6 month update off of Pramaprexole!!!

[beartoothgirl406]

20 years on Pramaprexole and I am finally free! With the help of Jools and Susan on this page I have successfully weaned off and life is great!

In November, I started filing off small amounts of my pill with an emery board of all things. It took two months, and at times it was hell, but in general, I felt so much better after the weaning off process began. Two weeks prior to taking the last, tiny piece, I started 300 mg of Gabapentin.

Today, I am down to 100 mg of Gaba and LDN (per my functional medicine MD). She had me on Low Dose Naltrexone years ago for leaky gut and it just happened that it also helped with RLS.

For me, 300 mg of Gaba was simply too much. I couldn't recall words and had brain fog. I tried 200 mg, but in the beginning, it wasn't enough. Maybe my dopamine receptors are healed now, but 100 is perfect!

I hope this helps anyone in the weaning off phase. Life will be better if you take the leap! It is work, but when you have severe RLS, this is necessary!

[SueJohnson]

That is great! I'm so pleased for you.

[Joolsg]

Fantastic news. I'm delighted.

[LotteM]

So happy for you. Also that very low dose gabapentin combined with LDN works for you. The LDN didn’t help me, but hey, we are all different. Good to hear that someone else does benefit.

[RLSLearner]

Well done BTG406, and Sue and Jools! It is great to have the good news stories for those who are suffering with augmentation. It is possible with help from friends.