Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

22,867 members•28,485 posts

All posts for January 2021

Hibiscus sabdariffa Leaf Extract Inhibits Human Prostate Cancer Cell Invasion via Down-Regulation of Akt/NF-κB/MMP-9 Pathway”

Recently purchased Pure Leaf’s Mango & Hibisbcus Herbal Tea. I checked out hibiscus-related research and was surprised at the extent of the research on...

Recently purchased Pure Leaf’s Mango & Hibisbcus Herbal Tea. I checked out hibis...

CalBear74

•4 years ago

11 Replies

When to do 'advanced' tests?

Hi All, At what point in the advanced Pca journey is a Foundation One liquid biopsy (or similar) a useful test to influence treatment decisions? My husband is...

Hi All, At what point in the advanced Pca journey is a Foundation One liquid bi...

Proflac

•4 years ago

14 Replies

quiet reflections, roller coasters & dreams of remission.

Wow, Just Wow. "Feeling optimistic after hearing the New Radiologist Oncologist's Plan of treatment 🥳 **he even mentioned the "c" word...cure" This memory...

Wow, Just Wow. "Feeling optimistic after hearing the New Radiologist Oncologist'...

greatjohn

•4 years ago

40 Replies

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The estradiol patch test in the U.K. appears on hold. Does anyone in the community know why?

https://www.cancerresearchuk.org/about-cancer/find-a-clinical-trial/a-trial-looking-at-hormone-patches-for-prostate-cancer

https://www.cancerresearchuk.org/about-cancer/find-a-clinical-trial/a-trial-look...

kreg001

•4 years ago

30 Replies

Ra223 Xofigo and Cabazataxel compared

Since diagnosis 2009 at 62yo, with inoperable Gleason 9, but with low Psa only 6, I had failed RP attempt in 2010, but has EBRT + 2 years ADT, then pause...

Since diagnosis 2009 at 62yo, with inoperable Gleason 9, but with low Psa only 6...

Patrick-Turner

•4 years ago

11 Replies

Avoiding radiation damage to salivary glands with Ac-225-PSMA-617 therapy

Maybe I'm getting ahead of myself, but I think this will become increasingly important. Interesting caution about Chinese food....

Maybe I'm getting ahead of myself, but I think this will become increasingly imp...

Tall_Allen

•4 years ago

29 Replies

Dad 67 years old diagnosed with stage 4 Prostate Cancer, with many bone mets.

Hi everyone, I have been lurking for bit and thank you for all the generous advice and experience shared. It helps me a lot and makes this journey less lonely....

Hi everyone, I have been lurking for bit and thank you for all the generous advi...

worrywaffle

•4 years ago

11 Replies

12,000

Worth noting a milestone: over 12,000 members in Malecare’s Advanced Prostate Cancer community. Please help us reach half that number on our YouTube channel by...

Worth noting a milestone: over 12,000 members in Malecare’s Advanced Prostate Ca...

Darryl

Partner•4 years ago

5 Replies

Zytiga Effects On Bloodwork

Hello all, I would appreciate feedback on interpretation of my husband’s latest blood test results. As background, he was diagnosed with stage 4 PC in July...

Hello all, I would appreciate feedback on interpretation of my husband’s latest ...

Dett

•4 years ago

35 Replies

End of STAMPEDE, what to do?

My guy has had success with no recurrence of CRPC on the STAMPEDE protocol - originally he was Stage IV, Gleason 9, had prostate removed, had 2 soft tissue...

My guy has had success with no recurrence of CRPC on the STAMPEDE protocol - ori...

lss65

•4 years ago

27 Replies

Lupron withdrawals, is it a thing?

I was dx in Dec 2019 with Stage IV APCa and put straight on ADT (Casodex and Eligard). Chemo soon followed and concluded with Radio in October last year, last...

I was dx in Dec 2019 with Stage IV APCa and put straight on ADT (Casodex and Eli...

Doseydoe

•4 years ago

14 Replies

Genestein

Is any one supplementing with Genestein ?

lewicki

•4 years ago

48 Replies

6 year anniversary--could 0.8 be my nadir?

This is my 1st post here. Like many I searched for Tall Allen and found him here. I miss his insightful and knowledgable posts. This month will be my 6th...

This is my 1st post here. Like many I searched for Tall Allen and found him her...

hwrjr

•4 years ago

18 Replies

Replying to a comment that Alan Meyer made three years ago.

AlanMeyerAlanMeyer in reply to Roland632017 3 years ago I think that a good way to overcome an addiction is to get yourself addicted to something cheap and...

AlanMeyerAlanMeyer in reply to Roland632017 3 years ago I think that a good way ...

E2-Guy

•4 years ago

6 Replies

First genetic testing, it’s funny doctors don’t explain this to you...what do you think?

01/28/2021 Message body: I have already done genetic studies on your tumor and I will look into germline testing next week. Your PSA remains undetectable PSA...

01/28/2021 Message body: I have already done genetic studies on your tumor and I...

5_plus_4

•4 years ago

4 Replies

Need something explained - "Uptake" ??

What does "uptake" mean on my bone scan. "intense uptake on seventh rib" Thoughts?

What does "uptake" mean on my bone scan. "intense uptake on seventh rib" Th...

Longterm101

•4 years ago

16 Replies

How to help men find good prostate cancer information

It's hard to find helpful video's on YouTube. The YouTube algorithm recommends videos from channels with high subscribers. Please help men find our prostate...

It's hard to find helpful video's on YouTube. The YouTube algorithm recommends ...

Darryl

Partner•4 years ago

2 Replies

$150 Online Research Opportunity

https://www.research.net/r/Malecare Pillar Patient Advocates is seeking 10 patients who are on their 2nd line or more of 2nd generation treatments such as...

https://www.research.net/r/Malecare Pillar Patient Advocates is seeking 10 patie...

Darryl

Partner•4 years ago

17 Replies

Prednisone 5mg twice daily ready to toss the bottle on my road

Abiraterone only 250mg daily, Lupron 90 Inj's, and Prednisone 5mg/2X/day since Sept 2019. PSA 0.54 Sept 0.80 Dec 2020. Read this please: Why was I so energized...

Abiraterone only 250mg daily, Lupron 90 Inj's, and Prednisone 5mg/2X/day since S...

depotdoug

•4 years ago

50 Replies

Testicular pain

Have any of you experienced testicular pain while on ADT treatment? My husband has some tenderness.

Have any of you experienced testicular pain while on ADT treatment? My husband h...

Fight11

•4 years ago

10 Replies

Saw my Oncologist today, not good news.

Those following me know I've had bad luck with pain and treatments, getting pain under control has been a real challenge and last 3 treatments have failed. The...

Those following me know I've had bad luck with pain and treatments, getting pain...

Zetabow

•4 years ago

23 Replies

PSA

Hi good people I stopped taking Bicalutamide for 64 days and my psa test increased from <0.1 to 0.29 ,i did a contact to my Oncology Dr. weise in Germany ,he...

Hi good people I stopped taking Bicalutamide for 64 days and my psa test increas...

NOCanceros

•4 years ago

13 Replies

Sounds like BS Prostrate Cancer story

Read a story of a guy diagnosed Stage 4 Prostrate Cancer in 2005 on Quora site, said it spread to Lymph nodes, bones and lungs, also saying he didn't take any...

Read a story of a guy diagnosed Stage 4 Prostrate Cancer in 2005 on Quora site, ...

Zetabow

•4 years ago

61 Replies

Proteus clinical trial is a good option

I posted 3 days ago about a large lymph node which was forgotten during surgery. I wanted to write again after I saw the surgeon today for my post surgery...

I posted 3 days ago about a large lymph node which was forgotten during surgery....

Johnko

•4 years ago

10 Replies

alternative medical doctor MD

I decided to see if an alternative doctor could advise and prescribe for helping to control Pca cells in my blood from colonizing and creating problems....

I decided to see if an alternative doctor could advise and prescribe for helping...

lewicki

•4 years ago

34 Replies

From ASCO in December - Covid and cancer..

https://www.asco.org/asco-coronavirus-resources/covid-19-patient-care-information/covid-19-vaccine-patients-cancer

https://www.asco.org/asco-coronavirus-resources/covid-19-patient-care-informatio...

Hidden

•4 years ago

1 Reply

Two Dangerous Words

As we advanced Pca guys know the odds of us taking unplanned trips to the emergency room increase as we journey further along this path. I recently found...

As we advanced Pca guys know the odds of us taking unplanned trips to the emerge...

Scoofer33

•4 years ago

8 Replies

The case of Guy Tenenbaum

Wondering if you could guy help me sort out this special case. Guy Tenenbaum is a youtuber that I’ve been following for the past 10 months but I’ve watched...

Wondering if you could guy help me sort out this special case. Guy Tenenbaum is...

Mascouche

•4 years ago

50 Replies

Good meds for bone pain w. metastatic PCa.

Need pain med advice. GP Doc finally put me on Percocet -- which is way too weak to do much good. Have bone mets for almost 2 years from femurs to neck, and...

Need pain med advice. GP Doc finally put me on Percocet -- which is way too wea...

bloodyveinpoke

•4 years ago

18 Replies

If you use mouthwash you might want to consider changing to one that uses thymol as an antiseptic

In vitro study only Apoptotic effects of thymol, a novel monoterpene phenol, on different types of cancer. Elbe H, Yigitturk G, Cavusoglu T,...

In vitro study only Apoptotic effects of thymol, a novel monoterpene phenol, on ...

Graham49

•4 years ago

7 Replies

Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

All posts for January 2021

Hibiscus sabdariffa Leaf Extract Inhibits Human Prostate Cancer Cell Invasion via Down-Regulation of Akt/NF-κB/MMP-9 Pathway”

When to do 'advanced' tests?

quiet reflections, roller coasters & dreams of remission.

The estradiol patch test in the U.K. appears on hold. Does anyone in the community know why?

Ra223 Xofigo and Cabazataxel compared

Avoiding radiation damage to salivary glands with Ac-225-PSMA-617 therapy

Dad 67 years old diagnosed with stage 4 Prostate Cancer, with many bone mets.

12,000

Zytiga Effects On Bloodwork

End of STAMPEDE, what to do?

Lupron withdrawals, is it a thing?

Genestein

6 year anniversary--could 0.8 be my nadir?

Replying to a comment that Alan Meyer made three years ago.

First genetic testing, it’s funny doctors don’t explain this to you...what do you think?

Need something explained - "Uptake" ??

How to help men find good prostate cancer information

$150 Online Research Opportunity

Prednisone 5mg twice daily ready to toss the bottle on my road

Testicular pain

Saw my Oncologist today, not good news.

PSA

Sounds like BS Prostrate Cancer story

Proteus clinical trial is a good option

alternative medical doctor MD

From ASCO in December - Covid and cancer..

Two Dangerous Words

The case of Guy Tenenbaum

Good meds for bone pain w. metastatic PCa.

If you use mouthwash you might want to consider changing to one that uses thymol as an antiseptic

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