Peripheral neuropathy.: Many people... - Restless Legs Syn...

Restless Legs Syndrome

22,319 members16,383 posts

Peripheral neuropathy.

Madlegs1 profile image
12 Replies

Many people coming here complain of symptoms which are on the verge of rls, but simply don't sound right.

The alternative is, in many cases, peripheral neuropathy.

This is a link to a good review of that condition.

It is noteworthy that many of the 'treatments' are very similar to those for rls, especially the diet!😅

medicalnewstoday.com/articl...

Written by
Madlegs1 profile image
Madlegs1
To view profiles and participate in discussions please or .
12 Replies

Thanks, great, clear and easy to understand overview.

I'm pleased to say I do most of that! I'll have to look into N-acetylcysteine though. (Is it in the Vatican?)

Maybe people can add things to it.

I wonder if anyone has a database of such information e.g., RLS UK?

I can add one thing, I recently discovered some information about NBP ( in this case meaning 3-N- Butylphthalide) which is used in China for various vascular-neurological conditions and is neuroprotective. Apparently it's provided in the form of soft capsules, but I can't track down any western source of it, apart from celery oil.

Yum!

hmm

you can get NAC. (n acetyl cysteine) as a supplement, it's used by prescription as an antidote to paracetamol.poisoning. and as a mucolytic.

I could add it to my list of supplements to try along with the iron, vitamin D, vitamin B12, magnesium, potassium citrate, taurine and celery seed oil.

Going to cost a fortune and might make me rattle

ooops and forgot the saw palmetto, but that's for another problem!

Alex2308 profile image
Alex2308 in reply to

I tried NAC a lot, sometimes really high doses, sometimes it helps, sometimes not at all.

Truth2018 profile image
Truth2018 in reply to

It is available from holland a nd Barrett. Check sale time and buy bulk

martino profile image
martino

Thanks for this. When I was first diagnosed with RLS I complained about pain and the neurologist argued that he did not see pain as being an indicator of RLS. At the time I was adamant that RLS was causing the pain but, after many months of waiting, I had a nerve conduction test and was told I had Small Fibre Neuropathy. SFN is a subset of Peripheral Neuropathy. I have recently learned that I am Pre Diabetic and as I am keen on avoiding diabetes if I can the diet stuff is of great interest.

sarah19902 profile image
sarah19902

It's quite easy to see why people are confused as many of the websites list pins and needles and tingling as RLS. Pins and needles and tingling is also neuropathy. I can't imagine how anyone could say definitely what is what, without having a small five biopsy to rule out neuropathy.

Madlegs1 profile image
Madlegs1

There are two 'hacks' I would use to distinguish them.

The urgent need to move for relief.

Do Paracetamol/Ibuprofen relieve the symptoms? If they do, then unlikely to be rls.

I appreciate these are very blunt instruments, but I'd say they cover 98.35% of cases. Roughly!😅

in reply toMadlegs1

I see that one way to tell the difference between primary RLS and Secondary RLS due to Small Fibre Neuropathy (SFN) is sensitivity to hot and cold.

Someone with the neuropathy will be less sensitive to hot and cold.

academic.oup.com/brain/arti...

Both will have RLS symptoms however.

There are many other causes of neuropathy however, but I imagine (though have found no evidence as yet), that RLS caused by some neuropathies might not so readily respond to dopaminergic agents.

It's complicated because just because someone has secondary RLS due to a neuropathy, it doesn't mean they don't have primary RLS, (as well).

Truth2018 profile image
Truth2018

I always thought I had rls but Dr did not agree. She started me on amitriptyline 20mg night and I am fine since then.

in reply toTruth2018

Not RLS then, Amitriptyline makes RLS worse.

Truth2018 profile image
Truth2018

I had pins and needles symptoms

sarah19902 profile image
sarah19902 in reply toTruth2018

A constant pins and needles feeling in the legs that never really seemed to disappear? It makes the legs super uncomfortable

Not what you're looking for?

You may also like...

Peripheral neuropathy

Many of us suffering from rls symptoms, which may or may not actually be rls, but are...
Madlegs1 profile image

Peripheral neuropathy

I have severe pains in my feet and RLS symptoms from this and when I put my feet up it is...
Damnitall profile image

Restless Leg Sydrome and Peripheral Neuropathy

 I was diagnosed with RLS a few years ago, given ropinorole for treatment that worked for...
janeike profile image

Differences between RLS & Peripheral Neuropathy

If I am right RLS is associated with deficiency of neurotransmitter( dopamine ) in the brain, but...

RLS or neuropathy?

Hello everyone, One day ,about 4 months ago ,when i woke up I had a strange feeling of of ants...

Moderation team

Kaarina profile image
KaarinaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.