Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

21,035 members • 26,216 posts

All posts for August 2023

Recently diagnosed

Hello everyone Just starting this journey and I must say , its overwhelming all the information to try to remember , wether im making the right treatment...

Hello everyone Just starting this journey and I must say , its overwhelming al...

BillyVolt

•8 months ago

57 Replies

Recently diagnosed

I have recently been diagnosed with stage 4 prostate cancer , waiting chemotherapy

I have recently been diagnosed with stage 4 prostate cancer , waiting chemothera...

BillyVolt

•8 months ago

10 Replies

Progression

My Oncologist says that after 4+ years of ADT, I am showing signs of castrative resistance. He also said that I am currently Low volume, low PSA Oligmatistic....

My Oncologist says that after 4+ years of ADT, I am showing signs of castrative ...

NDJIM

•8 months ago

26 Replies

Want to take advantage of all our features? Just log in!

HELP WANTED

https://pubmed.ncbi.nlm.nih.gov/35946850/ Do any viewers know where I can view , for free, the full text ?

https://pubmed.ncbi.nlm.nih.gov/35946850/ Do any viewers know where I can view ...

inter100

•8 months ago

3 Replies

PSMA scan costs part 3

So in two prior posts, I wrote about what I was told a PSMA scan would cost. Then I wrote about what the hospital charged for the procedure.Now I have the EOB...

So in two prior posts, I wrote about what I was told a PSMA scan would cost. Th...

TJGuy

•8 months ago

20 Replies

Use it or lose it - workout questions.

Ok so up front: Gleason 10. Matters? Dunno..castrate resistant now as aberaterone failed. Been battling this since 2020. I was PSA .12 this time last year,...

Ok so up front: Gleason 10. Matters? Dunno..castrate resistant now as aberater...

DD50

•8 months ago

16 Replies

Thanks and lessons learned

As I complete my course of definitive treatment (MRI guided SBRT and short course ADT) and look forward to positive results, I want to give thanks to the...

As I complete my course of definitive treatment (MRI guided SBRT and short cours...

rosenjpj

•8 months ago

5 Replies

Please consider helping to sustain and expand.

Dear Friends, You are acutely aware of the importance and impact of our work. Hundreds of lives have been helped—some even saved—by our prostate cancer online...

Dear Friends, You are acutely aware of the importance and impact of our work. H...

Darryl

Partner•8 months ago

7 Replies

PSA doubled 3 months after chemo - normal or a concern?

I don’t see Dr Dorff until next week, but had labs drawn today. I’m prepping any questions I might have for the appointment. My PSA has more than doubled in...

I don’t see Dr Dorff until next week, but had labs drawn today. I’m prepping an...

Gl448

•8 months ago

10 Replies

confused

I was diagnosed with pc in 2020. Psa was 4.5 and Gleason 9 disease. MRI said no worrisome bone signalling whatever that means. Had surgery but psa persisted...

I was diagnosed with pc in 2020. Psa was 4.5 and Gleason 9 disease. MRI said n...

Izzysdad

•8 months ago

10 Replies

Armpits? Yeah, armpits.

18 months ADT and my armpit hair has slowly, but finally, gone 😫.True, it's not a dramatic loss compared to the sacred memory of a hard erection! But a...

18 months ADT and my armpit hair has slowly, but finally, gone 😫.True, it's not...

Lewellen

•8 months ago

11 Replies

Pluvitco

Any input on how long it takes for PSA to start dropping if Pluvitco is going to work?

Any input on how long it takes for PSA to start dropping if Pluvitco is going to...

Russ506

•8 months ago

22 Replies

daily diarrhea 3 years after radiation...?

For the past 6 months or so I have had pretty much daily morning gas and diarrhea. I had 37 radiation treatments to my pelvic area in 2019 after having a...

For the past 6 months or so I have had pretty much daily morning gas and diarrhe...

KarkMuzio

•8 months ago

34 Replies

LT and cyberknife

My PSA went down to .5 from 6.0 after cyberknife. Six months later it is back to 1.0 should I be worried?

My PSA went down to .5 from 6.0 after cyberknife. Six months later it is back ...

crony

•8 months ago

15 Replies

EPIC in NYS

wondering if any of our NYS members have had any of the expensive drugs covered under the NYS Elderly pharmaceutical insurance coverage program……I haven’t...

wondering if any of our NYS members have had any of the expensive drugs covered ...

Tommyj2

•8 months ago

6 Replies

Radium 223

I am interested in anyone's experience with radium-223. Thanks, EdinBaltimore

I am interested in anyone's experience with radium-223. Thanks, EdinBaltimore ...

EdinBmore

•8 months ago

22 Replies

from today’s NYT article

Not Everything We Call Cancer Should Be Called Cancer By Laura Esserman and Scott Eggener Dr. Esserman is a surgeon and breast cancer oncologist at the...

Not Everything We Call Cancer Should Be Called Cancer By Laura Esserman and Sc...

Dont08759

•8 months ago

9 Replies

Devtony8 IA gone

Hello All. My husband passed away Saturday morning. He wanted everyone to know he didn't lose the battle, it was a draw. And he'll have that in his obituary....

Hello All. My husband passed away Saturday morning. He wanted everyone to know h...

Devtony8

•8 months ago

76 Replies

What would be next?

From my hx, Gleason 9 RP. PSA went to 0.2 8 months later. PSMA 4 hot spots. IMRT, Lupron and Zytiga. Doing great thus far. MO said if recurrence, Provenge...

From my hx, Gleason 9 RP. PSA went to 0.2 8 months later. PSMA 4 hot spots. I...

rfgh20

•8 months ago

11 Replies

Expericence with Xtandi

I had very good results for over a year with no side effects. It was part of a clinical study. My PSA is rising so time to move on to another drug. Good...

I had very good results for over a year with no side effects. It was part of a ...

PastaMan20

•8 months ago

5 Replies

New to Medicare

Does Medicare part B and D cover all the major PC drug treatments with a minimal co-pay and minimal approvals i.e.Taxotere, Erleada, Xtandi, Pluvicto (Lu177),...

Does Medicare part B and D cover all the major PC drug treatments with a minimal...

Lefty26

•8 months ago

55 Replies

7 minute cancer jab England

https://www.theguardian.com/society/2023/aug/29/patients-in-england-will-be-first-to-access-seven-minute-cancer-jab

https://www.theguardian.com/society/2023/aug/29/patients-in-england-will-be-firs...

Buddy1950

•8 months ago

4 Replies

major progress in sarcoma’s, hopefully adenocarcinomas next

https://www.msn.com/en-us/health/medical/aggressive-cancer-cells-transformed-into-healthy-cells-in-breakthrough/ar-AA1fTAw0?ocid=sapphireappshare

https://www.msn.com/en-us/health/medical/aggressive-cancer-cells-transformed-int...

Nfler

•8 months ago

1 Reply

Lupron Injection Site Pain

Hi all - curious if any of you have had this weirdness. I got my first Lupron injection Aug 17th (3mth 22.5mg i believe) - had the initial soreness at...

Hi all - curious if any of you have had this weirdness. I got my first Lupron...

Yzinger

•8 months ago

15 Replies

Update: Carbo/Etoposide for Dad’s Liver Mets

My dad has his 6th round of Carbo/Etoposide next week. The last 2 rounds have been very difficult on my dad. We thought he was lucky in the beginning as the...

My dad has his 6th round of Carbo/Etoposide next week. The last 2 rounds have be...

antisocialsocialwrkr

•8 months ago

6 Replies

Surgical Castration ?

I have been on Eligard for two months. Prior to starting ADT my Triglycerides were 100 (May 2023). After only two months of Eligard they are thru the roof...

I have been on Eligard for two months. Prior to starting ADT my Triglycerides we...

Bigmaristuff

•8 months ago

20 Replies

What’s the pros and cons of Casodex and Lupron as the only treatment for Gleason 4+5 (9).

I was diagnosed with PC, March 2022. Gleason 4+5 (9). Urologist wanted to do a radical prostatectomy. I chose to change my diet, exercise and lifestyle to a...

I was diagnosed with PC, March 2022. Gleason 4+5 (9). Urologist wanted to do a ...

RealtorDude

•8 months ago

157 Replies

ADT or not?

Hi, i have Stage 4 PCA, Gleason 5+4 so I am on Degaralix and Enzalutamide. I tend to refer to this treatment as ADT as shorthand because to my mind they both...

Hi, i have Stage 4 PCA, Gleason 5+4 so I am on Degaralix and Enzalutamide. I te...

FortyWinks

•8 months ago

5 Replies

fatigue

i have been taking Firmagon for 3 months Since I started am Lucky i have no more pain or very little. My only problem is fatigue . I am supposed to start...

i have been taking Firmagon for 3 months Since I started am Lucky i have no mor...

Raminagrobis

•8 months ago

4 Replies

mCRPC- What is double negative prostate cancer along with the other 4 subtypes.

In research trying to understand my PSMA-negative FDG-positive current scenario I've come across some interesting articles that I thought I'd share with the...

In research trying to understand my PSMA-negative FDG-positive current scenario...

V10fanatic

•8 months ago

3 Replies

Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

All posts for August 2023

Recently diagnosed

Recently diagnosed

Progression

HELP WANTED

PSMA scan costs part 3

Use it or lose it - workout questions.

Thanks and lessons learned

Please consider helping to sustain and expand.

PSA doubled 3 months after chemo - normal or a concern?

confused

Armpits? Yeah, armpits.

Pluvitco

daily diarrhea 3 years after radiation...?

LT and cyberknife

EPIC in NYS

Radium 223

from today’s NYT article

Devtony8 IA gone

What would be next?

Expericence with Xtandi

New to Medicare

7 minute cancer jab England

major progress in sarcoma’s, hopefully adenocarcinomas next

Lupron Injection Site Pain

Update: Carbo/Etoposide for Dad’s Liver Mets

Surgical Castration ?

What’s the pros and cons of Casodex and Lupron as the only treatment for Gleason 4+5 (9).

ADT or not?

fatigue

mCRPC- What is double negative prostate cancer along with the other 4 subtypes.

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