Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

70,734 members • 52,159 posts

All posts for January 2019

Desperate for what to do

Good evening ladies , I hope you’re all well?! This post is really because I feel desperate with what to do next. I had my Appointment with the head...

Good evening ladies , I hope you’re all well?! This post is really because I fee...

Lucy_x

•5 years ago

1 Reply

1st pre op of the year.

So I had my 4th lap in October where they found more endo which has now travelled to my diaphragm, but before they could of remove anything I had a co2...

So I had my 4th lap in October where they found more endo which has now travelle...

Lovisa

•5 years ago

1 Reply

Feeling desperate

There’s no other way to describe it really. I have just found out that my endometrioma on my right ovary has a partner, possibly a Siamese twin. At a follow...

There’s no other way to describe it really. I have just found out that my endo...

Bluetop1981

•5 years ago

17 Replies

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Mirena removal - hormone free! Any experiences?

Hi! I have been diagnosed with mild endometriosis and Adenoymyosis for about 5 years now, after trying multiple pills, oral hormones, the implant etc. since...

Hi! I have been diagnosed with mild endometriosis and Adenoymyosis for about 5 y...

HevsLM

•5 years ago

3 Replies

Should I go back to my specialist? Help!

Hello :) This is my first post... feel weirdly nervous! I had a laparoscopy in November which confirmed I had endometriosis. It was found on the bladder,...

Hello :) This is my first post... feel weirdly nervous! I had a laparoscopy in N...

ckem95

•5 years ago

5 Replies

Negative Laparoscopy

Over the last 12 years I've been suffering with several issues. Periods for up too three months at a time, heavy and full of clots. Constant fatigue which some...

Over the last 12 years I've been suffering with several issues. Periods for up t...

Vegechi

•5 years ago

12 Replies

Anybody else in same boat?

So, i was diagnosed with endo back in late 2015 early 2016. I was then sent through to BSGE as priority. After plenty of stalling I was given excisional...

So, i was diagnosed with endo back in late 2015 early 2016. I was then sent thro...

Heloo85

•5 years ago

9 Replies

Endometriosis annual check ups

Hi ladies, after being diagnosed with endometriosis and having surgery, it seems I have some endometrioma cysts coming back. I was wondering if you are having...

Hi ladies, after being diagnosed with endometriosis and having surgery, it seems...

sonja18

•5 years ago

3 Replies

FED UP!

Hi everyone. Had post op and currently waiting to hear when my first laparoscopy will be, hopefully they said it should be around easter time before my final...

Hi everyone. Had post op and currently waiting to hear when my first laparoscop...

grey9

•5 years ago

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In pain & exhausted

I'm not writing for a response necessarily but just to get my frustrations out because I'm always going on about it friends & family and it's probably not fair...

I'm not writing for a response necessarily but just to get my frustrations out b...

Liquiddreamsxo

•5 years ago

4 Replies

Laparoscopy bowel attached

Hi there, Yesterday I had my first laparoscopy and they found no endometriosis which is great news. They did say they found my bowel was quite "full" and that...

Hi there, Yesterday I had my first laparoscopy and they found no endometriosis w...

Hidden

•5 years ago

19 Replies

Exhausted

I’m getting super frustrated as I’m always tired, I never want todo anything because I’m always feeling tired and lack of energy! What’s a quick fix? I’m...

I’m getting super frustrated as I’m always tired, I never want todo anything bec...

Emily-Louisee

•5 years ago

8 Replies

Anyone With C-section/scar/Iatrogenic/secondary Endometriosis had gone through pregnancy or another C-section and complications....

Hi i have diagnosed with scar endometriosis/ C-section endometriosis. I have not had excision operation as I am planning for my 2nd baby. Surgeon said if i...

Hi i have diagnosed with scar endometriosis/ C-section endometriosis. I have not...

blosum

•5 years ago

1 Reply

Endo diagnosis nightmare. Please help!

I began my periods when I was 11 and they were horrific to say the least. I’ve always suffered with heavy flows, blood clots,periods lasting over a week...

I began my periods when I was 11 and they were horrific to say the least. I’ve a...

Endowarrior22

•5 years ago

11 Replies

Minera coil removal to try to conceive

Hi everyone, I have stage 3 endometriosis, and had a lap last year for diagnosis/removal. My husband and I are planning to try for a family in a few months as...

Hi everyone, I have stage 3 endometriosis, and had a lap last year for diagnosi...

BonitaBB

•5 years ago

2 Replies

Pain around belly button from Endo?

Hi All, Has anyone experienced pain around the belly button from endo? Kind of like a prodding pain that comes and goes for a few seconds? I’ve had it for a...

Hi All, Has anyone experienced pain around the belly button from endo? Kind of ...

GSUndiagnosed

•5 years ago

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Endo and the bowel.

Does anyone get pain after eating? Is this realted to endo on the bowel? Is there anything I can do to stop this?

Does anyone get pain after eating? Is this realted to endo on the bowel? Is ther...

Oliviamelvin19

•5 years ago

9 Replies

Bloated belly after surgery?

How long did it take for you to get your stomach back to how it usually is? I don’t even feel like I have a lot of gas as I am not passing any (tmi) but look...

How long did it take for you to get your stomach back to how it usually is? I d...

AllthatGlitters

•5 years ago

30 Replies

Months after lap - damp belly button - help!

Hey, so it's been about 5 months post lap, and my belly button although healed and all okay kinda stays wet and smells a bit damp, there's no infection or...

Hey, so it's been about 5 months post lap, and my belly button although healed a...

luthien

•5 years ago

8 Replies

I'm tired of waiting... (rant)

I’m sick of waiting. I was overjoyed to be referred to a BSGE center (Aberdeen) in August as an urgent referral. I’ve been waiting patiently for months. At...

I’m sick of waiting. I was overjoyed to be referred to a BSGE center (Aberdeen)...

asoullessstatic

•5 years ago

21 Replies

Period after prostap

I had prostap injection every 4 weeks for just 4 months. My last one was Oct. I still have not had a period. It’s been 13 weeks now and still no sign. Anyone...

I had prostap injection every 4 weeks for just 4 months. My last one was Oct. I ...

Laura_T

•5 years ago

4 Replies

Fed up... :(

Anyone else feel like their symptoms and problems are never going to end ???? I feel like I could go to sleep for a full month!! Currently feeling very low and...

Anyone else feel like their symptoms and problems are never going to end ???? I ...

Meghxx

•5 years ago

7 Replies

Endometriosis specialist help

Hello How do you get to see and endometriosis specialist? Will I have to go private? My gp keeps saying he can only refer me back to my gynecologist. Is it...

Hello How do you get to see and endometriosis specialist? Will I have to go priv...

Amelie8

•5 years ago

7 Replies

Anyone had a Endometrial resection?

Hi has anyone had a Endometrial resection? I have been booked in for one in March and if i am honest i am bricking it. Also worried about the general...

Hi has anyone had a Endometrial resection? I have been booked in for one in Marc...

Sweet73

•5 years ago

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Waiting list ...

I know it’s different for everyone but how long was it after your appointment (where they put you on the waiting list for the laparoscopy) to get a date for...

I know it’s different for everyone but how long was it after your appointment (w...

Tessaroo

•5 years ago

5 Replies

Chronic fatigue

How does everyone cope with the chronic fatigue? Does taking any medication or the pill help with it? Mine is worse since my lap in november 😭

How does everyone cope with the chronic fatigue? Does taking any medication or t...

Purplewitch18

•5 years ago

36 Replies

Laparoscopy

I’ve got my first laparoscopy at the end of Feb any advice? I’m nervous / excited as I’m glad I’m finally getting somewhere!!

I’ve got my first laparoscopy at the end of Feb any advice? I’m nervous / excite...

Emily-Louisee

•5 years ago

13 Replies

How should I prepare for an MRI and first laproscopy? Any tips to reduce my pain and anxiety...

Since my last post I've had so much back and forth and tears and battles with rude doctors and consultant secretaries but I do feel like I'm getting...

Since my last post I've had so much back and forth and tears and battles with ru...

Brightonbeb

•5 years ago

3 Replies

I have written to PALS, what do you think?

Good afternoon, After 9 years of pain and back and forth to doctors and hospitals, I was finally diagnosed with Endometriosis almost 5 years ago. This was...

Good afternoon, After 9 years of pain and back and forth to doctors and hospi...

MegVarny

•5 years ago

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Help needed

Need help please I've suffered with endo for years burnt away 5 times, never taken seriously or given the help I need, I now have a 4 month old, was rushed...

Need help please I've suffered with endo for years burnt away 5 times, never tak...

Tashajadebabes

•5 years ago

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Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for January 2019

Desperate for what to do

1st pre op of the year.

Feeling desperate

Mirena removal - hormone free! Any experiences?

Should I go back to my specialist? Help!

Negative Laparoscopy

Anybody else in same boat?

Endometriosis annual check ups

FED UP!

In pain & exhausted

Laparoscopy bowel attached

Exhausted

Anyone With C-section/scar/Iatrogenic/secondary Endometriosis had gone through pregnancy or another C-section and complications....

Endo diagnosis nightmare. Please help!

Minera coil removal to try to conceive

Pain around belly button from Endo?

Endo and the bowel.

Bloated belly after surgery?

Months after lap - damp belly button - help!

I'm tired of waiting... (rant)

Period after prostap

Fed up... :(

Endometriosis specialist help

Anyone had a Endometrial resection?

Waiting list ...

Chronic fatigue

Laparoscopy

How should I prepare for an MRI and first laproscopy? Any tips to reduce my pain and anxiety...

I have written to PALS, what do you think?

Help needed

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