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NRAS

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All posts for October 2017

New to community

Hi im steve well I think I need to be with a community as nobody rely understands what we are going through. were I am at the moment is I have had or say I was...

Hi im steve well I think I need to be with a community as nobody rely understand...

steveholmes101

•7 years ago

6 Replies

Feel let down with work

I am over a year in with no biological working for me and I have forced myself to go in even when I had horrendous flare ups - cos I don’t want to be sitting...

I am over a year in with no biological working for me and I have forced myself t...

Phoo2

•7 years ago

3 Replies

How can I control my pain

Neck and back pain getting worse I had a cervical fusion, then was in an accident, which resulted in further surgery, many complications later, with also a...

Neck and back pain getting worse I had a cervical fusion, then was in an acciden...

Ashreya

•7 years ago

5 Replies

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MTX & hard pure liquorice

MTX tends to have a nasty effect on me, causing constipation. I find that pure hard liquorice relieves it but you do not need to suck more than half a piece....

MTX tends to have a nasty effect on me, causing constipation. I find that pure ...

Hidden

•7 years ago

23 Replies

RA & GERD??

Hi, I have been living reasonably well with RA for 3 years now and on Humira this last year with positive impact but developed really bad acid reflux & IBS...

Hi, I have been living reasonably well with RA for 3 years now and on Humira thi...

mellis

•7 years ago

11 Replies

RA in throat?

Here's a new one for me. About 2 months ago started to feel like I have something stuck in my throat on & off during flare ups and it makes me have a low...

Here's a new one for me. About 2 months ago started to feel like I have somethin...

jessquilts

•7 years ago

4 Replies

Knees

Can’t wait 😊 to go back to see orthopaedic surgeon 👨‍⚕️ on 7th nov day before my big 60 🤦🏻‍♀️my Poor knees have been killing me lately told me Last time I...

Can’t wait 😊 to go back to see orthopaedic surgeon 👨‍⚕️ on 7th nov day before ...

Deejojo

•7 years ago

2 Replies

Is Methatrexate killing me

Sure lungs asthma symptoms antibiotics 10 times a year last 3 years, been on methotrexate for 12 years ,rheumatoid for 30 years the inflammation is fine but...

Sure lungs asthma symptoms antibiotics 10 times a year last 3 years, been on met...

Scotthejock

•7 years ago

19 Replies

Knee replacement surgery

Hello everyone, I am due to undergo my first knee replacement surgery (the other knee needs to be done too) and am fairly anxious. So it would be helpful to...

Hello everyone, I am due to undergo my first knee replacement surgery (the other...

JGBH

•7 years ago

11 Replies

Retuximab and dental problems

Please please please could everyone who has had dental problems after having an infusion of retuximab please mail me Many thanx LennieT

Please please please could everyone who has had dental problems after having an ...

LennieT

•7 years ago

1 Reply

Retuximab and teeth !

I started having retuximab 3 years ago and I've just had my 7th infusion. 2 and a bit years ago after having an infusion my top set of teeth felt loose ? I...

I started having retuximab 3 years ago and I've just had my 7th infusion. 2 and ...

LennieT

•7 years ago

1 Reply

Mastocytosis

Do any of you have mastocytosis? There's a possibility I may have it! They'll have to run a test and are looking into it, but great uncle and now my mama have...

Do any of you have mastocytosis? There's a possibility I may have it! They'll ha...

Mrsrkendall

•7 years ago

2 Replies

GP telling me to stand my ground with Rheumatology department

GP has confirmed I've got fluid in nearly every joint he's amazed I can still walk and haven't gone mad. He does not understand why the rheumatologist sent a...

GP has confirmed I've got fluid in nearly every joint he's amazed I can still wa...

Helzbells

•7 years ago

8 Replies

Azathioprine side effects? thoughts welcome!

Hi all, I have PSA, Chrons, Diabetes, and my PSA is very active so I've just been put on Azathioprine 50mg starter dose, I'm already on Stelara, Hydroxy, oral...

Hi all, I have PSA, Chrons, Diabetes, and my PSA is very active so I've just bee...

Superfloozie

•7 years ago

8 Replies

Follow up from procedure

Yesterday went well. Being so nervous I was put at ease. My Dr / surgeon done what he said I did not feel a thing. Only having cannula back of hand was painful...

Yesterday went well. Being so nervous I was put at ease. My Dr / surgeon done wh...

Pamelah5

•7 years ago

8 Replies

NRAS Group Meetings Next Week

Dear All Please find details below of the NRAS Group meetings taking place next week. NRAS Group Meetings— Week Commencing 23rd October 2017 ...

Dear All Please find details below of the NRAS Group meetings taking place next...

Kim-NRAS

NRAS•7 years ago

2 Replies

HELP! Does Anyone Understand Universal Credit ?

Good morning everyone, I hope your all as well as can be and in not to much pain. How does UC work for claimants already receiving ESA , Housing Benefit and...

Good morning everyone, I hope your all as well as can be and in not to much pain...

chante

•7 years ago

8 Replies

Stodgy food with MTX?

Since I had my Metaject yesterday, and within an hour experienced deep queasiness, dizziness and headache, I decided to do what worked when I first had oral...

Since I had my Metaject yesterday, and within an hour experienced deep queasines...

Hidden

•7 years ago

10 Replies

Leflunomide, Uncommon Side Effect

Hi folks, Feeling incredibly lost here...stopped MTX over 2 weeks ago (seemed to be working...but hairloss was too extreme) so I started leflunomide 8 days...

Hi folks, Feeling incredibly lost here...stopped MTX over 2 weeks ago (seemed to...

Jesnaskah

•7 years ago

10 Replies

Spondyloarthritis

My husband has just been diagnosed with Spondyloararthritis where can we find more information about it and how do we find out how bad it can get I want to...

My husband has just been diagnosed with Spondyloararthritis where can we find mo...

Mrsb07

•7 years ago

15 Replies

Changing working hours: advice please...

So, today I had a discussion with my line manager about reducing my hours from a 5 day week down to a three day week. I've asked for this to be two days off...

So, today I had a discussion with my line manager about reducing my hours from a...

girli1111

•7 years ago

6 Replies

What do you do in bed?

By which I mean, in the middle of the night, when the pain stops you sleeping, but you can't get up on your own ( and what would you do anyway) and you don't...

By which I mean, in the middle of the night, when the pain stops you sleeping, b...

LizzieR

•7 years ago

59 Replies

RA and white count

Hi there, it's been interesting reading through all of the information about ra and your white blood cell counts. I'm curious when your white count was as low...

Hi there, it's been interesting reading through all of the information about ra ...

Chaswood

•7 years ago

3 Replies

Home from Hospital

I had foot surgery yesterday to straighten my left foot. Boney overgrowth removed, toes straightened and plated then screwed into place. The HNS gets some...

I had foot surgery yesterday to straighten my left foot. Boney overgrowth remove...

medway-lady

•7 years ago

16 Replies

Down but not out

I still go to work, laugh and drink wine with my friends I walk very oddly and my hands and feet don’t work yes RA does drive me beserk I will never give up...

I still go to work, laugh and drink wine with my friends I walk very oddly and...

Hidden

•7 years ago

4 Replies

Do you have RA, and speak Hindi and English?

We are looking for a Hindi and English speaking patient with RA, who is currently on a biologic, to participate in an educational video on Thursday 16th...

We are looking for a Hindi and English speaking patient with RA, who is currentl...

Hidden

•7 years ago

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Anyone else feel like their legs are made of lead?

Peculiar feeling. My brain and my legs don't seem to be on the same page.

Nettac

•7 years ago

20 Replies

Latest letter from consultant is it or isn't it RA?

So having had no proper follow up appointment since April due to hospital fail. Move down in to consultants list. Spoke to him by phone three weeks ago begging...

So having had no proper follow up appointment since April due to hospital fail. ...

Helzbells

•7 years ago

4 Replies

What is Cero-positive?

Hi I'm new on here & only been diagnosed about 3 months....can anyone tell me the difference between being diagnosed 'Cero-negative' or Cero-positive....I...

Hi I'm new on here & only been diagnosed about 3 months....can anyone tell me th...

Twitty999

•7 years ago

50 Replies

Arrived at hospital

Hi everyone. Thank you all so much for your kind messages. Dressed in my gown waiting to go down . Not looking forward to the procedures !! Best wishes to...

Hi everyone. Thank you all so much for your kind messages. Dressed in my gown w...

Pamelah5

•7 years ago

6 Replies

Posts - NRAS | HealthUnlocked

NRAS

All posts for October 2017

New to community

Feel let down with work

How can I control my pain

MTX & hard pure liquorice

RA & GERD??

RA in throat?

Knees

Is Methatrexate killing me

Knee replacement surgery

Retuximab and dental problems

Retuximab and teeth !

Mastocytosis

GP telling me to stand my ground with Rheumatology department

Azathioprine side effects? thoughts welcome!

Follow up from procedure

NRAS Group Meetings Next Week

HELP! Does Anyone Understand Universal Credit ?

Stodgy food with MTX?

Leflunomide, Uncommon Side Effect

Spondyloarthritis

Changing working hours: advice please...

What do you do in bed?

RA and white count

Home from Hospital

Down but not out

Do you have RA, and speak Hindi and English?

Anyone else feel like their legs are made of lead?

Latest letter from consultant is it or isn't it RA?

What is Cero-positive?

Arrived at hospital

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