dailymail.co.uk/news/articl...
Hi
Just wanted to share this article with you all & would be interested in any comments you have.
Jo xx
dailymail.co.uk/news/articl...
Hi
Just wanted to share this article with you all & would be interested in any comments you have.
Jo xx
Hi Jo,
I think we need to kidnap James Hull! Don't you just love the opening sentence: "Dr James Hull should have died years ago". I think he was on the news recently, talking about his extraordinary recovery from metastatic cancer. There may be something in it, but if there is will we get to benefit from the findings?
Sophie ❤
When I read the title of your post, I thought it was going to be about Barbteeth!
But Wow! That's just amazing and inspiring! A lot of articles we read about cancer "breakthroughs" are either pseudo-science or some start-up trying to get VC funding...this is real! I have a few random thoughts...
First, it does seem to support our various efforts to strengthen our immune systems. Apparently there is a way to test for T-cells in blood tests (apparently they do this for HIV patients) but I checked my labs and don't see it (CD4 test, it would be). But, I think the article is saying not so much that he has lots of T-cells, but his are like incredibly strong/different. Still, maybe it's no binary, i.e. your T-cells are either great or normal, but along a spectrum...some are better/worse than others. So I'm def going to keep trying to boost my immune system.
It also adds another piece to the puzzle re: why some folks do incredibly well, even without treatment. I hate to always bring up my sis, but 5 years with metastatic TNBC, no treatment after initial chemo/rads, with just a "pesky" tumor popping up in a lung every couple of years..."easily" removed....Why is this?
My docs have used the word "indolent" to refer to my cancer and certainly my sister's...I've bristled at this, noting that to attribute her (and kind of my) success to a weak foe ignores the possibility that she/we have strong physiologies. I recall that my biopsies showed a fairly aggressive cancer, I forget the term...
This also makes me wonder about the "extreme survivors" study that my sister and I are part of...They took biopsy samples and saliva from us, but not blood. So they do not have the opportunity to look at our T-cells, I assume? Maybe I'll be my normal obnoxious self (!) and send them the article...
What an amazing person Dr. Hull is! To have the desire and resources to advocate and pour millions into helping others....It's a good thing it is he (?) who has these super cell, since he is in a position to do the most good....
Thanks for sharing...
Lynn
Hi Lynn
I wish it was me!!!...I would give you all a T cell transplant
Seriously though it does explain why some people just go on living even with dire prognoses
Hope something can be developed from this but it will take a long time unfortunately
Barb xx
One more random, unscientific comment: Is it possible that his family's predisposition to cancer contributed to his body's ability to produce these super T-cells? An evolutionary response?
That is what I was thinking. He is the beneficiary of all the mutations that the cancer in his family made necessary.
The article has a request for long term survivors, you should email them to possibly donate to their project.
Cheryl
Interesting!! I'll suggest to my sis that she participate...I think she's closer to what they'd be looking for...
Interested, but when we use Ibrance. This med kills our white cells so I don't think we have too much T cells left! That's why I take colostrum to keep my immune system stronger and avoid to get sick easy.
Nmartinez15 -
I've often had a similar thought...e.g. let's imagine that my sister's "superpower" in living so long without treatment is her immune system...Is it possible that in suppressing mine with the meds, I'm countering what might also be my superpower? I'm not willing to forego meds to test this out (!) but it's an intriguing thought..
You can stil take your meds but make sure that you take supplements to keep your immune system strong. 💪
I am keen to join James Hull's trials. I phoned his trial centre that is manned by a nurse. He is working with a number of UK universities on his Car T Cell project.
I live in Northern Ireland and unfortunately Ulster and Queens universities haven't been part of the research. The nurse took my number and said she would contact me if they were collecting data from NI or the ROI.
I believe that he holds the key to a cure for cancer. I hope to get some of this next generation medication in my life time.
I know someone who has had about 5 different cancers at the same time and has been receiving trial treatment from the Royal Marsden using Car T Cells. All the cancer bar his brain tumour has gone. His brain tumour has stayed the same size but not growing. He has lived for more than 6 years and still works part time but always on medication. Also look up Peter Gabriel's wife who was cured with Car T cells in 2018.
In the UK universities are starting to run stratified medical courses. The GP of the future. Looking at your DNA to treat your ailments. I am on Palbociclib and the students use my data as part of their research.
Lots of exciting stuff going on, there is hope! Dr James Hull is one to watch!