Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,738 members • 8,322 posts

All posts for February 2020

Pain

I am on ibrance, letrozole and bone strengthener that starts with D. My question I only get back pain when I'm out and about as soon as I lean on something...

I am on ibrance, letrozole and bone strengthener that starts with D. My questio...

Kiera49

•5 years ago

14 Replies

PET scan anomalies

Hi everyone, My last two PET scans have shown hypermetabolic activity in weird places that are more than likely not related to the breast cancer. On a scan I...

Hi everyone, My last two PET scans have shown hypermetabolic activity in weird p...

michelangelina

•5 years ago

10 Replies

Update on Immunotherapy - Keytruda

I would like to share my positive experience with Keytruda. I started more than 4 months back and have had 6 infusions so far. Last week i had a Pet CT scan...

I would like to share my positive experience with Keytruda. I started more than ...

Sensai7

•5 years ago

6 Replies

Want to take advantage of all our features? Just log in!

1st meeting yesterday with pain specialist. Gabapentin?

Had my first meeting with pain specialist (part of palliative team) yesterday. Long, it was two hours. Has anyone else have someone monitoring their pain....

Had my first meeting with pain specialist (part of palliative team) yesterday. ...

Hidden

•5 years ago

32 Replies

Organ metastasis

I feel like I’m one of very few who has the breast cancer in my stomach and not in lungs or bone. Is there anyone else in this group with the cancer in their...

I feel like I’m one of very few who has the breast cancer in my stomach and not ...

KMBL_

•5 years ago

10 Replies

Xeloda. When do you take it.

Just wondering how rigid the ‘30 mins after a meal is’. What times of day do you girls find best. Many thanks, Ruth

Just wondering how rigid the ‘30 mins after a meal is’. What times of day do you...

BangorBelle56

•5 years ago

7 Replies

Low wbc and going out

Hi! As many of us here on ibrance, my wbc’s take a dive 3rd week of cycle and the week off. I usually avoid public places or at least wear a mask and use hand...

Hi! As many of us here on ibrance, my wbc’s take a dive 3rd week of cycle and th...

Red1246

•5 years ago

39 Replies

Scalp pain

Hi. Just wondering if anyone has pain on scalp with ibrance or faslodex. Thanks ladies. Marianne

Hi. Just wondering if anyone has pain on scalp with ibrance or faslodex. Thanks ...

marianne88

•5 years ago

33 Replies

Oophorectomy, anyone?

Hello everyone! I just had a scan and feel really grateful that so far the Ibrance and Letrozole have reduced the lesions on my rib and pelvis. I am 50 years...

Hello everyone! I just had a scan and feel really grateful that so far the Ibran...

alana303

•5 years ago

15 Replies

MBC

Does anyone experience pain like heartburn in their chest? This was this am before coffee even? I have this pain often but never before eating or drinking...

Does anyone experience pain like heartburn in their chest? This was this am befo...

rpeacock

•5 years ago

11 Replies

Metastasized to...

Hello sisters! I’m just curious where you breast cancer metastasized to? And I know it may sound stupid but any of you that it metastasized to the lungs still...

Hello sisters! I’m just curious where you breast cancer metastasized to? And I k...

Annadm

•5 years ago

30 Replies

Questions..

Hey all just came back to work and university which has been helping me distract myself. Thank you all for the kind messages. Now I have a question. My mom was...

Hey all just came back to work and university which has been helping me distract...

janeths466

•5 years ago

6 Replies

City of Hope article -- the future

I don't remember if I got this link from this site or not, but thought I'd post it anyway. Good info on what's coming in treatment....

I don't remember if I got this link from this site or not, but thought I'd post ...

lynnhbtb

•5 years ago

6 Replies

Ibrance trearment not working

Unfortunately Ibrance did not work for me have just started Xeloda but not feeling great, how have others found it, how long have you been on it and will...

Unfortunately Ibrance did not work for me have just started Xeloda but not feeli...

Anita-B

•5 years ago

8 Replies

Nearly 2 years into my diagnosis.

So, so, so excited. Ibrance, letrazole and Denocumab seem to be working for me for the time being. On Friday I went for my monthly check up after having my...

So, so, so excited. Ibrance, letrazole and Denocumab seem to be working for me f...

Timtam56

•5 years ago

37 Replies

Bonkers?

Hi Ladies, I'm after your thoughts please. I am in the very lucky position of having 'no measurable disease' for which I am truly grateful. However I now have...

Hi Ladies, I'm after your thoughts please. I am in the very lucky position of h...

LouisaMay

•5 years ago

34 Replies

Folks in U.K.

I hope all of you in the U.K. are safe from Storm Ciara. Blessings, Hannah

hdhonda

•5 years ago

15 Replies

Happy to be alive and wake up every day.

Hi, I am new to HealthUnblocked. In December 2018 I was diagnosed with HER2 Negative stage 4 secondary breast cancer in my bones and lungs. I am on Denosumab...

Hi, I am new to HealthUnblocked. In December 2018 I was diagnosed with HER2 Nega...

Hidden

•5 years ago

52 Replies

Who ships your Ibrance?

Hi all, I am curious which pharmacy ships everyone's Ibrance? I cannot think of any good reason why mine would have been taken out of the sealed Ibrance...

Hi all, I am curious which pharmacy ships everyone's Ibrance? I cannot think o...

hdhonda

•5 years ago

44 Replies

Looking for guidance, direction & support - Patient w/ 2nd Diagnosis of XXX Neg Breast Cancer & painful Lymphedema

Hello my name is ShebaLuv77 and I am reaching out to find resources that can assist in paying my rent which is over $1500. I am a divorced mother of two grown...

Hello my name is ShebaLuv77 and I am reaching out to find resources that can ass...

ShebaLuv77

•5 years ago

13 Replies

Afinitor or clinical trial

Hello everyone, I got the results back from my genomics test. The ibrance or possibly the faslodex is no longer working for me or my cancer is progressing now...

Hello everyone, I got the results back from my genomics test. The ibrance or pos...

Wolverine19

•5 years ago

10 Replies

Radiated with cancer in my margin for six weeks! Medical care in Las Vegas is truly criminal.

I found out two months ago with a new radiologist/oncologist, that I NEVER EVER should have been radiated with cancer in my margin. Yet the Nevada Cancer...

I found out two months ago with a new radiologist/oncologist, that I NEVER EVER ...

needabreakfromcancer

•5 years ago

15 Replies

Is this British Dentist a walking cure for cancer?

https://www.dailymail.co.uk/news/article-7926803/How-retired-father-four-59-survived-string-cancers-thanks-unique-blood-cells.html?ito=email_share_article-top...

https://www.dailymail.co.uk/news/article-7926803/How-retired-father-four-59-surv...

Sunnydrinking

•5 years ago

11 Replies

Pic of my parents wedding - 14 July 1954

As you know, I recently lost my lovely mum. I’m pleased that mum lived a long & very happy life. Mum had four children and we are all getting on well & making...

As you know, I recently lost my lovely mum. I’m pleased that mum lived a long &...

Sunnydrinking

•5 years ago

10 Replies

Pfizer Ibrance bottle

Have any of you (especially) those in the U.S. ever received your Ibrance from your specialty pharmacy in a regular medicine bottle. I have always received...

Have any of you (especially) those in the U.S. ever received your Ibrance from y...

hdhonda

•5 years ago

62 Replies

Nothing working on My Daughters MBC

My daughter was diagnosed stage-3, January 2018. She had dense breast, reason given for no early detection. She was going to MSK and told she was clear after...

My daughter was diagnosed stage-3, January 2018. She had dense breast, reason gi...

Fred185

•5 years ago

22 Replies

The Artist

How can you tell if the Ibrance has stopped working? I thank all of you again for your messages. It helps knowing others understand. You hate to tell your...

How can you tell if the Ibrance has stopped working? I thank all of you again ...

The-artist

•5 years ago

11 Replies

New treatment

Hi ladies Well I’m on my second month of everolimus (Afinitor) and exemastane (Aromasin) I’ve been better than I was expecting and been swimming and rode Bugsy...

Hi ladies Well I’m on my second month of everolimus (Afinitor) and exemastane (A...

Barbteeth

•5 years ago

54 Replies

Chiropractor?

I am dealing with a significant tear in my right hip muscle. Nothing seems to be helping the pain, even after 3 months of physical therapy. Now my back is...

I am dealing with a significant tear in my right hip muscle. Nothing seems to b...

jstickrod

•5 years ago

14 Replies

A Great Book!

Kris Carr recommended this book during a Food Revolution Network interview. I bought it right after my MBC diagnosis. It has given me such hope! I feel like I...

Kris Carr recommended this book during a Food Revolution Network interview. I bo...

Sundance4

•5 years ago

15 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for February 2020

Pain

PET scan anomalies

Update on Immunotherapy - Keytruda

1st meeting yesterday with pain specialist. Gabapentin?

Organ metastasis

Xeloda. When do you take it.

Low wbc and going out

Scalp pain

Oophorectomy, anyone?

MBC

Metastasized to...

Questions..

City of Hope article -- the future

Ibrance trearment not working

Nearly 2 years into my diagnosis.

Bonkers?

Folks in U.K.

Happy to be alive and wake up every day.

Who ships your Ibrance?

Looking for guidance, direction & support - Patient w/ 2nd Diagnosis of XXX Neg Breast Cancer & painful Lymphedema

Afinitor or clinical trial

Radiated with cancer in my margin for six weeks! Medical care in Las Vegas is truly criminal.

Is this British Dentist a walking cure for cancer?

Pic of my parents wedding - 14 July 1954

Pfizer Ibrance bottle

Nothing working on My Daughters MBC

The Artist

New treatment

Chiropractor?

A Great Book!

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