Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

71,063 members • 52,296 posts

All posts for May 2020

I feel like I've been ignored all these years. Is it hard for a diagnosis for endometriosis?

Hi everyone. First time posting... so I'll just get into it. I've suffered with pains for the past 3 years after my second child. Chronic stabbing pains in my...

Hi everyone. First time posting... so I'll just get into it. I've suffered with...

RT22

•4 years ago

9 Replies

how to help heat damage from hot water bottles?

hello! i have endo and the only thing that ever provides any relief from the pain is hot water bottles. i have one and it's a thick fluffy teddy bear one and i...

hello! i have endo and the only thing that ever provides any relief from the pai...

whitetea

•4 years ago

26 Replies

Someone to talk to

I don’t know if I should post this or not but I had heavy periods and a lot of pain until I was put on the depo injection at 16 and I’m not 19 I was on it for...

I don’t know if I should post this or not but I had heavy periods and a lot of p...

Clo_xo-

•4 years ago

6 Replies

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Do I stop taking Tibolone before keyhole?

I am waiting surgery to remove large endometrioma from right ovary. I’m on 4th month of Decapeptyl and I finally got help from Doctor last week who has put me...

I am waiting surgery to remove large endometrioma from right ovary. I’m on 4th m...

Eleanorbargates

•4 years ago

2 Replies

Contains Desogestrel (0.15 mg) + Ethinyl Estradiol (0.02 ...

I'm 25 year old girl. I'm taking combination pill Contains Desogestrel (0.15 mg) + Ethinyl Estradiol (0.02). Back to back for 42 days. I'm using this tablet...

I'm 25 year old girl. I'm taking combination pill Contains Desogestrel (0.15 mg)...

Nikilll

•4 years ago

1 Reply

Have you had a CA-125 or OVA1/ROM test after being diagnosed with fibroids and ovarian cysts?

Hello all, Have you had a CA-125 or OVA1/ROM test after being diagnosed with fibroids and ovarian cysts? If so, were the tests accurate? Did you have elevated...

Hello all, Have you had a CA-125 or OVA1/ROM test after being diagnosed with fib...

CarolinaGull

•4 years ago

7 Replies

No hope

I am beyond devastated, disheartened and upset... I had my post op telephone appointment today, from the excision surgery I had back in Feb. All my endo pains...

I am beyond devastated, disheartened and upset... I had my post op telephone app...

DAML8

•4 years ago

29 Replies

PCOS

I came off the pill Oct 2019 and I’ve had 1 period since. I had a blood test last week to check my hormone levels and I’ve been so worried and anxious about it...

I came off the pill Oct 2019 and I’ve had 1 period since. I had a blood test las...

Babypink1

•4 years ago

1 Reply

Painkillers

I am in agony, been given zapain and just taken oramorph for breakthrough pain when it is it either that or hospital. I am crying as I write this. I am...

I am in agony, been given zapain and just taken oramorph for breakthrough pain w...

pinkfairydust10

•4 years ago

20 Replies

Supplements for endometriosis, detoxification and immune health

Hi ladies, I thought I’d post as I’ve been experiencing some positive change lately and wanted to share what I’ve been doing in the hope that it could bring...

Hi ladies, I thought I’d post as I’ve been experiencing some positive change lat...

ScarletBlossom

•4 years ago

13 Replies

In pain After intercourse

Hi all, I’ve been in pain all night with my stomach, it’s so sensitive to even touch. Me and my husband had intercourse tmi but tried a different position soon...

Hi all, I’ve been in pain all night with my stomach, it’s so sensitive to even t...

ChloeL934

•4 years ago

5 Replies

Pain relief ideas

Has anybody got any pain relief ideas when your body starts spasming with pain? I tried massaging the white tiger balm into my torso last night which seemed to...

Has anybody got any pain relief ideas when your body starts spasming with pain? ...

Peppermint3

•4 years ago

3 Replies

Have you used Serrapeptase or FibroBlend for fibroids and complex ovarian cysts?

Hello, I'm hoping that the ladies here can help me with amy advice, suggestions, etc. I have 'septations' on one of my ovarian cysts, which apparently have...

Hello, I'm hoping that the ladies here can help me with amy advice, suggestions,...

CarolinaGull

•4 years ago

9 Replies

A fellow endo sister needing assistance to fight this chronic condition

Hi everyone. A friend of mine recently shared this link of a girl who like many of us has been suffering with endometriosis for several years and is now in...

Hi everyone. A friend of mine recently shared this link of a girl who like many ...

Maxyy93

•4 years ago

Be the first to reply

Period Advice

Hi eveyrone, just looking for a bit of advice or if anyone has experienced similar, My period was 10 days late this cycle- i had cramping and lower back pain...

Hi eveyrone, just looking for a bit of advice or if anyone has experienced simi...

dora101

•4 years ago

Be the first to reply

I’ve lost over 2 stone and haven’t changed anything

I am awaiting investigative surgery for suspected endometriosis as well as the huge amount of pain I’m in, I also had an ovarian cyst which ruptured 5 years...

I am awaiting investigative surgery for suspected endometriosis as well as the h...

Chakka

•4 years ago

1 Reply

Anal mucus? Bowel endometriosis

Hey all, I’ve been suffering with bowel endometriosis for many years now and had my bowel shaved in the past. I assume it’s gradually getting worse again but...

Hey all, I’ve been suffering with bowel endometriosis for many years now and had...

Siothew12

•4 years ago

6 Replies

Zoladex and pain

Hi, I was confirmed with endo January 2019, since then I have had provera tablets and zoladex injections. Since having the injections I have found they...

Hi, I was confirmed with endo January 2019, since then I have had provera table...

Emilycaton12

•4 years ago

7 Replies

Ovarian Cyst Pain?

Hi everyone. I have a large endometrioma (very large...between 15-19cm) on the left and a smaller cyst/cysts (probably also endometrioma) on the right ovary....

Hi everyone. I have a large endometrioma (very large...between 15-19cm) on the ...

Noodle31

•4 years ago

14 Replies

Hysterectomy and zolodex

Hi after having a total hysterectomy for adenomyosis in 2016 but kept overies lost blood so had post transfusion and developed post infections so readmitted to...

Hi after having a total hysterectomy for adenomyosis in 2016 but kept overies lo...

MissAJ

•4 years ago

5 Replies

Advice please.... Danazol or GnRH analogue?

Hi, hope everyone is safe and well and coping as well as they can in these strange times, I've have been suffering and I've tried every pill I can and I'm...

Hi, hope everyone is safe and well and coping as well as they can in these stran...

Pureunicorn

•4 years ago

Be the first to reply

Endometrium thickness?

Hello, My Endometrium is 17.9mm thick (confirmed by ultra scan) it is irregular in shape too and I have been advised that I need a prompt referral with out...

Hello, My Endometrium is 17.9mm thick (confirmed by ultra scan) it is irregular...

CS32

•4 years ago

2 Replies

Where can I get post hysterectomy support?

I had a hysterectomy in December. I would like to talk to a professional or support line either online or on the phone regarding how I'm feeling 6 months post...

I had a hysterectomy in December. I would like to talk to a professional or supp...

bethm1983

•4 years ago

3 Replies

Symptoms of endometriosis

I am waiting on a scan for endometriosis diagnosis. My GP is adamant that endometriosis is the cause of my cough and swallow issues. I'm struggling to...

I am waiting on a scan for endometriosis diagnosis. My GP is adamant that endome...

Wednesday20

•4 years ago

6 Replies

Mirena Coil - unbelievable pain?!

Hi All, I had the Mirena coil fitted 5 days ago which seemed to go fine until after 48hrs.. I have been experiencing the most horrific pain and ended up in...

Hi All, I had the Mirena coil fitted 5 days ago which seemed to go fine until af...

CS32

•4 years ago

19 Replies

Mirena and breast pain

Hi everyone! Hope you’re all ok ❤️ just wondering if anyone has ever had severe ongoing breast pain while on the Mirena coil? I’ve always had breast pain but...

Hi everyone! Hope you’re all ok ❤️ just wondering if anyone has ever had severe ...

Littlenestofvipers

•4 years ago

10 Replies

Do I have endo or am I being overly concerned?

*it may be worth mentioning I suffer with health anxiety* I have had an off pelvic pain going on two years now. I’ve been to the doctors multiple times, had...

*it may be worth mentioning I suffer with health anxiety* I have had an off pelv...

BRYAS

•4 years ago

5 Replies

Diets

Hi I was wondering if anyone has tried ‘endo diets’? I’ve had a recent flare on of my endo! I was just wondering if anyone has tried eliminating certain foods...

Hi I was wondering if anyone has tried ‘endo diets’? I’ve had a recent flare on ...

Cat2611

•4 years ago

7 Replies

Pain!

I’m not good today! Had to go to the hospital. This morning it felt like something burst in my ovaries which caused sever pain, then I felt like i wet myself...

I’m not good today! Had to go to the hospital. This morning it felt like somethi...

Apatche4

•4 years ago

1 Reply

Transvaginal ultrasound

Hello! Im just wondering if anyone has had a similar experience as I have as I’m worried about whether I have got endometriosis or not. Basically- I had been...

Hello! Im just wondering if anyone has had a similar experience as I have as I’m...

Tal1234

•4 years ago

13 Replies

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for May 2020

I feel like I've been ignored all these years. Is it hard for a diagnosis for endometriosis?

how to help heat damage from hot water bottles?

Someone to talk to

Do I stop taking Tibolone before keyhole?

Contains Desogestrel (0.15 mg) + Ethinyl Estradiol (0.02 ...

Have you had a CA-125 or OVA1/ROM test after being diagnosed with fibroids and ovarian cysts?

No hope

PCOS

Painkillers

Supplements for endometriosis, detoxification and immune health

In pain After intercourse

Pain relief ideas

Have you used Serrapeptase or FibroBlend for fibroids and complex ovarian cysts?

A fellow endo sister needing assistance to fight this chronic condition

Period Advice

I’ve lost over 2 stone and haven’t changed anything

Anal mucus? Bowel endometriosis

Zoladex and pain

Ovarian Cyst Pain?

Hysterectomy and zolodex

Advice please.... Danazol or GnRH analogue?

Endometrium thickness?

Where can I get post hysterectomy support?

Symptoms of endometriosis

Mirena Coil - unbelievable pain?!

Mirena and breast pain

Do I have endo or am I being overly concerned?

Diets

Pain!

Transvaginal ultrasound

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