Hi Everyone
As many of you know 12 months I left my hospital bed in Brisbane Australia and flew to New York I was on the edge of life from this disgusting Wretched Disease.
I’d lost 15 kilos , my blood pressure was not under control, and I was in agony .
Abuse is how I would describe the treatment I received from the Doctor during my 7 day hospital stay.
I checked my self out at 10 pm at night.
48 hours later we were in NYC.
Dr Glen Brooks had responded personally to
my email regarding the use of Ketamin for RKS.
He said that Buprenorphine is what he uses for RLSand he does not prescribe anything else.
Within 3 minutes of entering his room he reached across the desk and wrapped his hands around mine looked me in the eyes and with his his soft compassionate voice he said let’s make you well.
A 10 day trial on low dose buprenorphine was to commence. It sounds silly to be offered a lifeline and yet to be terrified.
That night there was to be a straight switch from 20 mg slow release oxycodone, 2 x daily doses of endone and stillnox .
I was to scared to take the 2mg dose,so I cut it in half and then cut that half into the almost pinheaded size 6 crumbs.
I popped this tiny little sublingual crumb under my tongue then 15 minutes later another and so one until I reached the desired effect.
That night I did not move nor did I snore my husband kept checking to see if I was breathing
I was dead still and quite.
I woke up in the same position I was when I lay down.
Unbelievably an absolute miracle!
My dose is 2 mg usually I take 1 mg which is half a tablet however if I have exerted or exercised
I increase to 2 mg for a few days.
During this 12 months my blood pressure has returned to normal my GP has stopped my blood pressure medication after 16 years of requiring it. He said that is a first for him.
The Glitch
I use medical marijuana for varies aches and pains not daily however sometimes it might be daily for a couple of weeks mostly PRN.
Brand name NanaBis worked really well however my doctor switched it to a new brand Spectrum.
I started having some RLS symptoms around 3 pm I thought oh no here we go 😩I was really worried I though it might be in my head .
I was not sleeping properly my fingers kept waking me up my arms would hit out my legs were irritable.
Eventually every night and I was adding extra little crumbs to my 1mg up at regular dose of
2mg although this is still of course I was worried that it was creeping up and where would it end.
My 23 yr old son who also suffers from RLS ( 6 member of my family suffer ) said Mum I think it is the new medical marijuana. He said it will take 2 weeks to clear out of my system.
Thank goodness he was spot on 😀.
I ceased using the MM it did take 2 weeks for me to return to my normal blissful state I have become accustomed
I am now back on Img Buprenorphine
I sleep like a baby and I love it.
Although my doctor prescribes my dose at
2mg in response to Dr Glen Brooks email so I can exercise.
Also when I was in hospital for surgery in June the cutting of the dose from 2mg to 1mg did there heads in.
If the nursing staff did not cut it exactly in half it would not work properly as one side would be smaller.
So my prescribed dose is still 2 mg because mostly I take 1mg I feel safe knowing I always have some extra in the draw.
Medical marijuana is very new in Australia and the UK be mindful that not all doctors understand the plants varieties and that some may indeed as do some medications in fact do exacerbate RLS.
I know this will sound strange but it’s true.
The longer I am on buprenorphine the better I feel. I keep saying to my husband and GP that not only has my memory returned it is like a new improved version.
In fact I said to my sister early tonight that I actually feel as if my brain is getting younger and healthier.
I am doing things I have not done for many many years.
I am so very grateful to Dr Glen Brooks for answering my cry for help from across the other side of the world .
1000 percent I would not be here today had he not .
My GPs views on buprenorphine 
buprenorphine for RLS 
