Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

21,001 members • 26,173 posts

All posts for January 2023

PSA rising - When to get a PSMA PET scan?

I'm curious what doctors and researchers are saying about when to do a PSMA PET scan in response to recurrent measurable PSA after ADT. I had an RP in 2015....

I'm curious what doctors and researchers are saying about when to do a PSMA PET ...

Revcat

•1 year ago

24 Replies

Urinary Retention

Hello, my dad (age 61) was diagnosed with stage 4 (Gleason 9) with multiple bone metastases back in September of 2022. We have since found out he is also...

Hello, my dad (age 61) was diagnosed with stage 4 (Gleason 9) with multiple bone...

Juju0713

•1 year ago

23 Replies

Zofigo

I finished my last dose of Xofigo in late December. My most recent bloodwork shows me being slightly anemic ( hemoglobin 10.90) RBC 3.81 and crit 33.6 Any...

I finished my last dose of Xofigo in late December. My most recent bloodwork sh...

Kentucky1

•1 year ago

1 Reply

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Relugolix/Orgovyx with pelvic radiation?

My PSA is increasing once again beyond the detectable level. 9 years ago had RPT. 6 years ago had follow up PBRT only upon a detectable psa rise. See...

My PSA is increasing once again beyond the detectable level. 9 years ago had RP...

bitittle

•1 year ago

16 Replies

Source for 4MU/hymecromone/Cantabiline/4MU-Pro

For years I have been bringing in various medicines (from France and India) with no problem, but recently an order of Cantabiline from Mon Coin Sante in France...

For years I have been bringing in various medicines (from France and India) with...

cigafred

•1 year ago

4 Replies

Further treatment - Update

I had biopsy 03.09.07 (Gleason score 3+7) and prostatectomy 10.11.07. PSA started to rise soon after. Since then I have had radiation and been more or less on...

I had biopsy 03.09.07 (Gleason score 3+7) and prostatectomy 10.11.07. PSA starte...

Jansverr

•1 year ago

10 Replies

Cabazitaxel for dad

Hello all, looking for a bit of advice. My dad’s had 4 sessions of Radium 223 but is feeling generally tired, low energy and is losing weight and new small...

Hello all, looking for a bit of advice. My dad’s had 4 sessions of Radium 223 bu...

SC19

•1 year ago

4 Replies

Post-Lupron, Zytiga, pred, radiation--pain in joints

Hi All! Husband has been off Lupron, Zytiga for about six months now and finally weaned of the small amount of prednisone a couple of months ago. He's been...

Hi All! Husband has been off Lupron, Zytiga for about six months now and finally...

ElizabethMedora

•1 year ago

26 Replies

Just finished my PC radiotherapy sessions, last Wed. My 'diet' an absolute nightmare, after evening meal, toilet duty is top of the list!

Usually after the evening meal, no matter what I eat, my toilet rules the roost! I was treated for adenocarcinoma grade 7, after biopsy last June, 20 sessions....

Usually after the evening meal, no matter what I eat, my toilet rules the roost!...

Adlon57

•1 year ago

27 Replies

First Pluvicto Treatment Today

Got my fist dose of Pluvicto today, everything went well. My current PSA is 243. Hoping to knock that down. The doctor said 80% of their patients have had 50%...

Got my fist dose of Pluvicto today, everything went well. My current PSA is 243....

EdBacon

•1 year ago

24 Replies

Looking for a good Urologist at UCLA or in Los Angeles Area

I am getting some bleeding in my urine. Three times now... always at the end of the stream. My primary care doc is telling I need to see a Urologist. It may...

I am getting some bleeding in my urine. Three times now... always at the end of ...

LARascal

•1 year ago

7 Replies

HBOT for bladder radiation cystitis

Anyone have hyperbaric oxygen for bladder bleeding from radiation, how many sessions and did it work.

Anyone have hyperbaric oxygen for bladder bleeding from radiation, how many sess...

Omalley

•1 year ago

13 Replies

Phase 1b trial shows reformulated Niclosamide has promise for CRPC

Niclosamide in prostate cancer: An inhibitor of AR-V7, a mitochondrial uncoupler, or more? Author links open overlay panelMinasSakellakisabShow...

Niclosamide in prostate cancer: An inhibitor of AR-V7, a mitochondrial uncoupler...

Graham49

•1 year ago

2 Replies

QOL - Even More Handy APC Euphemisms

Every once in a while (24/7) my brain takes a dive into black humor. I know this type of humor isn’t for everyone, but hopefully the rest of you will find a...

Every once in a while (24/7) my brain takes a dive into black humor. I know thi...

Carlosbach

•1 year ago

93 Replies

Keynote trial of Pembrolizumab + Enz+ ADT discontinued

You might have already seen this but for those like me, Just read this news. Disappointing results of trial...

You might have already seen this but for those like me, Just read this news. Dis...

Fightinghard

•1 year ago

4 Replies

how do you afford Lupron and other cancer drugs…even with insurance coverage?

Hey! My husband is covered under UHC and a 3mo injection of Lupron is crazy high and the out of pocket we pay is also very high. I’m in the process of...

Hey! My husband is covered under UHC and a 3mo injection of Lupron is crazy hi...

Newdiag-NC

•1 year ago

74 Replies

Juvicto

is Juvicto covered by insurance USA?

Bobcat64

•1 year ago

5 Replies

agonist versus antagonist issue

Switching to Degarelix or maybe the oral version after 5 months of monthly goserelin implant ? With the evidence on cardio and other risks reduced with using...

Switching to Degarelix or maybe the oral version after 5 months of monthly goser...

SimMartin

•1 year ago

6 Replies

Can I go on 120mg dosage of Xtandi

Warriors, I hope this message finds each and everyone of you well. I have been on Xtandi 160mg since November 2022; it brought my psa from 4.3 to 0.1 or to...

Warriors, I hope this message finds each and everyone of you well. I have been ...

Kanka99

•1 year ago

15 Replies

Small molecule ACK1 inhibitor (R)-9b - third generation AR receptor - clinical trial I in 2023

Technogenesys will start a trial in 2023, be prepared: Thus,, there is an acute need for next generation of inhibitor that can overcome Enzalutamide and...

Technogenesys will start a trial in 2023, be prepared: Thus,, there is an acute...

Hidden

•1 year ago

2 Replies

Resistant Hypertension

Never had hypertension before starting Zytiga. BP and pulse rate. increased. Taking 5mg prednisone a day. MO reluctant to increase. Can't find study to back...

Never had hypertension before starting Zytiga. BP and pulse rate. increased. T...

rfgh20

•1 year ago

7 Replies

G68 PSMA vs Pylarify

If insurance covers both, at the same psa number which scan is more sensitive to locate bone metastases or soft tissue/ lymph node metastases. If there have...

If insurance covers both, at the same psa number which scan is more sensitive to...

wilcoxsaw

•1 year ago

18 Replies

I don’t understand!

On Friday jim was in the hospital for his 3 month internal stent replacement. Blood work all within normal range. It seems like in the last few months he was...

On Friday jim was in the hospital for his 3 month internal stent replacement. Bl...

Hidden

•1 year ago

12 Replies

eating Broccoli Sprouts

I just want to mention Broccoli is good at prevention and also for prostate cancer patience but I recently found out that Broccoli Sprouts has more...

I just want to mention Broccoli is good at prevention and also for prostate c...

Hidden

•1 year ago

120 Replies

Access to Kwon article

Does anybody have access to this article? Or know how I can get hold of it without the big payment? Addressing the need for more therapeutic options in...

Does anybody have access to this article? Or know how I can get hold of it witho...

NickJoy

•1 year ago

10 Replies

OK to switch from 750mg abi without food to 250mg with food?

The program that allowed me to get Zytiga without copay has been discontinued as of 12/31/22. My research into the cost even with Medicare is substantial. I...

The program that allowed me to get Zytiga without copay has been discontinued as...

JazzMan42

•1 year ago

11 Replies

12 years on this journey; just recently found this community

Recent PET scan showed tiny mets to lymph nodes and pelvis. No pain/symptoms as yet, just SEs from Lupron and Xtandi. Mostly slight fatigue, some loss of...

Recent PET scan showed tiny mets to lymph nodes and pelvis. No pain/symptoms as...

LaxMan75

•1 year ago

8 Replies

New to the forum

Hi, I'm new to the forum and looking for suggestions. I've been reading the forum ever since I got my RP back in October. I was really hoping to be done with...

Hi, I'm new to the forum and looking for suggestions. I've been reading the foru...

Hidden

•1 year ago

19 Replies

Who else has Myelodysplastic Syndromes (MDS) in addition to their PCa?

Dx a month ago as having trilineage MDS with Ring Sideroblasts(MDS-RS), somewhere between low and intermediate. Described as bone marrow cancers and a bone...

Dx a month ago as having trilineage MDS with Ring Sideroblasts(MDS-RS), somewher...

SpencerBoy11

•1 year ago

3 Replies

Hello again.

After my first post yesterday here are a few brief details. Diagnosed in February 2021 with a PSA of 37and prescribed a 2 year course of Prostap by 3 monthly...

After my first post yesterday here are a few brief details. Diagnosed in Februa...

Hidden

•1 year ago

9 Replies

Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

All posts for January 2023

PSA rising - When to get a PSMA PET scan?

Urinary Retention

Zofigo

Relugolix/Orgovyx with pelvic radiation?

Source for 4MU/hymecromone/Cantabiline/4MU-Pro

Further treatment - Update

Cabazitaxel for dad

Post-Lupron, Zytiga, pred, radiation--pain in joints

Just finished my PC radiotherapy sessions, last Wed. My 'diet' an absolute nightmare, after evening meal, toilet duty is top of the list!

First Pluvicto Treatment Today

Looking for a good Urologist at UCLA or in Los Angeles Area

HBOT for bladder radiation cystitis

Phase 1b trial shows reformulated Niclosamide has promise for CRPC

QOL - Even More Handy APC Euphemisms

Keynote trial of Pembrolizumab + Enz+ ADT discontinued

how do you afford Lupron and other cancer drugs…even with insurance coverage?

Juvicto

agonist versus antagonist issue

Can I go on 120mg dosage of Xtandi

Small molecule ACK1 inhibitor (R)-9b - third generation AR receptor - clinical trial I in 2023

Resistant Hypertension

G68 PSMA vs Pylarify

I don’t understand!

eating Broccoli Sprouts

Access to Kwon article

OK to switch from 750mg abi without food to 250mg with food?

12 years on this journey; just recently found this community

New to the forum

Who else has Myelodysplastic Syndromes (MDS) in addition to their PCa?

Hello again.

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