Down but not out: I still go to work, laugh and drink... - NRAS

NRAS

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Down but not out

4 Replies

I still go to work, laugh and

drink wine with my friends

I walk very oddly and my hands and feet don’t work yes RA does drive me beserk

I will never give up but it does get me down

Pain is intense but I smile and not frown

have figured out how to adapt when I have a flare I hold my head up high and pretend I don’t care

To al my RA brothers and sisters keep going strong with a smile on your face sashay a long 😀

4 Replies
popsmith1874 profile image
popsmith1874

That's the spirit to have ,we know we can't beat it but as you say we adapt the best we can and always try to keep smiling😁

bevlin profile image
bevlin

My advice to anybody newly diagnosed would be to carry on working and carry on doing the things you love. The first year of diagnosis was a nightmare until the meds kicked in but I managed to carry on with work ( bit slower than before!) and although I won't be playing the piano or dancing any time soon I try to do what I enjoy. I think if you decide you are disabled and can't carry on as normal you will get very depressed and my RA is better if I keep on the move , nice to see a positive post for a change!

TTCC profile image
TTCC

Well said!

When I was diagnosed I thought that’s it, I’ll have to cut my work hours, not do the Masters Degree I was planning on doing and just vegetate!

THEN - I thought “stuff” this - If I don’t do stuff now I never will and to be fair I am in agony what ever I do, my RA seems to progress what ever I do - so I may as well struggle and be in pain with what I want to do not be in pain and struggle with just existing.

Have I found THE treatment for me? Not yet but I’ve decided my life isn’t over yet so yes I struggle with everything (can’t even cut cheese at the moment) but I struggle with living life NOT struggle with RA

helenlw7 profile image
helenlw7

That’s exactly my way of thinking - it will not beat me! There are things I can’t do now, but I’ve started other things instead.

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