Falsodex: I recently changed from... - SHARE Metastatic ...

SHARE Metastatic Breast Cancer

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Falsodex

Frenchgirl69 profile image
13 Replies

I recently changed from Ibrance and Letrezole to Ibrance and Falsodex. I has my first injection of Falsodex on October 29th. Does anyone know how long it will be before I know if Falsodex is working? I have Mets to the liver only.

Camille Keller

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Frenchgirl69 profile image
Frenchgirl69
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13 Replies
Nocillo profile image
Nocillo

I suppose you will have to wait until your doctor wants a scan to see if it’s working. Not sure what time period they wait for.

Fiercefighter13 profile image
Fiercefighter13

Typically they wait a full 6 months with Faslodex to evaluate the full results. That being said, the timeframe could be different, given extenuating circumstances such as a bad reaction to the shot, or a rapid onset of progression. It’s really important to remember that with most cases of metastatic breast cancer it is a marathon, not a sprint.. I know it’s hard to be patient and wait, but after almost 6 years of running this marathon, patience has become one of my best friends. Wishing you well! Take care.

visitingnurse profile image
visitingnurse

I have been on Faslodex for a little over 3 years now and my numbers have been stable. I have had breast cancer over 34 years. I know I am one of the lucky ones, so be patient and think positive and pray. God Bless you and all of us warriors!!

diamags profile image
diamags in reply tovisitingnurse

Have you had stage IV for 34 years?

BorisCarloff profile image
BorisCarloff

Hey Camille-Quickie question. Why did the doctor switch you to Faslodex? And if your shots hurt, use ice packs before for a few minutes, it really works!

Frenchgirl69 profile image
Frenchgirl69 in reply toBorisCarloff

After 20 months on Ibrance and letrezole, I had progression. Thanks for the information.

diamags profile image
diamags in reply toBorisCarloff

Either the ice pack, or make sure that the Faslodex is room temperature. I do that, and no problems.

Beryl71 profile image
Beryl71

I made progress after a few months, lymph node reduced and tumour markers reduced. Good luck!

cpidacks profile image
cpidacks

I have been on Faslodex as my only line of treatment since March of 2019. I have a tumor in my liver. My scans have not shown any progression and my labs are in the normal range. I was first diagnosed with Stage 2 breast cancer in 1991. Had radiation and chemo. I am hoping for many more years on Faslodex. Good luck to you on your journey.

Oberammergaux2 profile image
Oberammergaux2

I don’t know about “working” but the drug has a 40-50 day half-life per the manufacturer so your doses will be overlapping. I have had liver mets over the years and use gamma knife radiation to eliminate them. Much prefer that to the meds but everyone is different. Here’s to your next scans showing positive results! Hugs to you 💐

yevgeniakoretskaya profile image
yevgeniakoretskaya in reply toOberammergaux2

I have liver mets.After ablation I got more mets.Doctor das not believe that ablation works in my situation. Whot is the differene approach doctors have.After ablation i was sick for 3 weeks. Now is chimo terapy. Please share your experiences with ablation. Hugs Yevgenia.

fancydog profile image
fancydog

Your Dr will probably scan you 3 months after changing to Faslodex and hopefully some response will the noticeable.

ANNIE6449 profile image
ANNIE6449

My only met has been to my scapula and it caused a lot of pain. Within 24 hours of my first shot the pain was down 80%. After the second injection the pain was down 95% and no longer an issue. I was on it for about a year, recently restarted it and the same thing happened. I do not know if this is a typical reaction, but it was great for me!!

(Changed meds to capecitabine after tiny mets appeared in other bones. Everything disappeared but the scapula spot so went back on the Faslodex until we can get biopsy to see if it is the cancer or something else causing the PET to light up. Last two PETs showed activity in the scapula which was bone healing, not progression. Othopedic oncologist has to do the reading bc most techs don't know this about bone mets.)

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