Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

22,078 members • 27,708 posts

All posts for May 2022

BCR but Neg PSMA scan, ? appropriate next step

Review of my clinical Hx: 68 y.o. good health. Pre-op PSA 31. Robotic RP and pelvic lymph node dissection 7/2019 (only two lymph nodes removed). Gleason 9...

Review of my clinical Hx: 68 y.o. good health. Pre-op PSA 31. Robotic RP and pel...

FlyJ

•2 years ago

43 Replies

Who directs treatment plan?

My husband has stage 3b with 1 lymph node involved. He is going to have radiation for increasing PSA. His urologist has been directing his care. Is this the...

My husband has stage 3b with 1 lymph node involved. He is going to have radiatio...

GJ65

•2 years ago

20 Replies

Should i include docetaxel with lupron +darolutamide.

My PSA =15 naïve ADT. Had RP, and RT. 5 lymph node locations 3 in pelvic 1 in chest 1 in clavicle. Ive read the trial results but they don’t include...

My PSA =15 naïve ADT. Had RP, and RT. 5 lymph node locations 3 in pelvic 1 in ...

KocoPr

•2 years ago

13 Replies

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Treatment Plan- I Need Your Ideas...

Hello, My father's PSA value was 24 in February 2022. According to the biopsy results, 8 of 13 foci had a Gleason score of 10. Ga-68 PSMA PET scan revealed...

Hello, My father's PSA value was 24 in February 2022. According to the biopsy re...

goodgoal

•2 years ago

35 Replies

When it hits the bones...

I was dx. in '09, surgery in early 2010 (confirmed G4+3). Failed. SRT in 3/2011. Completely failed (PSA never slowed down). Since then, HT which works great...

I was dx. in '09, surgery in early 2010 (confirmed G4+3). Failed. SRT in 3/2011...

compiler

•2 years ago

2 Replies

Where if Firmagon administered?

Where is Firmagon administered? Is it in a doctor's office, a hospital, an ambulatory surgery center? Thanks!

Where is Firmagon administered? Is it in a doctor's office, a hospital, an ambul...

6Dandelion

•2 years ago

20 Replies

Has anyone had an allergic reaction to Zytiga ? My friend stopped taking it but still has an ulcer and burning on the end of his penis ?

I know it sounds like I’m “ asking for a friend “ but it’s really a Russian guy I met at MSK having radiation . He has no computer skills .

I know it sounds like I’m “ asking for a friend “ but it’s really a Russian guy ...

PBnative

•2 years ago

3 Replies

Just starting my voyage

Hi, I was diagnosed end of Feb 22 with Stage 3 prostate by my family doctor. Flurry of test has shown Gleason 9, stage 4 with extensive metastatic. Initial PSA...

Hi, I was diagnosed end of Feb 22 with Stage 3 prostate by my family doctor. Flu...

Lslal

•2 years ago

14 Replies

Probiotics

Are there any pros or cons to probiotics while on Lupron, Abiraterone, and prednisone? Jim has never in his life gotten staph infections, and he is now...

Are there any pros or cons to probiotics while on Lupron, Abiraterone, and predn...

JWPMP

•2 years ago

12 Replies

Wondering which arm of STAMPEDE dictated my 18 to 16 month ADT plus Zytiga treatment plan ?

I have “ low metastatic load “ based on a clean PSMA -PET scan but I am high risk based on PSA 61 ( I was Gleason 6 on only biopsy in 2009 ) and “ probable”...

I have “ low metastatic load “ based on a clean PSMA -PET scan but I am high ri...

PBnative

•2 years ago

7 Replies

Lycopene, Heat, Magnets

I learned of my prostate cancer metastasis about ten years ago in 2012, which was four years after radiation therapy to my prostate in 2008, following a...

I learned of my prostate cancer metastasis about ten years ago in 2012, which wa...

NecessarilySo

•2 years ago

29 Replies

No to Chemo , anyone ?

Good Morning All , 5 yrs ago Dx , 4+3 , John hopkins knocked it down to 3+4 . I had SBRT to the prostate , 5 sessions . My nadir was .83 a year later but my...

Good Morning All , 5 yrs ago Dx , 4+3 , John hopkins knocked it down to 3+4 . I ...

reconjj

•2 years ago

46 Replies

Six months scans are back

Good morning my Brother, I got my six month scans back and all in all I'm very pleased with the results. CT scan shows no progression to any vital organs, or...

Good morning my Brother, I got my six month scans back and all in all I'm very p...

leo2634

•2 years ago

6 Replies

Sore Scrotum After AUS Surgery

I had a AMS800 AUS implant Jan 2022 and ever since I have experienced a sore scrotum which doesn't seem to be getting better. My GP cannot see anything unusual...

I had a AMS800 AUS implant Jan 2022 and ever since I have experienced a sore scr...

cjgbsg

•2 years ago

14 Replies

Query about Pylarify PSMA Scan

OK, cutting to the chase: I have been fortunate to have had the latest scans. I have had the C11 scan at Mayo, 11/2014. I had the Ga-68 at Umich 11/2018. I am...

OK, cutting to the chase: I have been fortunate to have had the latest scans. I ...

compiler

•2 years ago

4 Replies

Zytiga progress now moving to xtandi

Hi again just to update my progress on Zytiga. Saw my consultant last week and this time he was armed with all the latest CT and bone scans along with bloods...

Hi again just to update my progress on Zytiga. Saw my consultant last week and t...

Rogersw

•2 years ago

7 Replies

More alternative treatment

I finally got over some bone bruising so I made an appointment with a body work guy. He is a local miracle. He has trained in Europe India Hawaii and...

I finally got over some bone bruising so I made an appointment with a body work ...

spencoid2

•2 years ago

3 Replies

Stampede Trial: Arm H

So the Stampede Trial is one of the largest Trials with 10,000 Men, mostly from the UK, Switzerland, and Canada. It started over 10 years ago. It has many Arms...

So the Stampede Trial is one of the largest Trials with 10,000 Men, mostly from ...

Spyder54

•2 years ago

5 Replies

Tumor Associated Macrophages (TAM)

I'm continuing to study more about Tumor Associated Macrophages. I've mentioned in the past that my intuition tells me that suppressing them they may be the...

I'm continuing to study more about Tumor Associated Macrophages. I've mentioned ...

Javelin18

•2 years ago

10 Replies

The battle rages on

A few days after Jeff had his first infusion of Keytruda, his eye was droopy. I was concerned about additional brain tumors and called oncology. They brought...

A few days after Jeff had his first infusion of Keytruda, his eye was droopy. I...

Pancake_Lefse

•2 years ago

29 Replies

Couples Therapy

Does anyone know of a resource for relationship issues stemming from advanced prostate cancer?

Does anyone know of a resource for relationship issues stemming from advanced pr...

heatherkara

•2 years ago

8 Replies

Everybody reacts differently

Exercise helps me. Easy for me to say that I am tired but always feel better after doing it. I also take the Xtandi evening. My stomach does feel bloated...

Exercise helps me. Easy for me to say that I am tired but always feel better af...

myamic

•2 years ago

11 Replies

NERVE COMPRESSION, looking for a solution

Has anyone had experience with a tumor compressing a nerve in the spinal cord, causing a symptom, then getting that nerve to work again? In January of this...

Has anyone had experience with a tumor compressing a nerve in the spinal cord, c...

skateguy

•2 years ago

12 Replies

Back to plan B - No longer chasing Lu177

Our next step is Xofigo. Hubby had been through 10 sessions of docetaxel in 2021 where PSA went down to 1.1 (previously 117 at start of chemo). He got a break...

Our next step is Xofigo. Hubby had been through 10 sessions of docetaxel in 202...

Yadifan

•2 years ago

22 Replies

New - Additional Treatment Regimen

Good afternoon everyone. I’m about to add several natural items to my daily pill intake. I also started taking 2 tablespoons of papaya leaf extract a day this...

Good afternoon everyone. I’m about to add several natural items to my daily pill...

BigTex3

•2 years ago

36 Replies

Wondering what PSMA result will lead to

I'm scheduled to have a PSMA test on June 6th and concerned about what it will show. What are the best and worse outcomes. I see 3 possible results. 1-...

I'm scheduled to have a PSMA test on June 6th and concerned about what it will s...

old64horn

•2 years ago

28 Replies

What do you make of this?

Three and 1/2 years ago, my husband was diagnosed with stage 4 metastatic prostate cancer with numerous bone mets from his hip up to his skull. He was put on...

Three and 1/2 years ago, my husband was diagnosed with stage 4 metastatic prosta...

kick-prostate-cancer

•2 years ago

12 Replies

Nubequa Failing?

I had a PSMA scan in late Nov 2021. A few bone mets and lymph nodes in abdominal area. I had been on just Eligard for 2 years. And before that Lupron and...

I had a PSMA scan in late Nov 2021. A few bone mets and lymph nodes in abdominal...

Joey40

•2 years ago

2 Replies

Psa rising

Psa in 2018 diagnosed with biopsy gleason 9. Has prostate robotically removed psa went to undetectable .05 from MSK. Year later climbed to 1.7. Had psma done...

Psa in 2018 diagnosed with biopsy gleason 9. Has prostate robotically removed ps...

Moco1

•2 years ago

1 Reply

Duration of Fatigue post radiation prostate?

Fatigue post Radiation--what is your experience please? thank you--Ed

nuc1111

•2 years ago

14 Replies

Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

All posts for May 2022

BCR but Neg PSMA scan, ? appropriate next step

Who directs treatment plan?

Should i include docetaxel with lupron +darolutamide.

Treatment Plan- I Need Your Ideas...

When it hits the bones...

Where if Firmagon administered?

Has anyone had an allergic reaction to Zytiga ? My friend stopped taking it but still has an ulcer and burning on the end of his penis ?

Just starting my voyage

Probiotics

Wondering which arm of STAMPEDE dictated my 18 to 16 month ADT plus Zytiga treatment plan ?

Lycopene, Heat, Magnets

No to Chemo , anyone ?

Six months scans are back

Sore Scrotum After AUS Surgery

Query about Pylarify PSMA Scan

Zytiga progress now moving to xtandi

More alternative treatment

Stampede Trial: Arm H

Tumor Associated Macrophages (TAM)

The battle rages on

Couples Therapy

Everybody reacts differently

NERVE COMPRESSION, looking for a solution

Back to plan B - No longer chasing Lu177

New - Additional Treatment Regimen

Wondering what PSMA result will lead to

What do you make of this?

Nubequa Failing?

Psa rising

Duration of Fatigue post radiation prostate?

Search posts

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Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

All posts for May 2022

BCR but Neg PSMA scan, ? appropriate next step

Who directs treatment plan?

Should i include docetaxel with lupron +darolutamide.

Treatment Plan- I Need Your Ideas...

When it hits the bones...

Where if Firmagon administered?

Has anyone had an allergic reaction to Zytiga ? My friend stopped taking it but still has an ulcer and burning on the end of his penis ?

Just starting my voyage

Probiotics

Wondering which arm of STAMPEDE dictated my 18 to 16 month ADT plus Zytiga treatment plan ?

Lycopene, Heat, Magnets

No to Chemo , anyone ?

***Six months scans are back ***

Sore Scrotum After AUS Surgery

Query about Pylarify PSMA Scan

Zytiga progress now moving to xtandi

More alternative treatment

Stampede Trial: Arm H

Tumor Associated Macrophages (TAM)

The battle rages on

Couples Therapy

Everybody reacts differently

NERVE COMPRESSION, looking for a solution

Back to plan B - No longer chasing Lu177

New - Additional Treatment Regimen

Wondering what PSMA result will lead to

What do you make of this?

Nubequa Failing?

Psa rising

Duration of Fatigue post radiation prostate?

Search posts

Pinned Posts

Latest poll

Aware of our online community's impact, resources & support—please consider helping sustain & expand our group. https://malecare.org/donate

Topics

Archive

Six months scans are back