positive newx

[Teddypeppalola]

hi everyone from windy raining SE England! I had my 2nd ct scan and found out the tumours were now so small they are unmeasurable! To say I’m over the moon is an understatement! Only been 6 months on Ibrance And Letrozole with little side effects apart from the obvious fatigue, I can live with that to see my grandkids grow up! So I am staying on the same medication until it stops doing its job! Wishing you all well xxxx

[jltorcz]

I am very happy for you. I, too, had good results today from my PetScan on Monday. I am on Kisqali, 400 mg. And am fine on it. My doctor still concerned about my neutrophils but when I give my self an extra two days off, they go up significantly. So I am hoping to convince my oncologist, this is better than reducing the dosage.

[Teddypeppalola in reply to jltorcz]

Thankyou! And I do hope you convince your oncologist xx

[Hazelgreen in reply to jltorcz]

Kisqali stays in the body for 8 days, but you are reducing the amount there each time you take an extra two days off. Why not take every weekend off, and you may find (as I did) that your neutrophils will settle down to the normal range. There is NO research that indicates it is better to put more of a drug in the body when a smaller dose works. Listen to your doctor! It seems to me that she or he wants what is best for your overall health.

[jltorcz in reply to Hazelgreen]

yes, I know you do the 5 days on and weekends off. I will see how this cycle goes on 400 mg and starting for first time at 8 th day. My doctor wants a 2 week bloodwork check.

My PetScan actually looked stable and a little better with 3 months of about 8 or 9 days off, mostly because of a .covid interruption and some timing issues. But we will see. I really don’t wnt to drop to the 200 mg dosage and I will probably push keeping this dosage .

[kiwi67]

Fantastic news, and longgggggggg may it last.

[Teddypeppalola in reply to kiwi67]

Thankyou xxx

[HelenWi]

So happy for you! Enjoy the holidays and grandchildren.

[Teddypeppalola in reply to HelenWi]

Thankyou xx

[bikebabe]

that’s great news.

[Teddypeppalola in reply to bikebabe]

Thankyou xx

[Artesa]

Fantastic news! So happy for you!!!

[Beryl71]

Great news. I lasted about three and a half years, then had an upward trend, was moved to ibrance and faslodex and had decrease and improvements like never before. So you have every reason to be very positive!Enjoy your grandkids! X

[Teddypeppalola in reply to Beryl71]

Thankyou xxx

[love2golfwell]

Congratulations on your great scan results! Hope these medications continue to work for you for a long time so that you can spend many wonderful years with your grandkids. Sendings hugs and prayers.

[Teddypeppalola in reply to love2golfwell]

thabkyou

[Teddypeppalola in reply to love2golfwell]

Thankyou xx

[Kcap430]

Wonderful news!

[Teddypeppalola in reply to Kcap430]

Thankyou xx

[Justme153]

WONDERFUL!! SO HAPPY FOR YOU!!😊

[Teddypeppalola in reply to Justme153]

Thankyou xx

[Justme153]

WONDERFUL!! SO HAPPY FOR YOU!!😊

[Totheriver]

Great news💕

[Teddypeppalola in reply to Totheriver]

Thankyou xx

[Adele_Julia]

wonderful news ! Congratulations

[Teddypeppalola in reply to Adele_Julia]

Thabkyou xxx

[MaryCos]

YAYYYYY!!!!! (I've been on Ibrance and Letrozole for 4 years now, and I have been NEAD for the last two years. Wonder drugs, if they work for you!) Wishing you a good long run on these meds!

[Teddypeppalola in reply to MaryCos]

Wow that’s wonderful news and gives me so much hope! Thankyou for sharing! Hope it continues for you xxx

[MaryCos in reply to Teddypeppalola]

Hold onto that hope! Some of us can stay on these meds for a LONG time! xoxo

[Teddypeppalola in reply to MaryCos]

Oh Thankyou I am trying to be hopeful xxx

[Figletf]

Awesome news💕

[Bettybuckets]

love to hear your good news!

[mariootsi]

That's amazing news

[Lulis]

Wonderful news!

[mudakurag]

Great news!