Have any of you (especially) those in the U.S. ever received your Ibrance from your specialty pharmacy in a regular medicine bottle. I have always received mine in the sealed Pfizer bottle with the specialty pharmacy label also attached. I am afraid to take it. My pharmacy has lied so many times. They have told me about fake studies that says Ibrance can go from -4 F to 104 F. Both Pfizer and the FDA say no and that it needs to be at room temperature. Please let me know. I am terrified to take it . Blessings Hannah
Pfizer Ibrance bottle: Have any of you... - SHARE Metastatic ...
I have been on for 18 months and it has ALWAYS been in a sealed Pfizer bottle from the specialty pharmacy. I even have to sign off that it is in good condition with no damage or broken seals when it is delivered by FedEx. That being said I don't know if that is just my pharmacies protocol or everyone's. I would definitely call the pharmacy and find out and if they did send it that way ask why.... These drugs are far too expensive to be in the wrong package. Ibrance just enhances the effects of Letrozole so waiting a couple of days to take it is fine. Dr 's will keep us off it when counts are too low for an extra week or more to recover. Hugs to you and let me know how you make out. Aimee
I noticed your comment encouraging hdhonda to get her meds checked out. I agree!
I also noticed your comment about Ibrance just "enhances the effects of Letrozole". I think it is much more. While it is not in the traditional infusion drip form, it is a very potent chemotherapy. It does not just prevent estrogen from feeding our cancer cells like Letrozole. My understanding is that Ibrance kills cells, cancer cells and healthy cells, that is why our counts get so low.
I hope you will talk to your doctor more about it and if I am mistaken please forgive me.
Hannah mine comes in a regular brown pharmacy bottle but I am Canadian and my oncology pharmacist dispenses and hands it directly to me so no shipping from a third party source. The fact that you have been on it for so long and there is a change in the way you received it would be enough for me to query it. I hope you get an answer soon. Thankfully I see below that you have a little bit of wiggle room to get it sorted out.
Thanks for asking Hannah. Unfortunately we are still in limbo as the results were ambiguous and confusing and don't make sense. I talked with my oncologist and asked her if she would take a look at everything and give her opinion. She's not my husbands doctor so I got a waiver signed so she wouldn't get into trouble. My husband likes his GP but I can't stand him but don't interfere. The waiting is very stressful as you can imagine.
In the U.K. Ibrance capsules come in blister packs in a sealed Ibrance carton . Mine says expires May 2022 !
I did just notice , however, on the US Ibrance site, that they are changing the current gelatin coated capsules( in the bottles ) to smooth -coated tablets in blister packs . They will still be in the existing 3 doses (75mg, 100mg,125mg) .I hope we get those in the U.K. as it says the smooth tablets can be taken with or without food and are free of lactose or gelatin , which I would prefer . The new tablets will have to be kept in their original blister packs .. x
Thanks. My insurance won't let me go through a different pharmacy. I tried that because of shipping outside of range . I take medicine out when it arrives and put thermometer in to check temperature. I haven't been able to find a way to protect from cold but keep trying using fridge and various packing materials with thermometer. Thanks. Blessings Hannah
I live in the U S and get my Ibrance through a specialty pharmacy through the veterans administration. I’ve been in it for 6 months and it always comes in a medicine bottle. You can never be too care with your medicine. It’s wise to ask questions if things don’t look normal. You can also google the medicine and see what your pills should look like. Blessings my friend.
Hannah there is currently no therapeutically equivalent version of Ibrance available in the United States.
Ibrance is patented until 2023 as I understand it. Exclusivity is exclusive marketing rights granted by the FDA upon approval of a drug and can run concurrently with a patent or not which Ibrance does also have. That expired in Feb 2019. Exclusivity is a statutory provision and is granted to an NDA (non disclosure applicant) applicant if statutory requirements are met. Be aware though that fraudulent online pharmacies may attempt to sell an illegal generic version of Ibrance. These medications may be counterfeit and potentially unsafe.
Yes I'm sure yours is not fraudulent but I am afraid for people who don't have coverage that may see an overseas online pharmacy selling it cheap and not actually getting the true drug. Someone mentioned generic was available so that's why I chimed in....I don't want someone to fall victim to an online scam in desperation.
I'd call Pfizer about this, and also tell them about the problems you have had with this specialty pharmacy. This has been an interesting thread to me as when I was on Ibrance in 2016 it always came in an elaborately sealed blister pack. That was awhile ago and my memory isn't the best these days, but I think I had to sign for the package. I wouldn't be worried about missing several days of taking it.. The other med you are on is really the "main" one in managing cancer. I often think those here give Ibrance and the other newer targeted drugs too much credit for their successful treatment. But I had a bad experience with it and now have permanent lung damage from it. Anybody on it needs to take the warnings about potential breathing problems very seriously and stop taking it and contact your onc. mmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmm (my cat's comment, this happens all too frequently!)
I'm in Canada, however l dont blame you for your concern. I would find a normal med container extremely unusual particularly seeing as these are chemo meds and should not be handled. They are cytotoxic . I was told also to keep them at a stable temp. Is there anyone at Pfizer you can talk to...sounds like they should know about this.
I returned my Ibrance when it was delivered in a plastic ups bag in the summer. I call each time and have it shipped in a styrofoam box.
Call Pfizer. They have Care Representatives that contact me periodically to answer questions and have sent me a Care book and recipes.
We need to make the pharmacies accountable.
My oncologist told me Ibrance has a 4 hour window to take it. I set an alarm on my watch for 6 PM. Letrozole is forgiving and I take it at bedtime.
Good Luck. Thanks Reenie
I check the tracking number to see where it has been because I need to check for stability during shipping. That is where I have had most of my problems. This is the first time I have received it in a regular pill bottle. I wonder if they are sending me back a bottle that I previously returned. Blessings Hannah
I haven’t had this with Ibrance but noticed my statin refill (generic for Crestor) changed this last time. I used to get it in 30 day supply x 3 bottles and it came from manufacturer. This time it came in a brown bottle with a label the Cigna tel-drug pharmacy created with 90 days in 1 bottle. Now I’m wondering why...will call them tomm. But it’s so much different with Ibrance...as you said there’s no reason to repackage. With my statin it may be a cost/save postage thing.