Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

22,867 members•28,485 posts

Metastatic posts

Sort posts by:

How long have you live with metastatic(bones,lymf nodes..)prostate cancer?

How long have you live with metastatic pca and with what medication you have managed?

How long have you live with metastatic pca and with what medication you have man...

petrig

•7 days ago

14 Replies

Apalutamide instead of triple therapy for mHSPC

The triple therapy consists of ADT+Abiraterone+Docetaxel and is often used for patients who present with bone metastases. In the PEACE-1 trial this...

The triple therapy consists of ADT+Abiraterone+Docetaxel and is often used for p...

GP24

•10 days ago

63 Replies

Tempus testing

Has anyone had Tempus testing to get DNA profile on their cancer? FIL is having this done after running out of treatment options post-Pluvicto with PSAs now...

Has anyone had Tempus testing to get DNA profile on their cancer? FIL is having ...

wontrememberthis

•10 days ago

6 Replies

Want to take advantage of all our features? Just log in!

Reclast to the rescue

After disappointing results on a second bone density scan a year ago, I decided to go with an infusion of Zoledronic Acid (Reclast) 5 mg/100 mL 5 MG/100ML...

After disappointing results on a second bone density scan a year ago, I decided ...

NewPotatoCaboose

•1 month ago

3 Replies

Is whack-a-mole for a vertebral tumor (that is responsible for recent PSA increases) wise, when the vertebra isn't causing pain?

I am age 66. had whack-a-mole radiation about 2,5 yrs ago (yo my left acetabulum/hip) when PSA began to rise after 10 -11 yrs on ADT (Lupron for 12 and...

I am age 66. had whack-a-mole radiation about 2,5 yrs ago (yo my left acetabul...

Skilover

•2 months ago

7 Replies

My Dad passed away Sept 3

679 days ago, I sat with my father in the ER at the Phoenix VA, trying to understand his escalating, unrelenting back pain. Five hours later, we walked out...

679 days ago, I sat with my father in the ER at the Phoenix VA, trying to unders...

lgutman

•4 months ago

84 Replies

I'm happy to have advanced prostate cancer.

...well, rather than having brain cancer, or lung cancer or pancreatic cancer... In contrast, CaP is the one to choose. Oh.... we didn't choose? Most likely...

...well, rather than having brain cancer, or lung cancer or pancreatic cancer......

Spinel_Cutter

•5 months ago

23 Replies

Mushrooms use in PCa

Hello. we are new to this disease and just looking for answers. My husband is 68 and diagnosed with Advanced Prostate Cancer. I am a RN. We are both retired...

Hello. we are new to this disease and just looking for answers. My husband is 6...

SweetHomeAlaNana

•5 months ago

32 Replies

bone Mets!

it’s here. After 11 1/2 years on zoladex injections and Xtandi followed by Nubeqa, husband had a PET scan that shows numerous spots on spine, breastbone and...

it’s here. After 11 1/2 years on zoladex injections and Xtandi followed by Nubeq...

Nubeqa22

•5 months ago

75 Replies

Looking for anyone who has done Dendritic Cell Therapy in India?

hi! My dad was diagnosed with PCA in Feb 2024 and has been on doublet therapy. He has high volume bone mets with no symptoms. Currently he is on zytiga and...

hi! My dad was diagnosed with PCA in Feb 2024 and has been on doublet therapy. H...

Justgettingitright

•5 months ago

23 Replies

first Pluvicto yesterday

So tired I could hardly get out of bed. I am also having a hard tome breathing the last couple weeks. Going to a cardiologist Tuesday. But between that and...

So tired I could hardly get out of bed. I am also having a hard tome breathing ...

crony

•9 months ago

1 Reply

how to reduce testosterone after orchiectomy

NOTE : An orchiectomy is a surgical procedure to remove one or both testicles. Posting here to learn from others. Questions is How to reduce testosterone...

NOTE : An orchiectomy is a surgical procedure to remove one or both testicles. ...

God_Loves_Me

•9 months ago

5 Replies

Are you on Xtandi (Enzalutamide), and reported the side effects of low sodium?

MO, Primary care, and other nurses are working hard to rollout why my sodium level is low (128) last. My first guess was lactulose. I stopped for one week...

MO, Primary care, and other nurses are working hard to rollout why my sodium lev...

God_Loves_Me

•10 months ago

16 Replies

What is the accuracy of an immediate PSM PET scan after SBRT Treatment ?

I finished my SBRT Treatment, and now MO ordered a PSMA PET scan that's less than one week. What's the accuracy of a PSMA PET Scan immediately after SBRT...

I finished my SBRT Treatment, and now MO ordered a PSMA PET scan that's less th...

God_Loves_Me

•10 months ago

21 Replies

Low Sodium Level

Hello Seeing low sodium levels in blood work, and they believe it is because of the cancer cells. I do take salt tablets and increase salt in food and...

Hello Seeing low sodium levels in blood work, and they believe it is because ...

God_Loves_Me

•10 months ago

5 Replies

Am I ready for the PSA test during SBRT?

Most of the lesions show no increased activity. PSA before treatment was : 14.45 Treatment has already been done for the following two lesions....

Most of the lesions show no increased activity. PSA before treatment was : 14...

God_Loves_Me

•10 months ago

1 Reply

Diagnosed under 55

I’m looking specifically for men and partners of men who were diagnosed with de novo stage four prostate cancer at their initial diagnosis. The treatments are...

I’m looking specifically for men and partners of men who were diagnosed with de...

Vegasborn

•11 months ago

16 Replies

Anyone here? switched to Nubeqa from Xtandi

I wanted to know if anyone here in this group tried Xtandi which stopped responding after few months and switched to Nubeqa and it worked and showed success.

I wanted to know if anyone here in this group tried Xtandi which stopped respond...

God_Loves_Me

•11 months ago

25 Replies

What's different between Xtandi vs NUBEQA® (darolutamide) vs ERLEADA® (apalutamide)

Hello Everyone, zytiga didn’t work so move to xtandi After two months, Xtandi did not work, and PSA started going up; I suggested to the doctor to prescribe...

Hello Everyone, zytiga didn’t work so move to xtandi After two months, Xtandi...

God_Loves_Me

•11 months ago

19 Replies

Failing ADT

Hi- I thought I would seek some advice before I meet with my MO tomorrow morning. I have responded well to treatment of metPC since my dx 11+ years ago. About...

Hi- I thought I would seek some advice before I meet with my MO tomorrow morning...

jfoesq

•1 year ago

29 Replies

Prostate-as-"PCa Factory" - Reasons for Removal?

While reading the bio of forum member, I noted the following advantage to radical prostatectomy (paraphrased):"No more PCa factory" As I have written in...

While reading the bio of forum member, I noted the following advantage to radica...

JohnInTheMiddle

•1 year ago

14 Replies

Erleada & ADT

just started Erleada with my ADY, I enjoy pot daily, anyone else smoke pot and are on the above. No side effects yet!!!

just started Erleada with my ADY, I enjoy pot daily, anyone else smoke pot and a...

Leaffan57

•1 year ago

27 Replies

experience with pain from bone mets

My husband Luke (64 yrs) is a patient at Mt Sinai for prostate cancer stage four that has spread to the bones. We tried Pluvicto earlier this year but it...

My husband Luke (64 yrs) is a patient at Mt Sinai for prostate cancer stage four...

Chris_Ali

•1 year ago

23 Replies

PSMA RESULTS

I’m five years Post surgery including removal of prostate & lymph nodes. Gleason 8 with Intraductal. Sepsis, DVT/PE after surgery which left me with chronic...

I’m five years Post surgery including removal of prostate & lymph nodes. Gleaso...

Bcgkelly

•1 year ago

4 Replies

Has anyone had Peritoneal from Prostate Cancer ?

PSA on the rise and fluid observed on Mild Peritoneal thickening and uptake on PSMA Pet scan.

PSA on the rise and fluid observed on Mild Peritoneal thickening and uptake on P...

Drum55

•1 year ago

3 Replies

Anyone have a success story with Dr. Gary Onik?

Hello, Have any of you had success being treated by Dr. Gary Onik metastatic stage 4 prostate cancer with immuno and cryotherapy? Would greatly appreciate...

Hello, Have any of you had success being treated by Dr. Gary Onik metastatic s...

Jgk914

•1 year ago

9 Replies

phase 2 study for mCRPC

https://www.uclahealth.org/clinical-trials/study-two-dose-levels-vobramitamab-duocarmazine-participants For people previously treated with apalutamide,...

https://www.uclahealth.org/clinical-trials/study-two-dose-levels-vobramitamab-du...

Maxone73

•1 year ago

Be the first to reply

Docetaxel Re challenge

dx 2017 psa 489. Did Chaarted trials 2019 started Zytiga. 2021 oriechtomy/discontinuation of Lupron. 2023 Zytiga began to fail. Psa rising. Did Radoum 223....

dx 2017 psa 489. Did Chaarted trials 2019 started Zytiga. 2021 oriechtomy/disco...

mdiaz76

•1 year ago

4 Replies

Small Cell Carcinoma Prostate Cancer Help

My brother-in-law has been diagnosed with small cell carcinoma prostate cancer, a very rare and lethal diagnosis of prostate cancer. He has been treated with...

My brother-in-law has been diagnosed with small cell carcinoma prostate cancer, ...

Carins

•1 year ago

8 Replies

What's next for crumbling bones when Zytiga was not tolerable?

My dad just stopped his Zytiga due to nausea, and other intolerable side effects. He just got his first two shots that they give for osteoporosis...due to a...

My dad just stopped his Zytiga due to nausea, and other intolerable side effects...

dadsdrdawn

•1 year ago

12 Replies

Write a post or ask a question

Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

Metastatic posts

How long have you live with metastatic(bones,lymf nodes..)prostate cancer?

Apalutamide instead of triple therapy for mHSPC

Tempus testing

Reclast to the rescue

Is whack-a-mole for a vertebral tumor (that is responsible for recent PSA increases) wise, when the vertebra isn't causing pain?

My Dad passed away Sept 3

I'm happy to have advanced prostate cancer.

Mushrooms use in PCa

bone Mets!

Looking for anyone who has done Dendritic Cell Therapy in India?

first Pluvicto yesterday

how to reduce testosterone after orchiectomy

Are you on Xtandi (Enzalutamide), and reported the side effects of low sodium?

What is the accuracy of an immediate PSM PET scan after SBRT Treatment ?

Low Sodium Level

Am I ready for the PSA test during SBRT?

Diagnosed under 55

Anyone here? switched to Nubeqa from Xtandi

What's different between Xtandi vs NUBEQA® (darolutamide) vs ERLEADA® (apalutamide)

Failing ADT

Prostate-as-"PCa Factory" - Reasons for Removal?

Erleada & ADT

experience with pain from bone mets

PSMA RESULTS

Has anyone had Peritoneal from Prostate Cancer ?

Anyone have a success story with Dr. Gary Onik?

phase 2 study for mCRPC

Docetaxel Re challenge

Small Cell Carcinoma Prostate Cancer Help

What's next for crumbling bones when Zytiga was not tolerable?

Search posts

Pinned Posts

Latest poll

Aware of our online community's impact, resources & support—please consider helping sustain & expand our group. https://malecare.org/donate

Topics

Archive