surgery for bowel and womb stuck together by endometriosis

[Jako1982]

Anyone had surgery for bowel and womb being stuck together by endometriosis? and ovarian cysts removal?

How did it go?

Been on zoladex for 10months now after my 12 I’m having a Mirena coil fitted.

Then back to the consultant to decide on surgery. She keeps pushing for me to have a hysterectomy but I feel I’m not ready.

[Lindle]

This is rectovaginal (severe) endo. It is very complex surgery and sometimes a hysterectomy is necessary if the uterus is too stuck or if you have adenomyosis (endo within the uterus itself). But they should try and preserve your ovaries at your age as you would have to have HRT which can bring with it a new set of problems. A hysterectomy is not a treatment for endo, especially when severe, the only treatment is removal (excision) of the endo itself.

I assume you are being treated in a specialist endo centre by a multidisciplinary team and that you have been on zoladex due to the long wait? This type of surgery mustn't be done by just one surgeon operating alone - it requires 2 lap surgeons plus colorectal and urologist as required. It is vital that a general gynecologist doesn't operate on you. They will typically just separate adhesions which doesn't resolve things as deep endo is hidden beneath dense adhesions/fibrosis.

[Avourneen]

I had surgery for this but didn't choose my surgeon well and 2 years later it is just as bad again and I need more surgery. PLease choose your surgeon carefully there are only a few surgeons in the country who are compenet to carry out this kind of surgery so you need to do your research.

[Bebe294]

First, I am sorry your doc insists on hysterectomy which is kinda normal for them to recommend when it comes to a difficult surgery!Although just recently J came to know that in case of deep and severe endo its not gonna resolve completely even after hysterectomy and you may still have pain after! So pls make sure dont do this just bcuz of pain!

Second, did you have MRI after being this long on Zoladex? I think it is good your doc checks how things are now after 10 months of suppression.

I did have a surgery recently abt 2 month ago originally for removing large fibroids and adenomyosis and some endo but they found very bad deep endo in my pelvis sticking everything together including uterus ovaries tube ( I have only one, the other been removed 3 yrs ago again due to endo)

Apparently endo went down to bowel but not stuck yet I guess just some around sigmoid area and dr suspected there is some in bowel. He said he touched with his hand to make sure its endo

Thats why he keeps me on Decapdptyl for 9 month to get rid of this last part apparently the surgery of bowel involves cutting through it which he said must be done by another specialist and better to be avoided as much as possible as its very complicated!

He removed all endo 18 fibroids and large diffiused adenomyosis from my uterus. A very comprehensive surgery, 5 in 1 operations basically reconstructing my uterus and tube all over again! ( which I wish I had done 6 yrs ago instead of wasting my golden time and energy and career in hands of not skillful doctors of government system)

My doc said my uterus would have been removed by other doctors if not him as it was a very major and difficult surgery.

These are said to me by one of the best doctors in gynaecology world ( not in UK) he is a professor having many advanced research and done thousands if not millions of surgeries so far.

So my final 2 cents for you is to pls make sure you found the best surgeon for your diagnosis and as the other fellow said you will need a team present at your surgery.

For now insist on having a MRI to see if things have been improved after Zoladex.

Btw pls dont forget Calcium vitamin D supplements in large doses to prevent bone loss due to suppression of hormons.