Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

21,015 members • 26,193 posts

All posts for January 2018

New diagnosis

New on site. Been reading for awhile and appreciate the positivity and information. My husband and I flew in from the Caribbean on December 18. He was...

New on site. Been reading for awhile and appreciate the positivity and informati...

MimiY

•6 years ago

37 Replies

Citrus Pectin

I am newly diagnosed (Gleason 9; PSA 8.3) and find this forum so vital towards my understanding of what is ahead. my daughter sent me this article on Citrus...

I am newly diagnosed (Gleason 9; PSA 8.3) and find this forum so vital towards m...

Balsam01

•6 years ago

5 Replies

How to get a PSMA scan at Johns Hopkins

I am recurrent and would like to get a PSMA scan done at John Hopkins. When I called to inquire I was routed to the oncology department and I got nowhere. Any...

I am recurrent and would like to get a PSMA scan done at John Hopkins. When I ca...

kmack57

•6 years ago

18 Replies

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Adding PARP inhibitor (Olaparib) to the Standard Therapy (Zytiga/ADT/Prenosone)

I had an interesting and unexpected conversation with my "second opinion" MO. I went to see him regarding adding Metformin to my list of medications (He's a...

I had an interesting and unexpected conversation with my "second opinion" MO. I ...

snoraste

•6 years ago

9 Replies

Recommendation for a post radiation salvage surgeon

Please send me your recommendations, willing to travel anywhere.

kmack57

•6 years ago

9 Replies

Lupron only or lupron plus zytiga and Prednisone?

I have metastatic prostate cancer. I did lupron for year, got psa to .09. Took lupron holiday. Psa snow rising (currently 7.5) Testosterone over 900. I got my...

I have metastatic prostate cancer. I did lupron for year, got psa to .09. Took l...

GeorgeGlass

•6 years ago

63 Replies

Recommendation for a post radiation salvage surgeon

Looks like I am having a recurrence and have started to look into options. I will have a scan to confirm the cancer is still confined and want to be ready to...

Looks like I am having a recurrence and have started to look into options. I wil...

kmack57

•6 years ago

4 Replies

Detection of Oligometastatic recurrent PCa.

New Italian study. I imagine that some are here because primary treatment has failed, but the situation isn't yet clear. There is increasing acceptance of the...

New Italian study. I imagine that some are here because primary treatment has fa...

pjoshea13

•6 years ago

8 Replies

I’m new here...spouse starting Zytiga

Hi there..not sure if this is the right forum or not but I came across this site when I was researching Zytiga. My husband is 54 and was diagnosed with stage...

Hi there..not sure if this is the right forum or not but I came across this site...

JS12

•6 years ago

25 Replies

Easy way to Tweet and Facebook your posts

Did you know you can tweet and Facebook your posts just by tapping the Twitter and or Facebook buttons on the right side just under your posts...great way to...

Did you know you can tweet and Facebook your posts just by tapping the Twitter a...

Darryl

Partner•6 years ago

Be the first to reply

Tell a Prostate Cancer Friend to Join our Group

Our group is magnificant. Each week, I get one or two emails from a spouse or doctor saying how helpful our Advanced Prostate Cancer group has been for their...

Our group is magnificant. Each week, I get one or two emails from a spouse or d...

Darryl

Partner•6 years ago

1 Reply

Latest PSA doubled for 3rd month- but stopped ADT 03/31/2017

Hey gang, Just had my monthly PSA result and it's at 1.3 with T at 146. Previous results: 0.1(nadir) for two months then 0.2, 0.5(T at 86) on 12/29/17 I had...

Hey gang, Just had my monthly PSA result and it's at 1.3 with T at 146. Previous...

dockam

•6 years ago

11 Replies

ADT or incontinence ? if you had to pick

I have been treated twice now for Prostate cancer, the first time with Proton radiation and then after a recurrence with Cryo and IRE (irreversible...

I have been treated twice now for Prostate cancer, the first time with Proton ra...

kmack57

•6 years ago

6 Replies

Mebendazole

Has any tried Mebendazole to a favourable PSA response? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4096024/

Has any tried Mebendazole to a favourable PSA response? https://www.ncbi.nlm.nih...

taylor123

•6 years ago

2 Replies

Question about alcohol consumption

I'm hearing conflicting opinions about alcohol consumption - and of particular interest to me, wine consumption. My dietitian's opinion was this: If you don't...

I'm hearing conflicting opinions about alcohol consumption - and of particular i...

snoraste

•6 years ago

38 Replies

Quality of Life Follow up LATITUDE trial (Zytiga+Prednisone+ADT)

Saw this post at Practice Update site - more reason for newly diagnosed patients (like myself) to stay the course: "Patient-Reported Outcomes Following...

Saw this post at Practice Update site - more reason for newly diagnosed patients...

snoraste

•6 years ago

1 Reply

Pots and Pans as important as the food we eat

My home cooking tastes better now that I switched to stainless steel. I used to have Analon nonstick pots and pans...now I use 5ply AllClad. I can taste the...

My home cooking tastes better now that I switched to stainless steel. I used to ...

Darryl

Partner•6 years ago

2 Replies

Estate, Health Proxy, Living Will, etc

Legal planning is as important as treatment planning. We posted a long blog article about estate planning, living will, health proxy, etc here:...

Legal planning is as important as treatment planning. We posted a long blog art...

Darryl

Partner•6 years ago

Be the first to reply

Chemo round 9 - mood swings

Just finished chemo round 9 today. If not for the night sweats and mood swings, i feel as good as i did a year before diagnosis. PSA still undetectable. But...

Just finished chemo round 9 today. If not for the night sweats and mood swings, ...

BigM62

•6 years ago

3 Replies

I'm Struggling

Hey guys, I was diagnosed in April 2016 at age 49, with multiple bone mets and Gleason 10 disease. Initially I found it very hard to cope with this, but I...

Hey guys, I was diagnosed in April 2016 at age 49, with multiple bone mets and G...

paulofaus

•6 years ago

74 Replies

Blood in Urine

I have been on Zytiga with a pretty constant PSA for the last 13 months. My last PSA was up slightly but a urinalysis has detected blood in my urine. Anybody...

I have been on Zytiga with a pretty constant PSA for the last 13 months. My las...

noirhole

•6 years ago

14 Replies

The guts of a radiation treatment machine

Here's the inside of a radiation treatment machine I repaired. It's what I've been doing for the last 30+ years to make a living, but will not be doing any...

Here's the inside of a radiation treatment machine I repaired. It's what I've be...

Hidden

•6 years ago

28 Replies

Maspin. (& Curcumin, Luteolin, etc.)

New study below [1]. The Maspin-PCa literature is barely 20 years old, but there have been some intriguing findings. The name doesn't give much away - Maspin...

New study below [1]. The Maspin-PCa literature is barely 20 years old, but there...

pjoshea13

•6 years ago

2 Replies

Doing my best to help people with cancer

I work in a company that has developed a Cell Harvester instrument that is used in cancer research. I have worked for this company for over 19 years! I enjoy...

I work in a company that has developed a Cell Harvester instrument that is used ...

Jeff54

•6 years ago

5 Replies

Zytiga recycling, intermittent treatment approach posted earlier, designed to extend treatment duration.

I am just starting on an initial Zytiga treatment. My current PSA is 29.0. (My overall treatment history since my June 2015 diagnosis is in my profile and is...

I am just starting on an initial Zytiga treatment. My current PSA is 29.0. (My...

tom82

•6 years ago

2 Replies

Hi I am a new stage4. Metastatic in bones,

Psa 800 Gleason. 5+4=9 trying to decide what to do. Just had first Lupron. Any advice,,doc wants to do chemo. With clinical trial.

Psa 800 Gleason. 5+4=9 trying to decide what to do. Just had first Lupron. Any a...

Devtony

•6 years ago

95 Replies

I'm still going strong!

Hi everyone, I though a positive note might help. I was diagnosed Oct 2013, PSA 620. Two of 12 biopsy cores cancerous. Gleasons, 3 and 4. 4 and 4. Widespread...

Hi everyone, I though a positive note might help. I was diagnosed Oct 2013, PSA...

NiallMcC

•6 years ago

16 Replies

Pulse Testosterone Supplementation

New Italian study below. Does not involve Sam Denmeade & his BAT protocol, but the idea is similar - rapid T cycling. "The rapid cycling from hypogonadal to...

New Italian study below. Does not involve Sam Denmeade & his BAT protocol, but t...

pjoshea13

•6 years ago

3 Replies

blood in urine

braccy 12 years ago ,lymph node in pelvis 10 years ago, on lupron/casodex but added Zitiga/prednisone Oct 15/17---blood in urine oct 05/17. scheduled for a...

braccy 12 years ago ,lymph node in pelvis 10 years ago, on lupron/casodex but a...

milto27xabc

•6 years ago

4 Replies

Advanced Prostate Cancer Treatment

Hi, I am new to this community. My father(89 y/o) has advanced prostate cancer, that was diagnosed in Nov,1996 PSA was 49. It was stage 4 with mets to one...

Hi, I am new to this community. My father(89 y/o) has advanced prostate cancer,...

ann1919

•6 years ago

11 Replies

Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

All posts for January 2018

New diagnosis

Citrus Pectin

How to get a PSMA scan at Johns Hopkins

Adding PARP inhibitor (Olaparib) to the Standard Therapy (Zytiga/ADT/Prenosone)

Recommendation for a post radiation salvage surgeon

Lupron only or lupron plus zytiga and Prednisone?

Recommendation for a post radiation salvage surgeon

Detection of Oligometastatic recurrent PCa.

I’m new here...spouse starting Zytiga

Easy way to Tweet and Facebook your posts

Tell a Prostate Cancer Friend to Join our Group

Latest PSA doubled for 3rd month- but stopped ADT 03/31/2017

ADT or incontinence ? if you had to pick

Mebendazole

Question about alcohol consumption

Quality of Life Follow up LATITUDE trial (Zytiga+Prednisone+ADT)

Pots and Pans as important as the food we eat

Estate, Health Proxy, Living Will, etc

Chemo round 9 - mood swings

I'm Struggling

Blood in Urine

The guts of a radiation treatment machine

Maspin. (& Curcumin, Luteolin, etc.)

Doing my best to help people with cancer

Zytiga recycling, intermittent treatment approach posted earlier, designed to extend treatment duration.

Hi I am a new stage4. Metastatic in bones,

I'm still going strong!

Pulse Testosterone Supplementation

blood in urine

Advanced Prostate Cancer Treatment

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