Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,607 members • 8,142 posts

All posts for December 2022

ibrance and arimidex

I’ve had no issues but I don’t have issues with cholesterol. Not sure if that helps. I do take blood pressure meds

I’ve had no issues but I don’t have issues with cholesterol. Not sure if that h...

1glajon

•1 year ago

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Hair Loss while on IBrance?

After my 3rd recurrance of breast cancer (all in breast and chest area) and even after bi lateral mastectomies and radiation and chemo. I've been on...

After my 3rd recurrance of breast cancer (all in breast and chest area) and even...

sonycamera

•1 year ago

16 Replies

I kind of ... sort of... got in my own way on this MBC journey! 🚘

Let me explain. I began to forget about my many blessings and my ability to find comfort in this cancer situation. I won't lie, it is hard sometimes. I woke up...

Let me explain. I began to forget about my many blessings and my ability to find...

Hotlantaphatz

•1 year ago

40 Replies

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Sharing laughter

I thought I'd share some of my medicine. https://youtu.be/9cKIiSqcCmg

OneLump22

•1 year ago

1 Reply

Post Xeloda Options…Enobosarm?

Hi everyone, unfortunately my wife’s tumor markers have exponentially increased over the last 3 months so after 8 months of Xeloda we will need to make a...

Hi everyone, unfortunately my wife’s tumor markers have exponentially increased ...

Half-Full

•1 year ago

11 Replies

Piqray and hand tremor

Has anyone experienced severe hand tremors while on Piqray. I've quit taking the drug for various reasons and side effects but I'm curious if anyone else has...

Has anyone experienced severe hand tremors while on Piqray. I've quit taking the...

Southside25

•1 year ago

3 Replies

drug interactions

An FYI for those of you on Ibrance and Simvastatin. Unfortunately I had a bad reaction to the combination of these 2 meds. Despite the fact that I’ve been...

An FYI for those of you on Ibrance and Simvastatin. Unfortunately I had a bad r...

Mimiholl

•1 year ago

11 Replies

Going for my first CT since being on iBrance for 3 months

Hi all I am extremely scared and worried about the ct. I am not usually this sad or down but today seems very bad in every way. I feel hopeless about...

Hi all I am extremely scared and worried about the ct. I am not usually this sa...

Khoya95

•1 year ago

56 Replies

Day 4 taking Xeloda 2000mg twice daily! Need 🛌 💤! 🥱

Experiencing insomnia with Xeloda. 1:30 am up and struggling to get some rest. Will work with onc and Accupuncturist for solutions.

Experiencing insomnia with Xeloda. 1:30 am up and struggling to get some rest. W...

Hotlantaphatz

•1 year ago

6 Replies

vinorelbine - 2 weeks on, one week off.

Has anybody found that they feel fine when taking the drug, but get painful bones in the week off? This could be a cancer flare up, or something else? I am...

Has anybody found that they feel fine when taking the drug, but get painful bone...

queeneee

•1 year ago

14 Replies

Has anyone tried anastrozole or exemestane?

Hi all! Until I read your posts about side effects of Letrazole I finally realized I’m living with these same muscle and joint aches in my legs. I’ve always...

Hi all! Until I read your posts about side effects of Letrazole I finally realiz...

Georgelila

•1 year ago

18 Replies

2023 educational conference

Our all-volunteer cancer nonprofit Annie Appleseed Project will host its 15th conference on Complementary therapies, Lifestyle issues and Holistic approaches....

Our all-volunteer cancer nonprofit Annie Appleseed Project will host its 15th co...

AnnieAppleseed

•1 year ago

1 Reply

Treatment change to Xeloda - chemo 💊

I have started the first round of Xeloda a chemo pill 💊. Taking 4 pills twice daily for 14 days then 7 days off. So far so good, none of the side effects as...

I have started the first round of Xeloda a chemo pill 💊. Taking 4 pills twice d...

Hotlantaphatz

•1 year ago

39 Replies

lung filling with fluid

Has anybody had the surgery to stop lung filling up?

Granny333

•1 year ago

6 Replies

Beautiful Thivers..Hugs to all

QuestionLetrozole 25mg n ibrance 100 Just lower too 75..12/9/2023 In the last month l have lost my beautiful thick hair down too my waist thinned out and...

QuestionLetrozole 25mg n ibrance 100 Just lower too 75..12/9/2023 In the last m...

Hidden

•1 year ago

2 Replies

Supplements for hair loss

There is an article summarizing an overview of research on supplements for hair loss. Kind of inconclusive, and there are concerns about safety, but it does...

There is an article summarizing an overview of research on supplements for hair ...

TammyCross

•1 year ago

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new metastasis in pelvis, new protocol

After 11 years dealing with mbc, and being no evidence of disease for 2 years, I now have in my pelvis. I’ll be getting 5 sessions of radiation. Then I start...

After 11 years dealing with mbc, and being no evidence of disease for 2 years, I...

kkrouse

•1 year ago

8 Replies

Beautiful Trivers

Things people should stop saying Too us women who have lost our hair too cancer ITS JUST HAIR...BUY A WIG No your wrong. Since we were little girls We...

Things people should stop saying Too us women who have lost our hair too cancer ...

Hidden

•1 year ago

17 Replies

New cancer drug brings new hope for MBC patients

https://www.dailymail.co.uk/health/article-11516759/Breast-cancer-breakthrough-experts-hail-game-changing-drug.html I hope this new cancer dug is approved for...

https://www.dailymail.co.uk/health/article-11516759/Breast-cancer-breakthrough-e...

MyMiracle13

•1 year ago

14 Replies

Systems Oncology presenting positive preclinical data... ERSO renamed

It appears SERA2 is the new name and there is positive preclinical data to be reported: Please cut and paste into your browser:...

It appears SERA2 is the new name and there is positive preclinical data to be re...

Trissh

•1 year ago

21 Replies

Bronchial wall thickening.

My CT scan showed bronchial wall thickening. An internet search states that this indicates cancer so l assumed it meant progression of disease. Wondering if...

My CT scan showed bronchial wall thickening. An internet search states that this...

NPmary

•1 year ago

4 Replies

Has Anyone Tried Hyperbaric Oxygen Therapy (HBOT) - for expedited healing from radiation induced bone fractures & unhealing wounds?

I understand that Hyperbaric Oxygen Therapy (HBOT) helps tremendously with jaw bone death caused by Xgeva type drugs & radiation induced bone problems. It is...

I understand that Hyperbaric Oxygen Therapy (HBOT) helps tremendously with jaw b...

hopenowandtomorrow

•1 year ago

14 Replies

Piqray and muscle crramps?

I just started in Piqray about 2 weeks ago and have had repeated instances of severe muscle cramps in my hands. When it happens, it can last about 10-15...

I just started in Piqray about 2 weeks ago and have had repeated instances of se...

Southside25

•1 year ago

4 Replies

osteonecrosis of jaw ONJ...I had it..I know things now.

Hi...I am a RN living with MBC since 2013 ..I had ONJ from July 2016 to nov 2017....near the end I started the fb group...Living with Osteonecrosis of Jaw with...

Hi...I am a RN living with MBC since 2013 ..I had ONJ from July 2016 to nov 2017...

RNwithMBCsince2013

•1 year ago

32 Replies

Letrozole(Femara) /joint pain threads continued.....

I have been reading with interest the threads concerning Letrozole and the many side effects we all deal with. My history: DX May 2019 MBC to right femoral...

I have been reading with interest the threads concerning Letrozole and the many ...

OceanBreeze3

•1 year ago

8 Replies

Anyone with experience with Trodelvy side effects and cold capping to save hair? Also how long did you take Trodelvy?

After one treatment of Enhertu I developed Intetstitial lung disease- ILD. I had high hopes for Enhertu and my oncologist says we may be able to try it...

After one treatment of Enhertu I developed Intetstitial lung disease- ILD. I ha...

Sparky95

•1 year ago

13 Replies

Dosage strategies for delaying resistance emergence in heterogeneous tumors

This difficult to read 2021 paper (https://febs.onlinelibrary.wiley.com/doi/full/10.1002/2211-5463.13129) makes a very important observation. Based on...

This difficult to read 2021 paper (https://febs.onlinelibrary.wiley.com/doi/full...

Hazelgreen

•1 year ago

4 Replies

sharp pain in back

Anyone get sharp pain in back by kidney that radiates under the rib to abdomen? Or maybe its Visa Versa?? I’ll talk to onc Monday. Just wondered if anyone...

Anyone get sharp pain in back by kidney that radiates under the rib to abdomen? ...

DDIL1

•1 year ago

6 Replies

sick of medicine attacking me

so ok who on here has nails issues with letrozole and ibrance also XGeva. My nails are peeled all the way to the soft part and around them they are peeling on...

so ok who on here has nails issues with letrozole and ibrance also XGeva. My nai...

TeenaUSA

•1 year ago

49 Replies

Signatera follow up

as mentioned in a prior post on 2 Nov, the blood work to detect circulating tumor DNA (ctDNA) was completed. on 25 Nov, the results were received by Dr. Kristi...

as mentioned in a prior post on 2 Nov, the blood work to detect circulating tumo...

hurricaneheather

•1 year ago

49 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for December 2022

ibrance and arimidex

Hair Loss while on IBrance?

I kind of ... sort of... got in my own way on this MBC journey! 🚘

Sharing laughter

Post Xeloda Options…Enobosarm?

Piqray and hand tremor

drug interactions

Going for my first CT since being on iBrance for 3 months

Day 4 taking Xeloda 2000mg twice daily! Need 🛌 💤! 🥱

vinorelbine - 2 weeks on, one week off.

Has anyone tried anastrozole or exemestane?

2023 educational conference

Treatment change to Xeloda - chemo 💊

lung filling with fluid

Beautiful Thivers..Hugs to all

Supplements for hair loss

new metastasis in pelvis, new protocol

Beautiful Trivers

New cancer drug brings new hope for MBC patients

Systems Oncology presenting positive preclinical data... ERSO renamed

Bronchial wall thickening.

Has Anyone Tried Hyperbaric Oxygen Therapy (HBOT) - for expedited healing from radiation induced bone fractures & unhealing wounds?

Piqray and muscle crramps?

osteonecrosis of jaw ONJ...I had it..I know things now.

Letrozole(Femara) /joint pain threads continued.....

Anyone with experience with Trodelvy side effects and cold capping to save hair? Also how long did you take Trodelvy?

Dosage strategies for delaying resistance emergence in heterogeneous tumors

sharp pain in back

sick of medicine attacking me

Signatera follow up

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