Piqray and hand tremor: Has anyone... - SHARE Metastatic ...

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Piqray and hand tremor

Southside25 profile image
3 Replies

Has anyone experienced severe hand tremors while on Piqray. I've quit taking the drug for various reasons and side effects but I'm curious if anyone else has experienced and Tremors while on his drug

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Southside25 profile image
Southside25
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3 Replies
TammyCross profile image
TammyCross

Not on Piqray, on Arimidex and Verzenio, and have had hand tremors a few times. Very disconcerting! One time, I was out with friends and had a sort of spasm and spilled my drink. One friend decided she need to point out that my hand jerked. Like I didn't know that. I told her just a side effect. Mine are not severe and are infrequent, but the involuntary movement, no warning, is distressing. I hope you get other answers. I wonder, when it is severe, whether the meds used to stop tremors induced by anti-psychotic meds would help.

Rbeth profile image
Rbeth in reply to TammyCross

I have essential tremors. Also known as distonia. It is familial. My grandfather had it. I get Botox shots every 3 months in the back of my head, in my neck. Eight shots. I get them in my right hand too. I was right handed, but I can’t eat or brush my teeth with my right hand. I learned to type left handed. At least it’s only one side. I can’t write with my left hand. Shucks! If you want to seek Botox for this, my neurologist specializes in large motor Botox. My health insurance pays for it under distonia. I never thought Piqray could make it worse. Maybe?? I’m grateful Piqray continues to work for me. It’s been over a year.

The type 2 diabetes is a killer. Hard to manage. On a Freestyle Libre and several glucose lowering medications.

Be well and read lots of jokes. Laughter is the best medication. Reenie

TammyCross profile image
TammyCross in reply to Rbeth

Oh, good old Botox. Does migraines, tremors and wrinkles! (I don't need it, except maybe for the last, but I am on enough meds.)

Is the diabetes from Piqray or also familial? -- I had an obese friend whose father died of diabetes at 40. Larry never expected to live past 50 and never controlled his eating, but he did such a good job monitoring and medicating it, he died at 84 a couple of months ago from something unrelated. I have a relative by marriage who got it young, also familial, and just walked every day after eating, and is able to get by without medications. Now I have a skinny blood relative who just got it. Seriously. Quite a surprise. Not sure how he is controlling it, but it is working. -- And, last story, I became diabetic from treatment for an autoimmune disease. Found it quite a struggle to control (carbs!), but went off the med and it went away. A cardiologist I had to see for the autoimmune disease said that if I was diabetic on prednisone, I would become diabetic as I aged. That totally did not happen. Just trying to give some hope, but it may be irrelevant to your situation.

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