gothchic]

hiya,

How do you guys cope with really bad mental Heath issues because of the symptoms and pain of endometriosis?

im honestly starting to get scared and anxious about the constant negative thoughts in my head, I just don’t know who to turn to for help I already put to much stress on my family so I try to pretend I’m much better than I am. Really is there no end to this nightmare?

(sorry to be so negative i just really needed to write down how I felt in a place of understanding)

[Escapologygirl]

I'm sorry you feel scared and alone, but I'm grateful you asked this as I'm 5yrs diagnosed with endometriosis thats spread to bladder and rectum and nobody medically takes me seriously. I'm afraid if I truly tell what's in my head at times I'll be committed to the psychological ward. Our heads can be extremely scary places with endometriosis and I know in Ireland there's nothing but at least in UK there are specialist endometriosis centres and I'm sure there's a helpline number with someone who understands. At least on here I don't feel alone or judged but sending you a great big hug

[SCords]

I wish I could answer that for you but I really don’t know. I have the exact same feelings, I’m scared because I still don’t 100% know what’s wrong with me, I’m anxious because I don’t see a way out and I’m always angry at everything. It helps to talk but finding people that understand is just as difficult as getting diagnosed, that’s why I came to this group I haven’t actually posted anything yet but just reading that I’m not the only one having an absolute nightmare makes me feel less alone. X

[Green_witch]

I'm right there with you. So much anxiety. It's like I'm trying to prevent a slow motion train wreck right in front of me. My mind is going so fast, rushing to try to make it better, figure it out, and I'm trying so many treatments and approaches, but I have no idea whether each choice will help or hurt me, or if it has any impact at all. Meanwhile, things just seem to keep getting worse. It's maddening.

I listen to and read talks by Ram Dass, especially the ones he gave after he had a stroke in his 60s and lost a lot of function. His perspectives help me. Tara Brach, and other mindfulness teachers, have given me a reprieve and lovely perspectives. I'm thinking about seeking out a talk therapist who uses ACT or MSBR techniques, or at least specializes in chronic pain.

Whatever you do, know that you're not alone in thinking really dark thoughts.

[Cailleach]

I am sure you know it is not really helpful to hide everything from those closest to you. It can help to choose one or two people you feel you can be more honest with- even to say I am not fine, I am struggling a bit, but making it clear you just want to unload a bit and do not expect them to ‘fix’ you.

To have someone you can be completely honest with it can help to talk to someone outside the situation and by that I mean someone like a counsellor. Your GP can refer you, but there might be a wait. Tell your GP about the negative thoughts, especially if you have thought about harming yourself.

This is a really tough condition to deal with, along with the challenges of negotiating the health service. I have found counselling useful myself. Are you getting as much help as you should with symptoms, pain etc? Is there a treatment plan, are you being seen at Gynae etc?

Hope things improve for you x