Endometriosis specialist help

[Amelie8]

Hello

How do you get to see and endometriosis specialist? Will I have to go private?

My gp keeps saying he can only refer me back to my gynecologist.

Is it true all they can do anyway to help is drugs and induce menopause?

I eat healthy and doing a special diet that helps. Is this all I can do or can be done?

Thanks

[Rehanat]

Have you been diagnosed with stage 3/4 endometriosis?

I think if it’s at stage 3/4 then you are entitled to be referred to a bsge centre through your go although they may not be aware of this. It took me a while to get it done but it was done and I’m now on a waiting list for a lap.

It will depend on the severity of your condition as to what treatment they offer and it’s all a personal choice.

[Maxi72]

Hi there

Have a look at the NICE guidelines on endometriosis. Everyone using this forum should know about it. You should know your rights every time you see your GP so that they make the right referral decisions for you according to current guidelines. What your best specific options are will be discussed by a Gynaecologist or endo specialist eventually but the guidelines do include information about possible treatment. Also, endometriosis-UK.org is full of useful information.

This disease takes away your control over your life. Being informed gives you a bit of that back.

Good luck!

[rach890]

Hiya, you could ask your gyne to be referred to a specialist, that's what i did as i had been through 2 other general gynes and nothing they had suggested was helping.

The other way is to book a private consolation with a specialist (£400+) and then if they refer you for surgery ask to be put on the NHS for treatment.

Good luck.

[introuble in reply to rach890]

How are you doing rach? I’ve been reading your story, are you still in pain?

[rach890 in reply to introuble]

Hiya, I'm okay i had a second lap with a specialist a couple of months ago that confirmed stage 3 endo which was a relief in some aspect that i wasn't going completely mental and imagining the pain. I'm still getting quite a bit of pain in my lower back and ovaries most days, how are you doing?

[introuble in reply to rach890]

What a relief after finally being diagnosed!

I haven’t been diagnosed with anything yet.. pain lower abdomen still there..

[rach890 in reply to introuble]

Sorry to hear that you haven't had a diagnosis yet, have you had an appointment with a gyne yet to discuss options?