Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

22,867 members•28,485 posts

All posts for February 2018

The FDA's Crazy Drug Approval Process Is Killing Guys With PCa

Xtandi a second line anti-androgen is approved for mCRPCa..if you are not metastatic Medicare won't pay. Now the FDa has Apalutamide on Fast Track for...

Xtandi a second line anti-androgen is approved for mCRPCa..if you are not metast...

gusgold

•7 years ago

32 Replies

New Member. Thank you. I cured lung cancer and now need help with husbsnd's Prostate PSA 25 and cancer.

Hi, In 2014 when in hospital for a deadly venomous fish stabbing my foot a doctor informed me I had lung cancer. Pulmonologist first sentence to me was that he...

Hi, In 2014 when in hospital for a deadly venomous fish stabbing my foot a docto...

TerriandMark

•7 years ago

33 Replies

CEA testing

I had my first CEA test at MD Anderson last week. My MO at home had never checked that. They also checked my testosterone. That also had never been checked. Do...

I had my first CEA test at MD Anderson last week. My MO at home had never checke...

auroracham

•7 years ago

1 Reply

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Zytiga, Prednisone, Lupron

My Oncologist is now prescribing daily 1000 mg of Zytiga, 5 mg Prednisone along with my every 3rd month of Lupron. Was on daily 50 mg Casodex after 6 infusions...

My Oncologist is now prescribing daily 1000 mg of Zytiga, 5 mg Prednisone along ...

RalphieJr64

•7 years ago

48 Replies

Off Topic, How to find postings by a particular person

I now know of two different ways to find information posted by one of our HealthUnlocked forum members. ===================== USING HEALTH UNLOCKED:...

I now know of two different ways to find information posted by one of our Health...

AlanMeyer

•7 years ago

11 Replies

Tumor positive for PSA, PSAP,weakly for synaptophysin meaning???

Reorganizing hubby’s med files I came upon his specimen report for the lung tumor and lymph nodes sample which said cells were positive for PSA, PSAP and...

Reorganizing hubby’s med files I came upon his specimen report for the lung tumo...

Grumpyswife

•7 years ago

6 Replies

PSA down after 3 weeks of Xtandi

Husband’s PSA down from 14.6 on 1/4/18 to 11.82 2/26/18. I counted over the past 17 years we have celebrated downward direction changes 7 times and I have...

Husband’s PSA down from 14.6 on 1/4/18 to 11.82 2/26/18. I counted over the pas...

Grumpyswife

•7 years ago

4 Replies

You're invited to join a "Recently Treated non-metastatic" 3-day Special Community

Find a Cure Panel specializes in patient research for rare and serious diseases and has some online research for newly diagnosed people and caregivers of...

Find a Cure Panel specializes in patient research for rare and serious diseases ...

Darryl

Partner•7 years ago

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What kind of chemo to get/take

I am now on hormonetablets bicalutamide for 3 weeks and just had a zoladex injection. Friday will discuss the chemo the dr wants to give me. Any suggestions...

I am now on hormonetablets bicalutamide for 3 weeks and just had a zoladex injec...

rkengen

•7 years ago

11 Replies

Relatively new here and a lot confused.

I have been on this blog for about a month and have been very active reading just about every post and followed many. It is overwhelming how much experience...

I have been on this blog for about a month and have been very active reading jus...

kooss

•7 years ago

13 Replies

Is AR-V7 Testing Pointless?

Recent paper below [1]. Interest in AR-V7 was aroused in 2014 when it was reported that AR-V7 was often associated with Abiraterone (Zytiga) & Enzalutamide...

Recent paper below [1]. Interest in AR-V7 was aroused in 2014 when it was report...

pjoshea13

•7 years ago

2 Replies

Probiotics during treatment

Hello everyone, I’m doing research for my 72 yr old father. I’ve read some things regarding probiotics & I was curious as to their assistance (or maybe no...

Hello everyone, I’m doing research for my 72 yr old father. I’ve read some thing...

Heidabelle

•7 years ago

22 Replies

Last of chemo options

Any answers,stage 4 prostate cancer,down to last of chemo options maybe 2-3 more options not sure.

Any answers,stage 4 prostate cancer,down to last of chemo options maybe 2-3 more...

Vinnyf

•7 years ago

7 Replies

University of Iowa study - a PSA vaccine!

No results yet (and why on earth is that??) , but a sort of interesting idea... https://clinicaltrials.gov/ct2/show/NCT00583752

No results yet (and why on earth is that??) , but a sort of interesting idea... ...

Hidden

•7 years ago

3 Replies

PSA Recurrence - confused on next steps?

Wondering best course of action? What do these number mean for my risk profile? • Prostate Surgery April 2016,(PSA was 9.6) - last PSA – 0.48 (01/18) - PSADT...

Wondering best course of action? What do these number mean for my risk profile? ...

Mooserj

•7 years ago

12 Replies

Castration resistant prostate cancer - Starting Jevtana with Prednisone in a few days

Dear all, I am new to this page. I joined weeks ago but have not been able to make any posting. The posts from everyone in this group is very encouraging and...

Dear all, I am new to this page. I joined weeks ago but have not been able to m...

afhhr

•7 years ago

17 Replies

Cardiovascular side effects of Lupron?

I have had premature ventricular contractions show on stress EKG's for 40 years; doctors said "harmless". When RP failed after 7 years, I started Lupron 2...

I have had premature ventricular contractions show on stress EKG's for 40 years;...

Jamesrh

•7 years ago

19 Replies

Results are in!

Starting point in july 2017 age 55 PSA 11, spine bone mets too many to count Soft tissue tumor on spine Extensive nodal involvement Bone marrow involvement...

Starting point in july 2017 age 55 PSA 11, spine bone mets too many to count S...

BigM62

•7 years ago

34 Replies

NEPC -Chemo not working

So my father just had his third round of Jevtana and carboplatin. We are all highly suspicious that the chemo is not working. It is keeping his PSA stable but...

So my father just had his third round of Jevtana and carboplatin. We are all hig...

Daddysdaughter

•7 years ago

23 Replies

PSA on the back foot

Great news for me today. After my 12 year up and down journey with Prostate cancer I am now seeing some hope for a bright future. I must say though that I...

Great news for me today. After my 12 year up and down journey with Prostate can...

Julesaxon

•7 years ago

11 Replies

Late Degarelix shot

Hi all, I've asked my Dads oncologist but waiting on reply. My Dads is due his Degarelix shot today but his GP is away until next Monday. Is there a...

Hi all, I've asked my Dads oncologist but waiting on reply. My Dads is due his...

taylor123

•7 years ago

4 Replies

Stephen Fry on his PCa

You tube video posted Feb. 23, 2018. Gleason 9, had robotic surgery. Fry is a prominent British comedian. https://www.youtube.com/watch?v=9yDNAc8YS9c

You tube video posted Feb. 23, 2018. Gleason 9, had robotic surgery. Fry is a pr...

npaulson1

•7 years ago

1 Reply

Nerves getting the best of me.

First of all I'm very grateful for this site. I was diagnosed this past July of stage 4 very aggressive gleason 9 prostate cancer. I'm 64. Finished 6 rounds of...

First of all I'm very grateful for this site. I was diagnosed this past July of ...

RalphieJr64

•7 years ago

18 Replies

Good luck and prayers but I'm done

I believe there are great people on this site but I have encountered some trolls who private email with bs. I'm new on this site 5 months in. Sorry if have...

I believe there are great people on this site but I have encountered some trolls...

jkholmes

•7 years ago

35 Replies

Best Place to Get Solid Tumor Genetic Testing for Prostate Cancer

What is the best place to get solid tumor genetic testing for Prostate Cancer? My understanding is that the leaders are: FoundationOne, Oncomine Dx, and...

What is the best place to get solid tumor genetic testing for Prostate Cancer? M...

cesanon

•7 years ago

19 Replies

Firmagon?

It has been suggested that my husband would start hormone therapy with a 1 month shot of firmagon. How long does it take before it starts to take effect? You...

It has been suggested that my husband would start hormone therapy with a 1 month...

AuburnAngel

•7 years ago

20 Replies

What is mCRPC

I’m getting mixed signals on whether or not my cancer is castration resistant. My PSA went down to zero after chemo but has risen to 20 over the past year...

I’m getting mixed signals on whether or not my cancer is castration resistant. M...

ewhite999

•7 years ago

13 Replies

Burden of Metastatic Castrate Naive Prostate Cancer Patients, to Identify Men More Likely to Benefit from Early Docetaxel.

New paper (below), but no surprises. "Patients with a higher burden of metastatic prostate cancer starting androgen deprivation therapy (ADT) have a poorer...

New paper (below), but no surprises. "Patients with a higher burden of metastati...

pjoshea13

•7 years ago

5 Replies

Passed on.

I wanted to reach out and say thank you to those who gave our family hope, information, and support over these past 2 years. My dad passed away yesterday. He...

I wanted to reach out and say thank you to those who gave our family hope, infor...

SaratogaNYAnthony

•7 years ago

46 Replies

Zytiga cost - long term info

I have just started on Zytiga (with prednisone) after considering of not going through because of unaffordable cost. Fortunately I was helped by Patient...

I have just started on Zytiga (with prednisone) after considering of not going t...

Cmdrdata

•7 years ago

6 Replies

Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

All posts for February 2018

The FDA's Crazy Drug Approval Process Is Killing Guys With PCa

New Member. Thank you. I cured lung cancer and now need help with husbsnd's Prostate PSA 25 and cancer.

CEA testing

Zytiga, Prednisone, Lupron

Off Topic, How to find postings by a particular person

Tumor positive for PSA, PSAP,weakly for synaptophysin meaning???

PSA down after 3 weeks of Xtandi

You're invited to join a "Recently Treated non-metastatic" 3-day Special Community

What kind of chemo to get/take

Relatively new here and a lot confused.

Is AR-V7 Testing Pointless?

Probiotics during treatment

Last of chemo options

University of Iowa study - a PSA vaccine!

PSA Recurrence - confused on next steps?

Castration resistant prostate cancer - Starting Jevtana with Prednisone in a few days

Cardiovascular side effects of Lupron?

Results are in!

NEPC -Chemo not working

PSA on the back foot

Late Degarelix shot

Stephen Fry on his PCa

Nerves getting the best of me.

Good luck and prayers but I'm done

Best Place to Get Solid Tumor Genetic Testing for Prostate Cancer

Firmagon?

What is mCRPC

Burden of Metastatic Castrate Naive Prostate Cancer Patients, to Identify Men More Likely to Benefit from Early Docetaxel.

Passed on.

Zytiga cost - long term info

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