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All posts for May 2024

Cooling Program from MS Focus

More often than not, heat and MS don’t mix. As body temperature rises, weakness, fatigue, visual disturbances, and other symptoms can become aggravated and...

More often than not, heat and MS don’t mix. As body temperature rises, weakness,...

bxrmom

•2 months ago

7 Replies

MRI results

Good morning everyone-it’s 10 am here in Ohio. My last MRI showed no active lesions 🎉! In fact I didn’t have any new lesions in 10yrs.Another thing I’m...

Good morning everyone-it’s 10 am here in Ohio. My last MRI showed no active lesi...

Sweetheartonvdayl

•2 months ago

19 Replies

PET Brain Scans Find ‘Smoldering’ Inflammation in Multiple Sclerosis Patients

A new study from Brigham and Women’s Hospital suggests PET brain scans could reveal hidden inflammation in patients with multiple sclerosis (MS) who are...

A new study from Brigham and Women’s Hospital suggests PET brain scans could rev...

BettysMom

•2 months ago

5 Replies

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what is proper scooter etiquette?

a few years ago my husband and i were in Vegas and i was using a scooter. i can drive one ok i just don’t like driving one in crowds and i especially don’t...

a few years ago my husband and i were in Vegas and i was using a scooter. i can ...

HouseElfWon

•2 months ago

19 Replies

ADHD?

Has anyone been on Atomoxetine or any other ADHD meds? Are there any interactions with MS meds?

Has anyone been on Atomoxetine or any other ADHD meds? Are there any interactio...

mhepler531

•2 months ago

11 Replies

Exercise!

What a great feeling to have used my Indoor bike yesterday! Leslie😀

lbenmaor

•2 months ago

14 Replies

Social Isolation

Unfortunately, I don't have many friends for family to reach out to. MSAA's chat through HealthUnlocked here has provided me with much needed social...

Unfortunately, I don't have many friends for family to reach out to. MSAA's cha...

donna0329

•2 months ago

24 Replies

Be Kind

Years of untouched rage may be meant for specific people and not random passerby’s on the internet. So be kind. Not as a pleasant “be kind and I’ll fart...

Years of untouched rage may be meant for specific people and not random passerby...

SuperMom1921s

•2 months ago

8 Replies

MS Navigation for Young Adults

Hello everyone! I’m a MS Warrior from Texas. I was diagnosed with MS in 2016 and been living with it for 8 years. When I was first diagnosed, I couldn’t...

Hello everyone! I’m a MS Warrior from Texas. I was diagnosed with MS in 2016 a...

EmpressArtist

•2 months ago

24 Replies

Still Snow in May?

It is May 7th. It has snowed every single day in this month here in Idaho. I truly love snow and winter, but at this point I have had quite enough. It has...

It is May 7th. It has snowed every single day in this month here in Idaho. I tru...

Amore55

•3 months ago

16 Replies

I feel so lost.

Hi all newly diagnosed here. 4 lesions in brain and they say it's ms. I'm not ready to start any medication yet it's what my guts says. I've seen 2...

Hi all newly diagnosed here. 4 lesions in brain and they say it's ms. I'm not ...

Contra21

•3 months ago

50 Replies

Maybe PPMS?

Hi everyone,Like most of you it's taken a really long time to try and get a diagnosis and a plan. I started with gut issues and lots of weight loss. When...

Hi everyone,Like most of you it's taken a really long time to try and get a diag...

Mazha

•3 months ago

23 Replies

Motivation for my doctor

to cure something. https://www.goodnewsnetwork.org/ape-treating-his-wound-using-medicinal-plant-is-a-world-first-for-a-wild-animal/ I expect to get over...

to cure something. https://www.goodnewsnetwork.org/ape-treating-his-wound-using...

falalalala

•3 months ago

9 Replies

Rainy dreary day today 🌧️

Good Morning been raining 🌧️ all night and a little gloomy today. It’s in the 40’s today and was 72 yesterday. Crazy weather 🤪 Rozy is laying by the garage...

Good Morning been raining 🌧️ all night and a little gloomy today. It’s in the 4...

Kenu

•3 months ago

8 Replies

Heartfelt Aaron Boster video on how to avoid losing money to scammers, plus tips to avoid identity theft and cyber crime.

Dr. Boster made this video because two of his MS patients got scammed out of a lot of money. He talks about how to recognize scams when people contact you....

Dr. Boster made this video because two of his MS patients got scammed out of a l...

CatsandCars

•3 months ago

17 Replies

This week has been rough! Introducing...

My MS Adventure Buddy has a name now! Introducing Finley Ashowen! Or Fin for short. Pictured above at my iron infusion last week. I did better with the iron...

My MS Adventure Buddy has a name now! Introducing Finley Ashowen! Or Fin for sho...

MSFlea

•3 months ago

16 Replies

MS, age, or both?😂

I see this in my future.

Robsmom

•3 months ago

9 Replies

Go Philly - Stronger Than MS Walk 2024!

Hello Everyone, The National MS Society 5K Walk is this morning! Actually Philly is doing multiple runs, including Blue Cross Broad Street Run on the same...

Hello Everyone, The National MS Society 5K Walk is this morning! Actually Philly...

stepsforNeeC

•3 months ago

12 Replies

recently diagnosed

Taking a minute to filter through emotions…ms did a factory reset on my body. Quite literally. Relearning how to walk, write, open a jar…it was so random and...

Taking a minute to filter through emotions…ms did a factory reset on my body. Qu...

SuperMom1921s

•3 months ago

8 Replies

H.O.P.E. Bracelet

mrsmike9 I was bored one day, seriously, who gets bored with ‘ms’, well anyway, I decided to make a bracelet. I used pretty pink mermaid beads, glow in the...

mrsmike9 I was bored one day, seriously, who gets bored with ‘ms’, well anyway,...

carolek572

CommunityAmbassador•3 months ago

53 Replies

Fight On!

Hello community, I started this week no doing so well. Thankful to be doing a lot better now. I'm sitting here typing with my cooling vest on. It helps a...

Hello community, I started this week no doing so well. Thankful to be doing a ...

drumbugg

•3 months ago

7 Replies

CD20 Therapies (Ocrevus, Kesimpta, etc.) and potentially serious dental problems

This was an interesting post on the MS-blog. You have to get past the Dustin Hoffman in Marathon Man reference (which was a memorable scene!) to get down to...

This was an interesting post on the MS-blog. You have to get past the Dustin Hof...

CatsandCars

•3 months ago

13 Replies

Foot drop

Has anyone with foot drop found a shoe type that works well? The shoe on my foot drop foot always scraps and wears out before the other one. Any...

Has anyone with foot drop found a shoe type that works well? The shoe on my foo...

punterstein

•3 months ago

11 Replies

Good Morning gang members it’s a little chilly and had couple inches of snow ❄️

Well finally feeling a little better and probably due a meeting today 👍🏼 Had a splurge of energy yesterday and dusted the house then vacuumed and mopped...

Well finally feeling a little better and probably due a meeting today 👍🏼 Had a...

Kenu

•3 months ago

20 Replies

As if MS wasn't enough, I have osteoporosis

HelloAs if MS wasn't enough, I now have osteoporosis. Which could be why I fell and broke my shoulder in December. My primary doctor has put me on boniva....

HelloAs if MS wasn't enough, I now have osteoporosis. Which could be why I fel...

jkdavid99

•3 months ago

11 Replies

DBS operation

I’ve been approved by Kaiser for a DBS (Deep Brain Stimulation) operation for my MS/essential tremors. Would like to talk to someone who’s had the same...

I’ve been approved by Kaiser for a DBS (Deep Brain Stimulation) operation for my...

Potatoskins

•3 months ago

3 Replies

Home from Neuro

Today was my 6 month appt with my Neuro. I told her about a horrible breakthrough migraine I had over the past weekend. I am to take 800mg of Ibroproferin. She...

Today was my 6 month appt with my Neuro. I told her about a horrible breakthroug...

bxrmom

•3 months ago

10 Replies

Lynnie THE BikerChick is back

I was very activein this grourp until last fall. Sometime between Oct. & Thanksgiving, I Just lost interest in everything. I do read along,but rarely...

I was very activein this grourp until last fall. Sometime between Oct. & Thanks...

CalfeeChick2

•3 months ago

8 Replies

Good chilly May morning 🥶

Good morning with windchill it’s 22 degrees in Pocatello Idaho that’s at least 20 degrees below average. I’m still toughening it out in my shorts 🩳 it is...

Good morning with windchill it’s 22 degrees in Pocatello Idaho that’s at least 2...

Kenu

•3 months ago

11 Replies

MS with normal MRI

Gavin Giovanoni at Bart's in the UK writes that it is possible to have MS with a normal MRI. I found this to be pretty surprising, so I thought I would share...

Gavin Giovanoni at Bart's in the UK writes that it is possible to have MS with a...

CatsandCars

•3 months ago

15 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for May 2024

Cooling Program from MS Focus

MRI results

PET Brain Scans Find ‘Smoldering’ Inflammation in Multiple Sclerosis Patients

what is proper scooter etiquette?

ADHD?

Exercise!

Social Isolation

Be Kind

MS Navigation for Young Adults

Still Snow in May?

I feel so lost.

Maybe PPMS?

Motivation for my doctor

Rainy dreary day today 🌧️

Heartfelt Aaron Boster video on how to avoid losing money to scammers, plus tips to avoid identity theft and cyber crime.

This week has been rough! Introducing...

MS, age, or both?😂

Go Philly - Stronger Than MS Walk 2024!

recently diagnosed

H.O.P.E. Bracelet

Fight On!

CD20 Therapies (Ocrevus, Kesimpta, etc.) and potentially serious dental problems

Foot drop

Good Morning gang members it’s a little chilly and had couple inches of snow ❄️

As if MS wasn't enough, I have osteoporosis

DBS operation

Home from Neuro

Lynnie THE BikerChick is back

Good chilly May morning 🥶

MS with normal MRI

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