First do me no harm

[Shumbah]

Just thought I would put this out there

This movie is based on a true story it is absolutely horrific and gut wrenching treatment by

medical profession of a young boy and the lengths they were prepared to go to .

Meryl Streep plays the lead role

Truly is the behaviour would expect from the Nazi experiments.

It’s about a boy with a severe neurological disorder

This movie will blow your mind and make you even more furious than you already are 😡

[Lapsedrunner]

I’m not furious!

[Shumbah in reply to Lapsedrunner]

I am so pleased Lapsedrunner , if you would like a good dose of furious I can give a doctors number or 2

🤣😂

[Hidden]

I am so grateful that my GP is as understand as they are and as willing to go with my lines of thinking about RLS, its very empowering and I thank them for that.

Now, for every good Dr like mine, (and I have botched about them on here but really they are great), there seems to be 100's that are at best incompetent. I have heard some terrible stories about Drs and know a couple who are as self serving people as you can get - their patients are nothing but things that cause hassle and they appear to hate working with them.

Thanks for the movie suggestion, I think my Mrs would like it I'll have to take a look.

[Shumbah in reply to Hidden]

Get the tissues ready 😢

[DicCarlson]

Full movie is on YouTube...

youtube.com/watch?v=HyeC9Ii...(Not working as expected?)

[Shumbah]

Not to do with RSL

However to do with refractory epilepsy which they use similar meds for . I thought the diet was interesting, if it helps one person that would be good

🙂

[Shumbah]

I am so sorry you are suffering

I am

Stuck between a rock and a hard place myself ,I’m not sure which where to look for help at the moment the pain is horrific

The movie is a true story of an severely afflicted epileptic boy , the hospital section and refuse to let his parents take him. They give him treatments with unbearable side effects and want to brain surgery .

Skipping to the end his mother manages to get him into John Hopkins and he is put on the ketogenic diet for 3 years and he is cured . A lot of the actors in the movie also have been former epileptic patients and are have been seizure free for over 30 years .

You just wonder is if it could help our situations

All just thoughts sad to say grasp at anything in difficult situations.

Ps gabapentin did not work for my RSL

Opioids stop the movements for me .

Truly wish you all the best I hope you find the answer please

Keep us updated

😊

[Shumbah]

You can watch the full video on YouTube