Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,607 members • 8,142 posts

All posts for June 2019

Sun rash on Verzinio

Has anyone on Verzinio,Faslodex, xgeva get an itchy rash to skin exposed to sun?

Barb5

•5 years ago

2 Replies

Words of Wisdom

A friend posted this. It wasn’t just for me, but it hit home! I thought everyone else might enjoy it too.

A friend posted this. It wasn’t just for me, but it hit home! I thought everyo...

Red71

•5 years ago

8 Replies

Travel and Insurance experiences

We have been planning to go away (booked since dec 2018). This was before my wife had the diagnosis. Unfortunately we hadn't arranged travel insurance at that...

We have been planning to go away (booked since dec 2018). This was before my wif...

Baseface

•5 years ago

9 Replies

Want to take advantage of all our features? Just log in!

Pathologist mistake

Has anyone heard of this. I am so sad about being informed at dr appt.,that there was mistake on my pathologist report. 2018 last year my left side breast...

Has anyone heard of this. I am so sad about being informed at dr appt.,that ther...

birdibelle

•5 years ago

7 Replies

Care oncology US

For anyone interested you can contact COC here and set up free consultation. Email jason@careoncology.com and he will tell you what to do next. They do not...

For anyone interested you can contact COC here and set up free consultation. Ema...

Francesca10

•5 years ago

8 Replies

Metastatic conference this weekend - free

see info below

ballmom22

•5 years ago

5 Replies

Loss of appetite

Hi all, I have stomach mets and over the last few weeks I have completely lost my appetite. My oncologist said just graze food instead of trying to eat a...

Hi all, I have stomach mets and over the last few weeks I have completely lost m...

LIMEHOUSE3

•5 years ago

12 Replies

Seeking advice about Xeloda dosing and side effect management.

After two months on Faslodex/Ibrance my CA 15-3 is skyrocketing and liver mets are increasing. I will probably be starting oral Xeloda very soon. I would...

After two months on Faslodex/Ibrance my CA 15-3 is skyrocketing and liver mets a...

MacroMom

•5 years ago

11 Replies

PET result

Hi Ladies Had result of pet scan of liver and there is still just the one tumour!! I’m going to have SABR radiation so I’ll be able to stay on the same meds...

Hi Ladies Had result of pet scan of liver and there is still just the one tumou...

Barbteeth

•5 years ago

49 Replies

Ibrance & Aromasin cause Headache

Hi there I wonder anyone taking these two medication gets headache . I am always having headache since taking these two medications.

Hi there I wonder anyone taking these two medication gets headache . I am alway...

Manta12

•5 years ago

1 Reply

My cancer markers have been slowly rising for the last 3 months, but this lab showed they've doubled. My wbc counts and neuts are 2 and.8

This all terrifies me as I recovered from APL leukemia only to have breast cancer return four months later. I've been on faslodex, xgeva, and ibrance since...

This all terrifies me as I recovered from APL leukemia only to have breast cance...

Iwngca

•5 years ago

3 Replies

My last labs revealed a WBC count of 2, but my neuts were at .8. Has anyone every had this happen on Ibrance and Faslodex?

Really worried since I now have metastatic breast cancer after recovering from APL leukemia.

Really worried since I now have metastatic breast cancer after recovering from A...

Iwngca

•5 years ago

4 Replies

Quest Diagnostics

Hi 💕 I just saw in the news that the company Quest Diagnostics "lost" the data of its customers including names, phone numbers, credit cards / debit cards...

Hi 💕 I just saw in the news that the company Quest Diagnostics "lost" the data ...

Maludagui

•5 years ago

5 Replies

Hello

My name is Lisa and I’m a 48 year old woman from East Boston, MA. I was diagnosed as having metastatic breast cancer (already spread to bone) on May 1 of last...

My name is Lisa and I’m a 48 year old woman from East Boston, MA. I was diagnose...

Lisa11171

•5 years ago

28 Replies

Interesting new development in enrolling in a clinical trial.

I assume there would be no cost involved, just like participants selected by the manufacturer?...

I assume there would be no cost involved, just like participants selected by the...

Hidden

•5 years ago

5 Replies

Change in diet

Has anyone made any drastic change to their diet? I’m on my second month and I stopped eating meats and sugar but I’m wondering if there is anything else I...

Has anyone made any drastic change to their diet? I’m on my second month and I s...

Katherinelopez

•5 years ago

23 Replies

Dry peeling fingers

Has anyone experienced dry peeling skin around fingernails while on IV chemo? Any tips? I am using Eucerin cream right now. Thank you so much!

Has anyone experienced dry peeling skin around fingernails while on IV chemo? An...

marleneb56

•5 years ago

5 Replies

Memory lane

Went out tonight with my sister to Motown concert. It was great- so uplifting to sing with crowd and everyone was feeling it. Omg- haven’t been to something so...

Went out tonight with my sister to Motown concert. It was great- so uplifting to...

Francesca10

•5 years ago

20 Replies

Ibrance side effects

Does anyone know if the side effects of Ibrance get better or worse the longer you take it? I’m only on 2nd cycle and feel so weak.

Does anyone know if the side effects of Ibrance get better or worse the longer y...

Stage4Gir

•5 years ago

29 Replies

Types of scans

What is more accurate at detecting disease progression, bone scans, MRIs or PET scans. I’m so confused, as my PET scans show progression, but my blood work and...

What is more accurate at detecting disease progression, bone scans, MRIs or PET ...

Carcinomacarolyn

•5 years ago

10 Replies

Another encouraging news article...

https://www.google.co.uk/amp/s/www.thesun.co.uk/news/9085260/cancer-cure-10-years-new-drugs/amp/

https://www.google.co.uk/amp/s/www.thesun.co.uk/news/9085260/cancer-cure-10-year...

Toomanyquestions

•5 years ago

1 Reply

Is anyone here in remission at the moment? Or NED?

If so, do they keep you on treatment? And are you doing anything other than taking the mainstream drugs? I’ve just started soursop juice and THC.

If so, do they keep you on treatment? And are you doing anything other than taki...

Toomanyquestions

•5 years ago

12 Replies

Has anyone been on this new drug?

https://www.google.co.uk/amp/s/medicalxpress.com/news/2019-06-breast-cancer-drug-boost-survival.amp

https://www.google.co.uk/amp/s/medicalxpress.com/news/2019-06-breast-cancer-drug...

Toomanyquestions

•5 years ago

2 Replies

Thinning hair

I've read where many of you on Ibrance have thinning hair. I'm in my third round, now at 100 mg, dropped from 125. Also combined with Arimidex. I seem to be...

I've read where many of you on Ibrance have thinning hair. I'm in my third roun...

AuntMildred

•5 years ago

7 Replies

Doxycycline Vitamin C and other things

I originally landed in this forum because I was looking for patients using COC Protocol. We're interested in it as an extra arm of treatment. I also noticed...

I originally landed in this forum because I was looking for patients using COC P...

Baseface

•5 years ago

19 Replies

Can someone explain tumer markers

Hi everyone, Im so glad I've come across this forum. There are so many inspirational and positive stories. I'm in the UK and very new to all this and started...

Hi everyone, Im so glad I've come across this forum. There are so many inspirati...

Mindysooty

•5 years ago

31 Replies

New drug for stage 4

30% boost in survival rates for women under 59 with hormone postive, her2 negative mbc. Drug known as a cycling inhibitor increased survival rate to 70%....

30% boost in survival rates for women under 59 with hormone postive, her2 negati...

kduck

•5 years ago

30 Replies

Barbs Italian view

View from villa roof Ashamed to say I only went in the pool once...too cold Back in UK now and it’s hotter here!! Barb XX

View from villa roof Ashamed to say I only went in the pool once...too cold Back...

Barbteeth

•5 years ago

11 Replies

CT Scan Results

Scan results good, some calcification at original site and auxiliary lymph node shows calcification. No evidence of disease progression. Has anyone else...

Scan results good, some calcification at original site and auxiliary lymph node ...

Tam-56

•5 years ago

25 Replies

Hot head

I am on ibrance and letrozole and the only problem I have had is that on the ninth day I get extreme heat on my scalp and the top of my head throbs the only...

I am on ibrance and letrozole and the only problem I have had is that on the nin...

Jackdennis5

•5 years ago

9 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for June 2019

Sun rash on Verzinio

Words of Wisdom

Travel and Insurance experiences

Pathologist mistake

Care oncology US

Metastatic conference this weekend - free

Loss of appetite

Seeking advice about Xeloda dosing and side effect management.

PET result

Ibrance & Aromasin cause Headache

My cancer markers have been slowly rising for the last 3 months, but this lab showed they've doubled. My wbc counts and neuts are 2 and.8

My last labs revealed a WBC count of 2, but my neuts were at .8. Has anyone every had this happen on Ibrance and Faslodex?

Quest Diagnostics

Hello

Interesting new development in enrolling in a clinical trial.

Change in diet

Dry peeling fingers

Memory lane

Ibrance side effects

Types of scans

Another encouraging news article...

Is anyone here in remission at the moment? Or NED?

Has anyone been on this new drug?

Thinning hair

Doxycycline Vitamin C and other things

Can someone explain tumer markers

New drug for stage 4

Barbs Italian view

CT Scan Results

Hot head

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