Hi all. I hope you’re enjoying the UK heatwave! ☀️
I (22F) have just completed my 2nd course of Zoladex treatment for my Adenomyosis & Endometriosis. I had my last Injection 17th March 2022.
A bit of back story…
I was diagnosed with Stage 1 Endo and Pelvic Congestion Syndrome via Laparoscopy in 2017 and I underwent a 3-6 month course of Zoladex (Age 17..) It was investigated further in 2018 and I was then informed that I had Stage 2. This was ablated and I had a Mirena coil. Fast forward to late 2020, I was diagnosed with Adenomyosis via TV Ultrasound. I then carried on as usual, had physiotherapy for my Hypermobility and tried all sorts of pain meds. I have just finished a 6 month course of Zoladex 10.8mg (Goserelin).
I was told that I would get a period within 12 weeks of completion.. but I haven’t had a period yet. There is a current plan in place regarding another surgery and to try and have a baby. This plan was made with full support from my family, my long-term partners family and my doctor/consultant. I understand I’m young, but with my family history of gynaecological disorders and infertility, on top of the inability to properly control my pain - I just want my uterus removed once I have had my children. I understand this is a bit rash but I’ve been thinking about this since my period problems started.
Irrespective of that, I am deeply worried that I will never get a period back (a bit dramatic but I have a poor track record of luck with my uterus). I keep getting twinges and I keep thinking “this is it” and I prepare myself with all my complementary therapies, pain killers and pads etc. However, nothing. No bleeding, just some occasional pain every now and then. I did have a particularly bad flare up which consisted of left ovarian pain (I did have a 5cm cyst there last year) and lots of pelvic pressure and abdominal cramping… so I thought that it would bring back my periods. Nope.
I’ve done an econsult for my GP to ask for some support as my anxiety is eating me alive that my body has just given up. I’ve even asked for some medication to help induce my period as I am desperate for things to go back to how they were so I can try for a baby - no matter how much pain I was in previously. I feel guilty that I’ve messed around with my cycle so much because I was in pain, and I will blame myself if things don’t start working.
Any advice or support to put me at ease?