Feeling incredibly lost here...stopped MTX over 2 weeks ago (seemed to be working...but hairloss was too extreme) so I started leflunomide 8 days ago..2nd day in, already experienced mild numbness and tingling in my hands and feet. I was able to ignore it for the time being and hoped it would lessen, or my body would adjust (wishful thinking, I know). Today though, is the absolute worst yet, the tingling sensation is so strong, heat is radiating from my hands and now it's crawling up my legs. It's unbearable.
I just saw my Rheumy today, she didn't believe me. Wanted me to up my dose to 20 mg in a week. I just wrote her an email informing her that I cannot stay on leflunomide... Today was too much. I hope she takes me seriously. She thinks plaquenil is too mild... And sulfa intimidates me bc I spend a lot of time in the sun.
Can anyone offer some advice or experiences? Have you had the horrible, intense tingling? I've read, if you stop leflunomide with in a month, chances are it can be reversed. 😰