My daughter just called to tell me she was just diagnosed with covid and can't come to our family gatheringšŖ! She's a teacher and during the school year I rarely see her--she's too far away for me to go to her!
This comes on top of the news that I do in fact have another met on my brain, likely the cause of the strength and coordination issues with my right hand. I had to tell her about that as I've promised her I will keep her in the loop......
I'm waiting to hear from the radiation scheduler. What's really crazy about this is that I'm not worried about it. I've had MBC so long (20 years next March 1), done so well, and had so many tests, treatments etc that I've quit getting upset about it! More upset by far about not seeing my daughter for this holiday and her disappointment!
My sense of humor helps alot!
I think I've mentioned here that we're trying to get rid of "stuff" so I'm back to sorting jewelry and other "stuff" for other family members......
I hope you all have a wonderful Thanksgiving!
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PJBinMI
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So sorry your Thanksgiving Day will not be as you planned.After 20 years of this dreadful disease,I am sure you are very aware that nothing we plan seems to be what truly takes place.Prayers for your daughter to quickly recover,and prayers for you that you stay cheerful and hopeful no matter whatā¤ļøš¦
Itās so wonderful to hear from women that have managed this disease for so many years - can you tell me what meds youāve taken - I was diagnosed in 2018- stage two- then stage 4 in 2022- been on Ibrance - bone Mets in hip- did your bone Mets start elsewhere - hereās to continued success
One reason I'm here isto give hope to others! I've had bone mets since first diagnosis--"extensive" mets in spine, pelvis. rib and scapula. On Letrozole for just weeks short of five years, along with Zometa for the bone mets. Next was Fulvestrant which worked for over9 years. Zometa was switched to the injected new med, can't remember the name, duh. I has Ibrance for a very few rounds in 2016, but it did permanent damage to my lungs. (treatment for that has helped some) About 7 years ago I got first mets other than bone. A very small met on surface of rt cerebellum. Focused rad got rid of thst, though something very similar has just showed up and I've been referred to a rad onc again. Other place cancer cells appeared was in left ureter. Removed by a urologist and I now have a stent there that has to be replaced about every 3 months, an easy outpatient procedure. When Fulvestrant stopped working, I was switched to Exemestane and it worked for about four years, til early this year when the cancer changed from E+ to triple negative. I've been on first real chemo, oral Xeloda. I'm waiting to here what's next. Around a year ago I developed osteonecrosis of the jaw--found very early. Oral surgeon removed the first bit of damaged bone, that came thru the gums..... then treatment with an Rx mouthwash, and of course bone med stopped. I've done really well and that isn't active anymore! I've always been a pretty calm person and after initial common stress, I've gotten pretty relaxed about all this! Sense of humor helps alot and I'm fortunate to have great family support, great medical insurance, purring lap cats. I'll never wear attractive shoes again--that's what I'm most annoyed about, how crazy is that! LOL You've got alot to be hopeful about! Bone mets don't kill us, so you have that going for you.
My sister pulled out of our Thanksgiving Dinner for the same reason. Itās sad that we will miss seeing loved ones on this day, but it gladdens my heart that they care enough to want to protect us!
Best wishes on all your upcoming treatments. ā¤ļø
Sorry you can't see your daughter. COVID just keeps interfering with our plans. You have no idea how much it helps me when I hear about those thriving for years. Thanks for sharing that
May I ask, have you had MBC for 20 years, or 20 years since initially diagnosed with breast cancer?
I will be 4 years MBC next February and get freaked out when I look at stats. This group is so much better than stats !!
I'm so sorry your daughter can't join you for Thanksgiving. I hope she will be feeling better soon. Also, I am sorry that you have a new brain met. I hope and pray for good success with radiation. You are such a strong, determined woman and an inspiration to me. Sending you hugs and prayers. Have a blessed Thanksgiving.
Thank you for your inspiring post! Happy TG to you and all those in your world where ever they may be. I am going on to 5 years as MBC , initial invitation to the pink party was in 2000! "Stable" disease now..love love being called "stable" at this point in my life. Special thanks to all you long term folks...you do give us all a most appreciated "boob boost" when you share your stories. š
So sorry that your Thanksgiving will not be shared with your daughter this year and sorry to hear of your progression. Your 20 years is an inspiration to me and many others. Iām currently at 6 1/2 years metastatic and doing well so far. None of us know what our future holds but hopefully you will see your daughter again soon. Perhaps a FaceTime call. Relax today and enjoy some turkey. Thatās what Iām going to do!
So sorry that you won't get to see your daughter this Thanksgiving PJB. I hope nevertheless that you manage to enjoy the holiday with the rest of your family. ALSO how fantastic to reach 20 years, you give us all encouragement and hope. Wishing you a good holiday and many years of good health K
Hi PJBinMI! I too have a daughter who is sick but not with COVID. I was supposed to go and stay overnight with her for Thanksgiving and she was to come on Friday also for another family thanksgiving here. (We have big families so it was split up to accommodate everyone.) Now we can't see each other for this holiday. I know I will see her for Christmas though. And yesterday I had a CT scan of chest, abdomen and pelvic. I have lessions on liver, right adrenal gland and looks like right kidney. Prior scans only showed mets to the right lung. I am grateful that I am here for this thanksgiving and I am praying that I can have as many years as you. I am always grateful for your posts. It gives me hope despite the not so great news yesterday. Happy Thanksgiving!!
I'm sorry your Thanksgiving was affected by covid...will it ever end and hope a speedy recovery for your daughter.
Sending you positive thoughts that radiology will knock that met out like the last one. They have come a long way with treatment. Please keep us posted.
I spent Thanksgiving alone as well because not able to travel with my weak knees and painful hip. Don't know what is going on since my fall in August. Xray showed no problems with hip. I'm due a scan in December that may reveal why.
All the best for improved health to you and family.
Thank you! I don't think I'm up tp travel either! I love traveling-- art galleries, cathedrals, nature, zoos....
I hope you get answers. If nothing else, ask to be referred to physical therapy, even at home. It can be amazingly helpful! At least it has for me. Have you tried Lidocaine patches? They sometimes help with pain. Maybe I'm just repeating what your docs have said........
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How does it start when your stage iv (which has mets to my lungs) start possibly appearing elsewhere???? My onco just called me at home.
