yeah that is so true, people don’t understand the stress of constantly seeing hair get thinner and limp , I wish I could have my normal hair back , life would be so easier, I get fed up of hiding my hair with hair pieces and wigs , I do manage it , But I use to to take my hair for granted until my illness . I am lucky to be here moaning about jt , I suppose 😆 xx
sorry if that sounds negative, but it isa constant worry , going to family get togethers and even going to the door if somebody rings the bell, and I haven’t got my hair on, I know how hard it can be , trying to hide when we don’t feel able to be in public, if our hair isn’t right , It’s hard to understand if you haven’t been there, Xx
Hi. I do agree I get tired of wigsHave a hot flash and be sweating on top of my head and can't pull the wig off in public omg! Prayers for all with hair loss 🙏
In March the first time I lost my hair, I had a head shaving party, 5 wigs, and 6 hats.
I did look beautiful every time I went out, I made damn sure of it.! I controlled the narrative.
Over the summer I had a 3 month break, my hair grew back. It was over an inch and a half long and thick and oddly straight!
I started chemo again the beginning of October, it took 4 weeks to loose my hair and it was much harder emotionally than the first time.
This time, I decided to not hide it. I am going bald; now it is winter I wear a hat for warmth, but I answer the door bald and shop bald sometimes. I went to church bald.
It has stopped the awkward comments and now I feel I am not hiding, pretending to be what everyone expects. Let them say something...I dare them!!!
May we all find our brave - we are living with this, we are thriving with this, who else can be so strong!
Good God, you are so on point! We are really quite stunningly beautiful with our bald, chiseled looking heads. It was my eyelashes that I must admit that I missed. They came back to me, thankfully, and so did my hair.
Do you remember those cards and stickers that read “Of all the things I’ve lost, the thing I miss most is my mind”. I would change that to my HAIR…..I miss it 😊
I don’t want to loose my hair again because my head would be cold and my ears. But I found it very freeing to not comb or style hair. Just grab a baseball cap and go. But I had a younger prettier face way back then. I am sure I wouldn’t like looked at the dark sunken eyes that stare back at me now if I didn’t have hair.
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