Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

71,472 members • 52,434 posts

All posts for August 2022

post surgery pain worse!

hi there, i have always struggled with period pain since school around 2015, which has got progressively worse over time. After years of misdiagnosis and...

hi there, i have always struggled with period pain since school around 2015, ...

Mia843

•2 years ago

3 Replies

high pulse/ heart rate and endometriosis stage 5

hello! i have endometriosis stage 5, and i also have high pulse, and now is getting worse with tremor and hypertension. Does anyone else have the same...

hello! i have endometriosis stage 5, and i also have high pulse, and now is get...

Amalia44

•2 years ago

10 Replies

Having mirena coil fitted

Hello! I’m 23, I’ve had endo for 10 years now. I had a mirena coil fitted when I was 18 but it was during my laparoscopy so I obviously wasn’t aware of it...

Hello! I’m 23, I’ve had endo for 10 years now. I had a mirena coil fitted whe...

AshF1234

•2 years ago

1 Reply

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rectalvaginal tethering

hi I have just been diagnosed with endometriosis rectalvaginal tethering has anyone been thru this before and what is the likely outcome ? Please I am in pain...

hi I have just been diagnosed with endometriosis rectalvaginal tethering has any...

KatieMay12

•2 years ago

1 Reply

should I go to A&E

dr will not give me any pain killers until I attend face to face appointment. I have just started a new job and I’m scared of missing work. I haven’t slept...

dr will not give me any pain killers until I attend face to face appointment. I...

Littlebug77

•2 years ago

23 Replies

Getting second opinion. NHS say unable to refer me to specialist, I must go private.

Hi, I was referred to a gynaecologist by the NHS due to having chronic pelvic pain, heavy periods, fatigue, uncomfortable bowel and bladder movements which...

Hi, I was referred to a gynaecologist by the NHS due to having chronic pelvic pa...

Kay92jay

•2 years ago

15 Replies

Pelvic Physio in Manchester on the NHS?

Hello! After watching The Women's Health Programme on channel 5 last night and a woman on there saying Pelvic Physio has basically changed her life and...

Hello! After watching The Women's Health Programme on channel 5 last night and...

JadeH92

•2 years ago

9 Replies

Volunteering opportunities at Endometriosis UK

We would love to recruit more volunteers for our new web chat service. Do you have a couple of hours a week that you could spare to provide support and...

We would love to recruit more volunteers for our new web chat service. Do you ha...

Lynne_support

Partner•2 years ago

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looking for advice/support - newly diagnosed and struggling.

I was taken to theatre in April for lap surgery (they only drained my cysts and sorted an intestinal adhesion) and following this was diagnosed with...

I was taken to theatre in April for lap surgery (they only drained my cysts and ...

GemmaK27

•2 years ago

4 Replies

Diagnosis finally!

Hi everyone, I posted a few days ago to ask advice about resting after a diagnostic lap (+ or - treatment if found) and just wanted to let you all know...

Hi everyone, I posted a few days ago to ask advice about resting after a dia...

CryBaby91

•2 years ago

4 Replies

Period with Zoladex

Hi all, Despite having Zoladex so far for three months I am still having a heavy period and horrible pelvic, back and legs pain. It is worst during my...

Hi all, Despite having Zoladex so far for three months I am still having a he...

Pecas

•2 years ago

2 Replies

Decapeptyl 3

Hii, I just have a few questions regarding Decapeptyl -3 months, I took my last injection on May 14th and I didn’t get my period yet should I be concerned?...

Hii, I just have a few questions regarding Decapeptyl -3 months, I took my last ...

NJ1992

•2 years ago

3 Replies

feeling lost & hopeless

Since I was 14 I’ve always had irregular and extremely heavy periods. I was diagnosed with PCOS then Endometriosis then Adenomyosis. I begged for a full...

Since I was 14 I’ve always had irregular and extremely heavy periods. I was diag...

Comingbackasaman79

•2 years ago

6 Replies

Volunteer Opportunity - Endometriosis UK Helpline

We are looking for new volunteers to join our helpline team. Could you provide emotional support and information to callers to our Helpline? For more...

We are looking for new volunteers to join our helpline team. Could you provide e...

Lynne_support

Partner•2 years ago

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Biopsy During Lap?

So I had my lap (finally) yesterday and unfortunately did not get to see my gynaecologist after the surgery as he was in theatre all day. Understandably the...

So I had my lap (finally) yesterday and unfortunately did not get to see my gyna...

puzzleprincess

•2 years ago

8 Replies

First symptom flare-up

Hello lovelies im pretty new, I was diagnosed a month ago in a laparoscopy. I'm pretty sure I'm currently having my first flare-up. I stupidly ate a lot of...

Hello lovelies im pretty new, I was diagnosed a month ago in a laparoscopy. ...

cdegwi

•2 years ago

1 Reply

surgery for bowel and womb stuck together by endometriosis

Anyone had surgery for bowel and womb being stuck together by endometriosis? and ovarian cysts removal? How did it go? Been on zoladex for 10months now...

Anyone had surgery for bowel and womb being stuck together by endometriosis? and...

Jako1982

•2 years ago

3 Replies

Going for bilateral ovarian cyst surgery

have anyone here done surgery to remove bilateral ovarian cyst?how is it does it solve the growth

have anyone here done surgery to remove bilateral ovarian cyst?how is it does ...

Ruthjames

•2 years ago

1 Reply

Going for bilateral ovarian cyst surgery

have anyone here done surgery to remove bilateral ovarian cyst?how is it does it solve the growth

have anyone here done surgery to remove bilateral ovarian cyst?how is it does ...

Ruthjames

•2 years ago

1 Reply

I can’t stop peeing

when I have a flare up or in pain I need to pee constantly 5 to 10 mintes if I don’t the pain and trying to retain the pee is unbearable. This is always...

when I have a flare up or in pain I need to pee constantly 5 to 10 mintes if I d...

Littlebug77

•2 years ago

20 Replies

High Prolactine and endo

hi everyone, Just reaching out to see if anyone has had their hormone test done and their prolactine levels have come up very high. I went and did a...

hi everyone, Just reaching out to see if anyone has had their hormone test do...

Bespp

•2 years ago

9 Replies

No Period after Zoladex?

Hi all. I hope you’re enjoying the UK heatwave! ☀️ I (22F) have just completed my 2nd course of Zoladex treatment for my Adenomyosis & Endometriosis. I had my...

Hi all. I hope you’re enjoying the UK heatwave! ☀️ I (22F) have just completed ...

LuceRM

•2 years ago

1 Reply

laparoscopy follow up appointment

hello, the doctor has advised that he could not see any signs of endo on my uterus but my one ovary was quite large and has advised that ovaries were moving...

hello, the doctor has advised that he could not see any signs of endo on my uter...

Kay92jay

•2 years ago

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Clear ultrasound- feeling deflated

Hello, I had an ultrasound last week and as expected they said they couldn’t see any obvious signs to suggest endometriosis, and said everything looked...

Hello, I had an ultrasound last week and as expected they said they couldn’t se...

Lotus95x

•2 years ago

18 Replies

Desogestrel & symptoms

Hi everyone, I was wondering what were people's experiences with desogestrel? I am not diagnosed yet as my MRI came back as 'normal' which is very frustrating...

Hi everyone, I was wondering what were people's experiences with desogestrel? I...

Patricia2022

•2 years ago

6 Replies

5 Racquetball Size Endometriomas

hey friends! I know majority of you are in the UK, however, I am in the US and am struggling to find a community like this one. I was diagnosed with PCOS...

hey friends! I know majority of you are in the UK, however, I am in the US and...

Brookerock

•2 years ago

1 Reply

Worried about new symptoms,, can anyone say if they've had similar experience???

I had a lap in early March and had endo confirmed and removed at the time of surgery. But over the past month I've noticed constant bloating which is very...

I had a lap in early March and had endo confirmed and removed at the time of...

Surfingblue

•2 years ago

13 Replies

Update on referral post

Hi everyone, Just an update on my last post.i have got my gynaecology appointment next Sunday. I've been trying to forget about it but now I'm feeling...

Hi everyone, Just an update on my last post.i have got my gynaecology appoint...

Sheep2

•2 years ago

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mirena coil

hi, i har my laparoscopy in april was diagnosed with endo then got the mirena coil. I havr had the copper coil since i was 15 with two changes. I know the...

hi, i har my laparoscopy in april was diagnosed with endo then got the mirena c...

MelRoe

•2 years ago

3 Replies

How do I tell my friend I'm struggling with feelings about her baby shower?

My oldest friend is having her third child, and has decided to hold a baby shower. I have endo and I'm nearly 33. I really want to have a family, and I might...

My oldest friend is having her third child, and has decided to hold a baby showe...

Meriel_Owen

•2 years ago

4 Replies

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for August 2022

post surgery pain worse!

high pulse/ heart rate and endometriosis stage 5

Having mirena coil fitted

rectalvaginal tethering

should I go to A&E

Getting second opinion. NHS say unable to refer me to specialist, I must go private.

Pelvic Physio in Manchester on the NHS?

Volunteering opportunities at Endometriosis UK

looking for advice/support - newly diagnosed and struggling.

Diagnosis finally!

Period with Zoladex

Decapeptyl 3

feeling lost & hopeless

Volunteer Opportunity - Endometriosis UK Helpline

Biopsy During Lap?

First symptom flare-up

surgery for bowel and womb stuck together by endometriosis

Going for bilateral ovarian cyst surgery

Going for bilateral ovarian cyst surgery

I can’t stop peeing

High Prolactine and endo

No Period after Zoladex?

laparoscopy follow up appointment

Clear ultrasound- feeling deflated

Desogestrel & symptoms

5 Racquetball Size Endometriomas

Worried about new symptoms,, can anyone say if they've had similar experience???

Update on referral post

mirena coil

How do I tell my friend I'm struggling with feelings about her baby shower?

Search posts

Pinned Posts

Latest poll

Have you ever experienced feelings of loneliness or isolation due to your endometriosis?

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Archive

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for August 2022

﻿post surgery pain worse!

high pulse/ heart rate and endometriosis stage 5

Having mirena coil fitted

rectalvaginal tethering

should I go to A&E

Getting second opinion. NHS say unable to refer me to specialist, I must go private.

﻿Pelvic Physio in Manchester on the NHS?

Volunteering opportunities at Endometriosis UK

looking for advice/support - newly diagnosed and struggling.

﻿Diagnosis finally!

Period with Zoladex

Decapeptyl 3

feeling lost & hopeless

Volunteer Opportunity - Endometriosis UK Helpline

Biopsy During Lap?

﻿First symptom flare-up

surgery for bowel and womb stuck together by endometriosis

Going ﻿for bilateral ovarian cyst surgery

Going ﻿for bilateral ovarian cyst surgery

I can’t stop peeing

﻿High Prolactine and endo

No Period after Zoladex?

laparoscopy follow up appointment

Clear ultrasound- feeling deflated

Desogestrel & symptoms

5 Racquetball Size Endometriomas

﻿Worried about new symptoms,, can anyone say if they've had similar experience???

﻿Update on referral post

mirena coil

How do I tell my friend I'm struggling with feelings about her baby shower?

Search posts

Pinned Posts

Latest poll

Have you ever experienced feelings of loneliness or isolation due to your endometriosis?

Topics

Archive

post surgery pain worse!

Pelvic Physio in Manchester on the NHS?

Diagnosis finally!

First symptom flare-up

Going for bilateral ovarian cyst surgery

Going for bilateral ovarian cyst surgery

High Prolactine and endo

Worried about new symptoms,, can anyone say if they've had similar experience???

Update on referral post