Do I have endo or am I being overly concerned?

[BRYAS]

*it may be worth mentioning I suffer with health anxiety*

I have had an off pelvic pain going on two years now. I’ve been to the doctors multiple times, had endless scans and everything came up healthy.

The only thing they saw was in an ultrasound And I had a small simple cyst on my left ovary that went away in a couple of weeks on it’s own... nothing to worry about the gyno said.

The pain its self is usually a dull ache/mild cramping. Similar to mild period pains or like I’ve done a huge abs session at the gym. They usually occur mid cycle.

After some googling I came across endometriosis and have become paranoid over it ever since.

I don’t have bad periods, they’re not painful nor heavy, I don’t get any of the other ‘typical’ endo symptoms either. I occasionally get pain during sex but ONLY with deep penetrate positions which the doctor said was relatively normal and common (sorry for TMI).

I have been to about 3 to 4 doctors and specifically expressed my concerns about Endo. Each and every single doctor has told me although they can’t say for 100% (because only a surgery can diagnose), but none of them think I have the condition. They each think I suffer with painful ovulation.

Usually I would listen to the doctors, however I’ve had so many stories of women’s diagnosis being wrong with this condition. How do I know they haven’t got it wrong with me?

Should I listen to the doctors and trust what they say or do you think I have it?

[Moon_maiden]

The doctors are right when they say an op is the only real way to diagnose. An experienced endo consultant can have a pretty good guess. Pain varies with each person.

I was diagnosed, after various symptoms ignored, by going private. I hadn’t gone with endo anywhere in my thoughts, only advice on fibroids showing on a scan. Had lap and unfortunately he was right.

I don’t know if you’ve seen someone who’s experienced, it might put your mind at rest.

[BRYAS in reply to Moon_maiden]

If you don’t mind me asking what where you symptoms that’s got ignored?

And I’ve specifically mentioned concerns about endo to multiple doctors including a couple of gyno’s no endo specialist though

[Moon_maiden in reply to BRYAS]

Most of the time frequency going to loo, a couple of times there was UTI, which was treated. Pain increased through the year in the pelvic/abdomen area.

They didn’t consider anything gynae, even when I asked about hormone association, they just assumed I was already in menopause. Eventually had a renal scan which showed a few fibroids. I realised sitting in a chair, mainly at work, effected the frequency as well.

I’ve always had bad period pain, but managed most of the time, and ignored it.

I’ve only really seen one gynaecologist who is great, I think I was lucky. I did see another at out of hours who had become a GP, I was having horrendous abdominal pain, she knew it was constipation and the laxido she prescribed helped. She said she’d recommend hysterectomy.

[BRYAS in reply to Moon_maiden]

I’m sorry you had to go through all of that. I hope it’s sorted now and you’re no longer in pain!

I get mensural cramps but never anything awful and no other ‘endo’ symptoms. The doctor did say if I really wanted she could refer me further for some possible endo treatment and a lap but she said there’d be a higher risk within the surgery than the likelihood I have it.

I don’t want to not trust me doctor, especially as multiple doctors have said the same thing however I don’t want to have something and then have it untreated.

IBS also runs in my family and they suggested it could be that

[Moon_maiden in reply to BRYAS]

It’s a difficult situation, something you’ll have to weigh up the pros and cons. If the pain isn’t great and not often, maybe keeping a diary of symptoms for a few months would help.

Unfortunately for me the pain hasn’t subsided and could be deep endo, not sure yet.

I wouldn’t wish this on anyone, hopefully the doctors you’ve seen are correct.