Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

21,020 members • 26,201 posts

All posts for June 2021

July 1, starting at 1PM New York time. Virtual Prostate Cancer Patient Conference For Veterans and Active Duty Military.

July 1, starting at 1PM New York time. Virtual Prostate Cancer Patient Conference For Veterans and Active Duty Military. Everyone is invited to watch. Click...

July 1, starting at 1PM New York time. Virtual Prostate Cancer Patient Conferenc...

Darryl

Partner•3 years ago

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Getting Medicare to pay the VA

not sure if anyone on this forum has had this experience but I’m asking anyway. My hubby only has prescription coverage at the VA, based on their evaluation of...

not sure if anyone on this forum has had this experience but I’m asking anyway. ...

Madbeach

•3 years ago

6 Replies

Liver problems with Zytiga

An aximum scan picked up three cancerous lymph nodes in my pelvic area. I got a 3 month injection of Lupron on 5/18 and started 1000 mg generic Zytiga on 5/26....

An aximum scan picked up three cancerous lymph nodes in my pelvic area. I got a ...

ekirkland

•3 years ago

15 Replies

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Enzalutamide - Side Effects

Hi gang, So after a self administered cycle of BAT therapy at home for three months my Dad begun Enzalutamide under the care of his oncologist. PSA below and...

Hi gang, So after a self administered cycle of BAT therapy at home for three mon...

taylor123

•3 years ago

1 Reply

Zytiga with hydrocortison

Dear all, My dad just took a test of cortisol level at 7am and the result’s 1.5nmol/L (the lab’s threshold’s 133-537nmol/L.). His doctor asked him take...

Dear all, My dad just took a test of cortisol level at 7am and the result’s 1.5n...

Hidden

•3 years ago

18 Replies

Muscadine Grapes

Anyone has experience with muscadine grape skin capsules for prostate cancer.

JPM912

•3 years ago

8 Replies

Colonoscopy/anesthesia/Xtandi

Sorry if this is a repeat question. My hubby has started his 14 radiation to bone met in left iliac(hip area) this week. He will also be starting the Xtandi...

Sorry if this is a repeat question. My hubby has started his 14 radiation to bon...

Madbeach

•3 years ago

3 Replies

What to do next?

My Pop had a Axumin Pet Scan earlier this week, and was supposed to have his second Xofigo injection which was cancelled because of results/progression....

My Pop had a Axumin Pet Scan earlier this week, and was supposed to have his sec...

GoNapoli

•3 years ago

13 Replies

Prostrate awareness

Hi fellow warriors. As an over 1 year apca survivor, I wanted to ask the group what I can do to “give back” as I thought of conducting my own prostrate...

Hi fellow warriors. As an over 1 year apca survivor, I wanted to ask the group ...

fmenninger

•3 years ago

13 Replies

Can anyone recommend a lightweight backpack for my husband?

Jim is planning a 3-day backpacking trip with our son and grandson. The shoulder straps on his current backpack are rubbing on his port. Any suggestions...

Jim is planning a 3-day backpacking trip with our son and grandson. The shoulde...

GrizzlyMama

•3 years ago

12 Replies

Try a Little Dexie !

If you are taking Prednisone for any reason see if your doctor will substitute Dexamethasone instead. they perform the same function but the Dexamethasone...

If you are taking Prednisone for any reason see if your doctor will substitute D...

Fairwind

•3 years ago

9 Replies

Lu-PSMA-617

How can PSMA targeted therapy be termed “ground breaking” when it offers only four more months of life compared to the control? I’ve read of those who travel...

How can PSMA targeted therapy be termed “ground breaking” when it offers only fo...

Ecl875

•3 years ago

38 Replies

Enzalutamide to reduce urination issues?

My brother tells me he's taking enzalutamide to reduce his nighttime bathroom trips. I responded: "I’m surprised to hear this. Enzalutamide is an androgen...

My brother tells me he's taking enzalutamide to reduce his nighttime bathroom tr...

Horse12888

•3 years ago

3 Replies

What is this miracle treatment of which the New York Times speaks today? Clue: it starts with LU

https://www.nytimes.com/2021/06/24/health/prostate-cancer-radiotherapy.html Oh. I eagerly read through to see what magical new treatment awaits our advanced...

https://www.nytimes.com/2021/06/24/health/prostate-cancer-radiotherapy.html Oh. ...

spouse21

•3 years ago

21 Replies

Lupron Break!

Just like to put this out there for those that went metistatic and is still taking lupron. 1 year ago i stopped getting my six month injection of lupron...

Just like to put this out there for those that went metistatic and is still taki...

Tjc1

•3 years ago

28 Replies

Side effects while on erleada

Has anyone started having seizures while on erleada, had been on 3 pills instead standard 4because of side effects, was increased back to 4. Have been having...

Has anyone started having seizures while on erleada, had been on 3 pills instead...

Joecarver

•3 years ago

15 Replies

My journey with PCa

My journey started with yearly PSA test. 4.3 to 3.9 up to 4.5 at the end of 2019. At that point my urologist thought he felt something so did 6 biopsies. 3 of...

My journey started with yearly PSA test. 4.3 to 3.9 up to 4.5 at the end of 2019...

lhall2

•3 years ago

10 Replies

Blood test results after 1st LU-177 infusion

Just got back the blood test results...PSA rose marginally from 3.92 to 4.08...CEA has also increased from 8.8 to 12.3. The rest of the kidney, liver, blood...

Just got back the blood test results...PSA rose marginally from 3.92 to 4.08...C...

bellyhappy

•3 years ago

14 Replies

Methionine restriction

New (anecdotal) paper below [1]. Chronic Treatment of an Advanced Prostate-cancer Patient With Oral Methioninase Resulted in Long-term Stabilization of...

New (anecdotal) paper below [1]. Chronic Treatment of an Advanced Prostate-cance...

pjoshea13

•3 years ago

8 Replies

18F-Fluciclovine PET & COVID Vaccine

Interesting anecdote from MD Anderson. 18F-Fluciclovine-Avid Reactive Axillary Lymph Nodes After COVID-19 Vaccination [1] -Patrick [1]...

Interesting anecdote from MD Anderson. 18F-Fluciclovine-Avid Reactive Axillary L...

pjoshea13

•3 years ago

2 Replies

Earleada Rash

Does anyone here have experience with the "erleada rash". I went through it some time ago and my skin has remained itchy, rough,thick, leathery and wrinkly....

Does anyone here have experience with the "erleada rash". I went through it some...

spotsdad

•3 years ago

3 Replies

Why not use Chemo early?

I am a G9, PCa in my lymph nodes and probably elsewhere. PCa is definitely recurrent. I have had RP, RT, and almost 8 years of ADT. Met's at this point don't...

I am a G9, PCa in my lymph nodes and probably elsewhere. PCa is definitely recu...

alephnull

•3 years ago

11 Replies

6 Months wait to see an ENT specialist

I recently posted my issues with my throat I called the emergency number only to be told it is now a 6 month wait My referral was made on the 21st of March so...

I recently posted my issues with my throat I called the emergency number only to...

Bodysculpture

•3 years ago

3 Replies

When does rising PSA require further treatment.

2010 robotic prostatectomy at City of Hope, 2018 IMRT 3 months ADT at Johns Hopkins. Last 6 PSA tests at 6 month intervals: .03, .04, .04, .05, .02 and last...

2010 robotic prostatectomy at City of Hope, 2018 IMRT 3 months ADT at Johns Hop...

Coupe31

•3 years ago

6 Replies

CRISPR

https://www.medpagetoday.com/neurology/generalneurology/93314?xid=nl_covidupdate_2021-06-28&eun=g1876633d0r&utm_source=Sailthru&utm_medium=email&utm_campaign=Da

https://www.medpagetoday.com/neurology/generalneurology/93314?xid=nl_covidupdate...

Spyder54

•3 years ago

5 Replies

Hmm... Wild Lettuce Capsules for pain??

OK, here is the pitch: Wild Lettuce Capsules for Pain 1200mg with 120ct. Natural Relief for Sore Muscles, Joints, Swelling. Aids Improved Sleep, Safe...

OK, here is the pitch: Wild Lettuce Capsules for Pain 1200mg with 120ct. Natural...

westof

•3 years ago

69 Replies

Latest test results

My father (who is on ADT vacation since January, Gleason 9) test results got back. I have been so nervous about this that I have almost thrown up maybe twenty...

My father (who is on ADT vacation since January, Gleason 9) test results got bac...

TheTopBanana

•3 years ago

15 Replies

Mindset is everything.

Hello, My name is Joe I am a prostate cancer warrior was diagnosed in February Gleason 9 PSA 125 have been on ADT for 1 month PSA is now 3.9

Hello, My name is Joe I am a prostate cancer warrior was diagnosed in February G...

joeydashoe

•3 years ago

14 Replies

HIGH INITIAL PSA QUESTIONS

HIGH PSA values Hi Folks – and fellow travelers. I have been wondering, and reading the recent post from Canton44 about low PSA has prompted me to seek your...

HIGH PSA values Hi Folks – and fellow travelers. I have been wondering, and read...

Stoneartist

•3 years ago

21 Replies

Amg160 did not work

I posted a few days ago about my husband’s side effects of amg 160. He started having upper spine and hip pain. They did a mri and his cancer has spread....

I posted a few days ago about my husband’s side effects of amg 160. He star...

Birdfeed

•3 years ago

7 Replies

Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

All posts for June 2021

July 1, starting at 1PM New York time. Virtual Prostate Cancer Patient Conference For Veterans and Active Duty Military.

Getting Medicare to pay the VA

Liver problems with Zytiga

Enzalutamide - Side Effects

Zytiga with hydrocortison

Muscadine Grapes

Colonoscopy/anesthesia/Xtandi

What to do next?

Prostrate awareness

Can anyone recommend a lightweight backpack for my husband?

Try a Little Dexie !

Lu-PSMA-617

Enzalutamide to reduce urination issues?

What is this miracle treatment of which the New York Times speaks today? Clue: it starts with LU

Lupron Break!

Side effects while on erleada

My journey with PCa

Blood test results after 1st LU-177 infusion

Methionine restriction

18F-Fluciclovine PET & COVID Vaccine

Earleada Rash

Why not use Chemo early?

6 Months wait to see an ENT specialist

When does rising PSA require further treatment.

CRISPR

Hmm... Wild Lettuce Capsules for pain??

Latest test results

Mindset is everything.

HIGH INITIAL PSA QUESTIONS

Amg160 did not work

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