Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

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first Pluvicto yesterday

So tired I could hardly get out of bed. I am also having a hard tome breathing the last couple weeks. Going to a cardiologist Tuesday. But between that and...

So tired I could hardly get out of bed. I am also having a hard tome breathing ...

crony

•9 days ago

1 Reply

how to reduce testosterone after orchiectomy

NOTE : An orchiectomy is a surgical procedure to remove one or both testicles. Posting here to learn from others. Questions is How to reduce testosterone...

NOTE : An orchiectomy is a surgical procedure to remove one or both testicles. ...

God_Loves_Me

•14 days ago

5 Replies

Are you on Xtandi (Enzalutamide), and reported the side effects of low sodium?

MO, Primary care, and other nurses are working hard to rollout why my sodium level is low (128) last. My first guess was lactulose. I stopped for one week...

MO, Primary care, and other nurses are working hard to rollout why my sodium lev...

God_Loves_Me

•21 days ago

16 Replies

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What is the accuracy of an immediate PSM PET scan after SBRT Treatment ?

I finished my SBRT Treatment, and now MO ordered a PSMA PET scan that's less than one week. What's the accuracy of a PSMA PET Scan immediately after SBRT...

I finished my SBRT Treatment, and now MO ordered a PSMA PET scan that's less th...

God_Loves_Me

•24 days ago

19 Replies

Low Sodium Level

Hello Seeing low sodium levels in blood work, and they believe it is because of the cancer cells. I do take salt tablets and increase salt in food and...

Hello Seeing low sodium levels in blood work, and they believe it is because ...

God_Loves_Me

•1 month ago

5 Replies

Am I ready for the PSA test during SBRT?

Most of the lesions show no increased activity. PSA before treatment was : 14.45 Treatment has already been done for the following two lesions....

Most of the lesions show no increased activity. PSA before treatment was : 14...

God_Loves_Me

•2 months ago

1 Reply

Diagnosed under 55

I’m looking specifically for men and partners of men who were diagnosed with de novo stage four prostate cancer at their initial diagnosis. The treatments are...

I’m looking specifically for men and partners of men who were diagnosed with de...

Vegasborn

•2 months ago

16 Replies

Anyone here? switched to Nubeqa from Xtandi

I wanted to know if anyone here in this group tried Xtandi which stopped responding after few months and switched to Nubeqa and it worked and showed success.

I wanted to know if anyone here in this group tried Xtandi which stopped respond...

God_Loves_Me

•2 months ago

20 Replies

What's different between Xtandi vs NUBEQA® (darolutamide) vs ERLEADA® (apalutamide)

Hello Everyone, zytiga didn’t work so move to xtandi After two months, Xtandi did not work, and PSA started going up; I suggested to the doctor to prescribe...

Hello Everyone, zytiga didn’t work so move to xtandi After two months, Xtandi...

God_Loves_Me

•3 months ago

19 Replies

Failing ADT

Hi- I thought I would seek some advice before I meet with my MO tomorrow morning. I have responded well to treatment of metPC since my dx 11+ years ago. About...

Hi- I thought I would seek some advice before I meet with my MO tomorrow morning...

jfoesq

•3 months ago

27 Replies

Prostate-as-"PCa Factory" - Reasons for Removal?

While reading the bio of forum member, I noted the following advantage to radical prostatectomy (paraphrased):"No more PCa factory" As I have written in...

While reading the bio of forum member, I noted the following advantage to radica...

JohnInTheMiddle

•3 months ago

10 Replies

Erleada & ADT

just started Erleada with my ADY, I enjoy pot daily, anyone else smoke pot and are on the above. No side effects yet!!!

just started Erleada with my ADY, I enjoy pot daily, anyone else smoke pot and a...

Leaffan57

•3 months ago

27 Replies

experience with pain from bone mets

My husband Luke (64 yrs) is a patient at Mt Sinai for prostate cancer stage four that has spread to the bones. We tried Pluvicto earlier this year but it...

My husband Luke (64 yrs) is a patient at Mt Sinai for prostate cancer stage four...

Chris_Ali

•5 months ago

23 Replies

PSMA RESULTS

I’m five years Post surgery including removal of prostate & lymph nodes. Gleason 8 with Intraductal. Sepsis, DVT/PE after surgery which left me with chronic...

I’m five years Post surgery including removal of prostate & lymph nodes. Gleaso...

Bcgkelly

•6 months ago

4 Replies

Has anyone had Peritoneal from Prostate Cancer ?

PSA on the rise and fluid observed on Mild Peritoneal thickening and uptake on PSMA Pet scan.

PSA on the rise and fluid observed on Mild Peritoneal thickening and uptake on P...

Drum55

•6 months ago

3 Replies

Anyone have a success story with Dr. Gary Onik?

Hello, Have any of you had success being treated by Dr. Gary Onik metastatic stage 4 prostate cancer with immuno and cryotherapy? Would greatly appreciate...

Hello, Have any of you had success being treated by Dr. Gary Onik metastatic s...

Jgk914

•6 months ago

9 Replies

phase 2 study for mCRPC

https://www.uclahealth.org/clinical-trials/study-two-dose-levels-vobramitamab-duocarmazine-participants For people previously treated with apalutamide,...

https://www.uclahealth.org/clinical-trials/study-two-dose-levels-vobramitamab-du...

Maxone73

•7 months ago

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Docetaxel Re challenge

dx 2017 psa 489. Did Chaarted trials 2019 started Zytiga. 2021 oriechtomy/discontinuation of Lupron. 2023 Zytiga began to fail. Psa rising. Did Radoum 223....

dx 2017 psa 489. Did Chaarted trials 2019 started Zytiga. 2021 oriechtomy/disco...

mdiaz76

•7 months ago

4 Replies

Small Cell Carcinoma Prostate Cancer Help

My brother-in-law has been diagnosed with small cell carcinoma prostate cancer, a very rare and lethal diagnosis of prostate cancer. He has been treated with...

My brother-in-law has been diagnosed with small cell carcinoma prostate cancer, ...

Carins

•8 months ago

8 Replies

What's next for crumbling bones when Zytiga was not tolerable?

My dad just stopped his Zytiga due to nausea, and other intolerable side effects. He just got his first two shots that they give for osteoporosis...due to a...

My dad just stopped his Zytiga due to nausea, and other intolerable side effects...

dadsdrdawn

•9 months ago

12 Replies

Is anyone else having problems getting Lu-177 PSMA funding from AXA in the UK?

Hi, AXA have a code for Lu-177 PSMA therapy but still refuse funding. It is at odds with AXA's advertising. In refusing funding AXA cites that 'it is not...

Hi, AXA have a code for Lu-177 PSMA therapy but still refuse funding. It is at...

Tonybee70

•10 months ago

5 Replies

Worry: Running Bounces Degarelix Stomach Depot

I'm on Degarelix/Firmagon for a year as part of triplet therapy for my mHSPC. I want to stay on this monthly injection because I prefer the "agonist" vs the...

I'm on Degarelix/Firmagon for a year as part of triplet therapy for my mHSPC. I ...

JohnInTheMiddle

•10 months ago

15 Replies

anal leakage and constipation

my husband has aggressive metastatic prostate cancer Gleason 8 with mets to lymph nodes, bladder, and pelvic bones and hips. He is scheduled to start triplet...

my husband has aggressive metastatic prostate cancer Gleason 8 with mets to lymp...

Jojoteacher

•10 months ago

11 Replies

My bone scan results compared to previous PET/CT

I am posting a screenshot of the findings from a NM bone scan I had it done last Monday. I can read what it says and will be seeing Onco next week. In the...

I am posting a screenshot of the findings from a NM bone scan I had it done last...

Blueribbon63

•11 months ago

3 Replies

Gleason Score 5+5

My gleason score is 5+5 =10. I watched Dr.Scholtz's talk who mentioned 5+5 case is rare and I happened to be one of them. My problems are like a full truck and...

My gleason score is 5+5 =10. I watched Dr.Scholtz's talk who mentioned 5+5 case ...

Formosan

•1 year ago

26 Replies

Chemo vs Xofigo

I am seven years from diagnosis (PSA 1,666). Still have my prostate. Firmagon brought PSA to undetectable in five months. After continuous Eligard, Xtandi,...

I am seven years from diagnosis (PSA 1,666). Still have my prostate. Firmagon ...

fsiefert

•1 year ago

6 Replies

Clinical trials for ATM gene

Have ATM gene and castrate resistant. Stage 4b lymph nodes spread. Anyone have any luck with any clinical trials for ATM gene? Have already had chemo and...

Have ATM gene and castrate resistant. Stage 4b lymph nodes spread. Anyone have ...

mysticmini

•1 year ago

2 Replies

Questions for My Husband's Doctor

We met with my husband's managing oncologist today and I asked these questions - which, thanks to this forum I knew to ask! It seemed only right that I share...

We met with my husband's managing oncologist today and I asked these questions -...

Tinuriel

•1 year ago

21 Replies

Stage 4 ~ Now Losing Blood Somewhere

Hi, my husband was diagnosed stage 4 with lymph node and bladder neck margins involvement 3/2018. He has done chemo, radiation, and hormone therapy over the...

Hi, my husband was diagnosed stage 4 with lymph node and bladder neck margins in...

drb1966

•1 year ago

7 Replies

Triplet Therapy Failed. Now what?

I've posted about my father here before - you can check my post history for my older posts. To keep it brief: 60 years old, diagnosed with metastatic prostate...

I've posted about my father here before - you can check my post history for my o...

Worriedson9

•1 year ago

14 Replies

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Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

Metastatic posts

first Pluvicto yesterday

how to reduce testosterone after orchiectomy

Are you on Xtandi (Enzalutamide), and reported the side effects of low sodium?

What is the accuracy of an immediate PSM PET scan after SBRT Treatment ?

Low Sodium Level

Am I ready for the PSA test during SBRT?

Diagnosed under 55

Anyone here? switched to Nubeqa from Xtandi

What's different between Xtandi vs NUBEQA® (darolutamide) vs ERLEADA® (apalutamide)

Failing ADT

Prostate-as-"PCa Factory" - Reasons for Removal?

Erleada & ADT

experience with pain from bone mets

PSMA RESULTS

Has anyone had Peritoneal from Prostate Cancer ?

Anyone have a success story with Dr. Gary Onik?

phase 2 study for mCRPC

Docetaxel Re challenge

Small Cell Carcinoma Prostate Cancer Help

What's next for crumbling bones when Zytiga was not tolerable?

Is anyone else having problems getting Lu-177 PSMA funding from AXA in the UK?

Worry: Running Bounces Degarelix Stomach Depot

anal leakage and constipation

My bone scan results compared to previous PET/CT

Gleason Score 5+5

Chemo vs Xofigo

Clinical trials for ATM gene

Questions for My Husband's Doctor

Stage 4 ~ Now Losing Blood Somewhere

Triplet Therapy Failed. Now what?

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