Anyone else feel like their legs are made of lead?

[Nettac]

Peculiar feeling. My brain and my legs don't seem to be on the same page.

[LuckyJC]

Yes, I get this as pretty much my main symptom of a flare. Along with massive brain fog and I start to move at the pace of a 90 yr old

[Matilda_1922 in reply to LuckyJC]

Me too feel like this at times x

[BubbleMonkey]

It seems when I'm having a flare (still new to this) my legs will feel kinda like rubber. Kinda weak and almost slow. I don't think they are slow, but I feel like they are or should be.

Feels a bit like I'm wading through mud with a heavy backpack or when you get out of the pool or a bath after ages and could swear gravity just increased.

I hope that makes enough sense to at least be readable. Not sure if that's a it like the "lead" feeling you're talking about?

[Nettac in reply to BubbleMonkey]

That's exactly it!

[BubbleMonkey in reply to Nettac]

I am so glad somebody knows what I mean XD

Less glad somebody else has to experience it, but it's nice not to be alone.

[Nettac in reply to BubbleMonkey]

You described it better than me Bubblemonkey. I might be able to explain the feeling to my doc now. Thank you!

[Neannie in reply to BubbleMonkey]

I'm new on here. It's really good to hear others have the same symptoms as me, I don't feel quite so odd now! 🙂

[strawberryshortcake in reply to Nettac]

I wish doctors would just tell you what is wrong. They just hum and ha and talk about something else. I just want to know!

[Downtime in reply to BubbleMonkey]

Exactly. It’s a very strange feeling because no matter how much you try you can’t seem to walk normally even if it doesn’t hurt! The first ever symptom I ever had of this disease was that I felt I wasn’t properly in control of my legs.

In a flare I walk like some sort of muscle bound bloke, without the muscles!

[LuckyJC in reply to BubbleMonkey]

That's a brilliant description! I always struggle to explain this symptom to rheumy but the 'getting out of a swimming pool' feeling is perfect!

[Nettac]

Actually I went swimming today. I go once a week with a group of women friends. I love it. It's the only cardio exercise I can do. However my legs just wouldn't work the way I wanted them to.

Getting in and out of the pool is always a trauma, but that feeling when you first get out is how legs feel all the time. Perfectly described.

I tend to be more prone to falling over when legs feel like this.

[Zip1]

Having the same trouble with my legs today, well described everyone and it feels better knowing I’m not alone!

[TTCC]

I had a time when I was at work that my legs were going so slow not only was I overtaken by a very old lady who was walking with a stick but when I went up the stairs the motion detector light turned off leaving me in darkness on the stairwell 😂

[strawberryshortcake in reply to TTCC]

I had that come on very suddenly whilst walking my daughter to school. Took

Me about an hour to get home instead of 15 minutes. Sorry to say, it hasn't gone away, I was told years later I had Cmt but think I have Lupas . No one has ever given me a proper explanation even though I've been in and out of hospital about 6 times.

[Nettac in reply to strawberryshortcake]

What is CMT Strawberryshortcake?

[ITYFIALMCTT in reply to Nettac]

iirc, Charcot Marie Tooth - not that that clears it up for you

[strawberryshortcake in reply to Nettac]

It's easier to read about it on their website. I've got a card to carry with me. I'll tell you what it says,it is know Hereditary Motor and Sensory Neuropathy. Gives you poor balance, chronic fatigue and mobility and dexterity problems. Can be sensitive to certain drugs and some anaesthetics. Lack of normal reflexesin arms and legs.

[Nettac in reply to TTCC]

Oh heck...that sounds awful TTCC!

[ITYFIALMCTT in reply to TTCC]

That's always happening to me in changing rooms and showers (after kayaking)

[Nettac]

Thank you. I had a read. Sounds awful